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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


New lady I am thinking of seeing

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New lady I am thinking of seeing

Post  Aussie on Tue May 24, 2011 5:35 am

Please let me know your opinions on the following link.

http://www.naturaltherapypages.com.au/therapist/equilib/32343

Read the whole page.

I need to know if this is worth it. I would really appreciate your input.

Thanks,

Claire

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Re: New lady I am thinking of seeing

Post  Sarah001 on Tue May 24, 2011 9:52 am

She definitely sounds worth a try, just be careful if you lack stability in the pelvis that she doesn't overlook that and give you only yoga moves which of course loosen things more. Her holistic approach sounds good though, I'd be tempted by someone with that kind of experience if we had anyone over here. Let us know how you get on if you go.
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Re: New lady I am thinking of seeing

Post  noni on Tue May 24, 2011 11:20 am

Its worth a try.

Hopefully you wont need to spend a small fortune on her.

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NEW LADY I AM THINKING OF SEEING

Post  ria on Tue May 24, 2011 11:32 am

Hi Claire,

Yes go if you can we all have to try as many different treatments as possible. I am a holistic therapist and I am open to everything, I get myself into such a mess thinking about medication as I really do not like taking tablets but as we know when the burning pain is sooooooo bad we will take anything. At the moment I have taken no medication for 2 weeks because I have had problems tolerating Nortriptyline and venlafaxine, my consultant wants me to try Gabapentin, but the side effects worry me and the weight gain. I keep them at the side of the bed just incase....

Good luck Claire its worth a try.

Ria

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Thanks everyone

Post  Aussie on Wed May 25, 2011 2:21 am

Thank you for your replies. I am just concerned about yet another practitioner. But a she said on her website she is used to seeing patients who had seen 10 people before her. I would love to go but hubby and I are struggling financially at the moment and to be honest he is tired of spending money on treatments and not getting a 'full' recovery. He thinks it should just be able to be fixed and can't understand why doctors are so behind with it all. Sad I need to wait until after 30th June anyway that's when my sick pay and holiday pay resets. Used everything up so far from last year.

Ria, appreciate your input, I don't like taking tablets either. Wondering about coming off the pill but we hate condoms, plus even non latex seems to cause me irritation!! will be asking my urogyne about options with less hormones when I go next week. Not looking forward to this cystoscopy. I bet it won't show anything just like every other test so far.

Just had to go on nizoral for yeast infection, again…and treating hubby as well. Thank god it has cleared up in 3 days. That pain was horrible on top of v. Feel for anyone of you ladies that struggle with yeast frequently.

Hope everyone is having a pain free day. Mine is, so far minimal today. Smile

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Re: New lady I am thinking of seeing

Post  Sarah001 on Wed May 25, 2011 9:22 am

I know exactly how you feel about seeing yet another person, I've been through countless physios, chiros, osteos, massage therapists, pilates teachers etc for my SI problems and never made much headway with any of them and last September just got to the point where I felt all physioed out and didn't replace my physio when she left the practice. I still don't have one for the SI problem, I'm hoping once I get back to the WH physio she'll help me deal with that too.
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Re: New lady I am thinking of seeing

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