Vulvodynia Support
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» Hope to all my suffering ladies
New lady I am thinking of seeing EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New lady I am thinking of seeing EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New lady I am thinking of seeing EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New lady I am thinking of seeing EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New lady I am thinking of seeing EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New lady I am thinking of seeing EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New lady I am thinking of seeing EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New lady I am thinking of seeing EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New lady I am thinking of seeing EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New lady I am thinking of seeing

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Post  Aussie Tue May 24, 2011 5:35 am

Please let me know your opinions on the following link.

http://www.naturaltherapypages.com.au/therapist/equilib/32343

Read the whole page.

I need to know if this is worth it. I would really appreciate your input.

Thanks,

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sarah001 Tue May 24, 2011 9:52 am

She definitely sounds worth a try, just be careful if you lack stability in the pelvis that she doesn't overlook that and give you only yoga moves which of course loosen things more. Her holistic approach sounds good though, I'd be tempted by someone with that kind of experience if we had anyone over here. Let us know how you get on if you go.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  noni Tue May 24, 2011 11:20 am

Its worth a try.

Hopefully you wont need to spend a small fortune on her.

noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  ria Tue May 24, 2011 11:32 am

Hi Claire,

Yes go if you can we all have to try as many different treatments as possible. I am a holistic therapist and I am open to everything, I get myself into such a mess thinking about medication as I really do not like taking tablets but as we know when the burning pain is sooooooo bad we will take anything. At the moment I have taken no medication for 2 weeks because I have had problems tolerating Nortriptyline and venlafaxine, my consultant wants me to try Gabapentin, but the side effects worry me and the weight gain. I keep them at the side of the bed just incase....

Good luck Claire its worth a try.

Ria

ria

Posts : 99
Join date : 2010-07-21

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New lady I am thinking of seeing Empty Thanks everyone

Post  Aussie Wed May 25, 2011 2:21 am

Thank you for your replies. I am just concerned about yet another practitioner. But a she said on her website she is used to seeing patients who had seen 10 people before her. I would love to go but hubby and I are struggling financially at the moment and to be honest he is tired of spending money on treatments and not getting a 'full' recovery. He thinks it should just be able to be fixed and can't understand why doctors are so behind with it all. Sad I need to wait until after 30th June anyway that's when my sick pay and holiday pay resets. Used everything up so far from last year.

Ria, appreciate your input, I don't like taking tablets either. Wondering about coming off the pill but we hate condoms, plus even non latex seems to cause me irritation!! will be asking my urogyne about options with less hormones when I go next week. Not looking forward to this cystoscopy. I bet it won't show anything just like every other test so far.

Just had to go on nizoral for yeast infection, again…and treating hubby as well. Thank god it has cleared up in 3 days. That pain was horrible on top of v. Feel for anyone of you ladies that struggle with yeast frequently.

Hope everyone is having a pain free day. Mine is, so far minimal today. Smile

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Sarah001 Wed May 25, 2011 9:22 am

I know exactly how you feel about seeing yet another person, I've been through countless physios, chiros, osteos, massage therapists, pilates teachers etc for my SI problems and never made much headway with any of them and last September just got to the point where I felt all physioed out and didn't replace my physio when she left the practice. I still don't have one for the SI problem, I'm hoping once I get back to the WH physio she'll help me deal with that too.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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