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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Gaba and back/pelvic pain
4 posters
Page 1 of 1
Gaba and back/pelvic pain
Hi all,
I started taking gabapentin about 10 days ago. I'm working my way up so have only been taking 300 mg at bedtime. Since I started taking it, my lower back pain, pelvic pain and knee pain have all freaked out. I've had two back pain flare ups (sacroiliac joints), and muscle spasms in my butt. The worst are spasms where my butt/back of thigh meet near the perineum. I'm basically taking Robaxacet 24/7.
Before that I had about 3-4 weeks pain free. I'm at a loss about whether to keep taking the gaba. I've had all these symptoms before, so I don't know whether it's unrelated or the gaba is causing it. It's such a low dose though ... Although only 10 mg of ami made me a sleepless train wreck, so I seem to be sensitive. I read that gaba can cause back pain but it's not very common and maybe not on such a low dose.
I'd love to have some advice. I know some of you are taking gaba now, so it would be great to hear. Thanks so much!
I started taking gabapentin about 10 days ago. I'm working my way up so have only been taking 300 mg at bedtime. Since I started taking it, my lower back pain, pelvic pain and knee pain have all freaked out. I've had two back pain flare ups (sacroiliac joints), and muscle spasms in my butt. The worst are spasms where my butt/back of thigh meet near the perineum. I'm basically taking Robaxacet 24/7.
Before that I had about 3-4 weeks pain free. I'm at a loss about whether to keep taking the gaba. I've had all these symptoms before, so I don't know whether it's unrelated or the gaba is causing it. It's such a low dose though ... Although only 10 mg of ami made me a sleepless train wreck, so I seem to be sensitive. I read that gaba can cause back pain but it's not very common and maybe not on such a low dose.
I'd love to have some advice. I know some of you are taking gaba now, so it would be great to hear. Thanks so much!
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: Gaba and back/pelvic pain
Hey there,
I had trouble with ami and then with gaba I lost the power of speech. Some people enjoyed that but I was working at the time and oh my God I was hideous to be around.
I couldn't tolerate either and I only had the low doses as well. It does help some people so I wouldn't want to discourage you. I know that I was completely F'd up on both of them and found my wee brain was fighting for control. I didn't have a sore back but I had pretty bad V pain back then so my girl bits were the centre of my world. I didn't graduate to the higher doses of either.
I think keep an open mind which is hard in a drug haze. I threw everything I could at it after I kicked the drug habit. Look at the things you do have control over. What you do to your body, what you put in it. Be kind to yourself and start changing the things you can.
Take care
xx.
I had trouble with ami and then with gaba I lost the power of speech. Some people enjoyed that but I was working at the time and oh my God I was hideous to be around.
I couldn't tolerate either and I only had the low doses as well. It does help some people so I wouldn't want to discourage you. I know that I was completely F'd up on both of them and found my wee brain was fighting for control. I didn't have a sore back but I had pretty bad V pain back then so my girl bits were the centre of my world. I didn't graduate to the higher doses of either.
I think keep an open mind which is hard in a drug haze. I threw everything I could at it after I kicked the drug habit. Look at the things you do have control over. What you do to your body, what you put in it. Be kind to yourself and start changing the things you can.
Take care
xx.
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Gaba and back/pelvic pain
I would say get your pelvis checked and go from there. It definitely sounds like you've put your SI joint out of alignment which may or may not be related, were you getting any pain relief? Is it possible you've done something that normally pain in the pelvis would have stopped you doing? Could it be something else you've done alongside the pain meds, like for example relaxing the pelvic floor?
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Gaba and back/pelvic pain
Well, I officially kicked the gaba as of Thursday and by Sunday was muscle-spasm-pain-free, clearheaded and back to myself The gaba really was the only variable that I changed in the last two weeks. My SI/pelvic floor/vaginal physio had been working really well and for 4 weeks before I started the gaba I'd been in the clear, then I started it, then the spasms went crazy, then I stopped it, and now I'm back to where I was.
I feel like there's so much to do in the realm of physio and then biofeedback and dilators, that I'm going to focus on that for now. We are also in sex therapy. And I'm beginning the process of all the lifestyle changes that I may as well try - cutting out caffeine and decreasing sugar/processed flour. And meditating. The list is endless! I might revisit the meds in several months after I feel more on track, but like Vicki, I think they may just not be for me. What I find hard about admitting that is it involves transitioning from trying to cure this to managing it (and accepting living with it for the indefinite future).
I feel like there's so much to do in the realm of physio and then biofeedback and dilators, that I'm going to focus on that for now. We are also in sex therapy. And I'm beginning the process of all the lifestyle changes that I may as well try - cutting out caffeine and decreasing sugar/processed flour. And meditating. The list is endless! I might revisit the meds in several months after I feel more on track, but like Vicki, I think they may just not be for me. What I find hard about admitting that is it involves transitioning from trying to cure this to managing it (and accepting living with it for the indefinite future).
Zazu- Posts : 64
Join date : 2011-04-05
Location : Canada
Re: Gaba and back/pelvic pain
Hey Zazu
Yes im the same...Ive accepted and surrendered to this condition. I am not looking for a cure but rather healing...and adopting a lifetsyle that improves my physical and emotional well being.
DOing it all diet change, dilators, stretching (sometimes....), no more freakin jeans grrrr, Elavil, lots of water and fibre, changing my mind set (more positivity....i try i try)
Yes im the same...Ive accepted and surrendered to this condition. I am not looking for a cure but rather healing...and adopting a lifetsyle that improves my physical and emotional well being.
DOing it all diet change, dilators, stretching (sometimes....), no more freakin jeans grrrr, Elavil, lots of water and fibre, changing my mind set (more positivity....i try i try)
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer