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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Hallo, I am Tanya, I have vulvodynia..

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Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 4:13 pm

My name is Tanya, I am from Bulgaria, now I am in London, UK. I have vulvodynia from 11 months. I was diagnosed 2 months ago and I am taking amitriptyline 10 mg In the beggining I felt better, but right now I am in very bad pain Crying or Very sad

Nice to meet you!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Tue May 31, 2011 7:57 pm

Hi Tanya and welcome. If the Ami helped in the beginning maybe you should try upping the dose? I'm on 50mg but it never helped my V, I actually got prescribed it for Fibromyalgia. I'm also on 300mg of Pregabalin a day and that's not proving to be a great success either! Anyway, have a good look round and see what you can find here.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 9:10 pm

Sarah001 thank you for your answer! I will try with 20 mg daily..
Today was real nightmare Neutral

Wish you luck sunny

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Wed Jun 01, 2011 7:14 pm

Make sure you run your increased dose by your doctor so they know what you're doing, some women only need a tiny dose and others a bit more and others aren't helped by Ami at all but only trying it out will let you know. You can always add anti-convulsants if you need to.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Wed Jun 01, 2011 7:46 pm

Thanks Sarah001 !

I took 2 pills last night, and today I feel better. My Dr said to take the second pill if I neet it. I will try 20mg Ami for 2-3 days, and than again just 10 mg.

Thanks once again!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  jules on Sun Jun 05, 2011 7:49 pm

Hi Tanya, i hope the increase helps. i haven't been on Ami for this. I started off w/ Gabepentin (anti-convulsant), then added Lyrica (also known as preg.) and now Cymbalta. I take all three. my nurse just increased my Cymbalta. I also take Percocet (oxycodone w/ tylenol) if your pain continues, you may want to get a referral to a pain clinic. they should be able to help you manage the pain. so sorry you had to join our "club." there are a lot of knowledgeable ladies here. hope we can help. i haven't visited this site for a couple of months. I hope i can visit again soon. i'm off to get my nails done. we need to remember to pamper ourselves too. OH...i recommend physical therapy too. i do that and will soon see an acupuncturist. surgery is in my future as well. i am going to have surgery to have wires implanted in my spine w/ a battery put under my skin. it's called a neurostimulator. i will have a remote control which will control vibrations to the nerves and will hopefully interrupt the pain signal to the brain. i have no idea if it will help. i will have a one week trial before they implant the battery in my upper buttocks. this is kind of a last resort. also, if you have a hard time sitting, i recommend a foam donut (cushion). i can't sit w/out one. try it all! good luck!

jules

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sebby (Admin) on Thu Jun 09, 2011 7:39 pm


Welcome Tanya, I am too from London.

Im not sure what part of London you are from but I do recommend Dr Karen Gibbons at Whipps Cross Hosptial. She is a Vulvar Dermotologist but also knows a lot about this condition as a whole. I was pleased to be examined and have skin disease ruled out and she gave great all round advice.

I recently had to up my dose of Pregabalin (anticonvulsant) and have found it helped a great deal.

I hope the increased Ami does work for you


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Re: Hallo, I am Tanya, I have vulvodynia..

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