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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hallo, I am Tanya, I have vulvodynia..

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Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 4:13 pm

My name is Tanya, I am from Bulgaria, now I am in London, UK. I have vulvodynia from 11 months. I was diagnosed 2 months ago and I am taking amitriptyline 10 mg In the beggining I felt better, but right now I am in very bad pain Crying or Very sad

Nice to meet you!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Tue May 31, 2011 7:57 pm

Hi Tanya and welcome. If the Ami helped in the beginning maybe you should try upping the dose? I'm on 50mg but it never helped my V, I actually got prescribed it for Fibromyalgia. I'm also on 300mg of Pregabalin a day and that's not proving to be a great success either! Anyway, have a good look round and see what you can find here.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 9:10 pm

Sarah001 thank you for your answer! I will try with 20 mg daily..
Today was real nightmare Neutral

Wish you luck sunny

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Wed Jun 01, 2011 7:14 pm

Make sure you run your increased dose by your doctor so they know what you're doing, some women only need a tiny dose and others a bit more and others aren't helped by Ami at all but only trying it out will let you know. You can always add anti-convulsants if you need to.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Wed Jun 01, 2011 7:46 pm

Thanks Sarah001 !

I took 2 pills last night, and today I feel better. My Dr said to take the second pill if I neet it. I will try 20mg Ami for 2-3 days, and than again just 10 mg.

Thanks once again!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  jules on Sun Jun 05, 2011 7:49 pm

Hi Tanya, i hope the increase helps. i haven't been on Ami for this. I started off w/ Gabepentin (anti-convulsant), then added Lyrica (also known as preg.) and now Cymbalta. I take all three. my nurse just increased my Cymbalta. I also take Percocet (oxycodone w/ tylenol) if your pain continues, you may want to get a referral to a pain clinic. they should be able to help you manage the pain. so sorry you had to join our "club." there are a lot of knowledgeable ladies here. hope we can help. i haven't visited this site for a couple of months. I hope i can visit again soon. i'm off to get my nails done. we need to remember to pamper ourselves too. OH...i recommend physical therapy too. i do that and will soon see an acupuncturist. surgery is in my future as well. i am going to have surgery to have wires implanted in my spine w/ a battery put under my skin. it's called a neurostimulator. i will have a remote control which will control vibrations to the nerves and will hopefully interrupt the pain signal to the brain. i have no idea if it will help. i will have a one week trial before they implant the battery in my upper buttocks. this is kind of a last resort. also, if you have a hard time sitting, i recommend a foam donut (cushion). i can't sit w/out one. try it all! good luck!

jules

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sebby (Admin) on Thu Jun 09, 2011 7:39 pm


Welcome Tanya, I am too from London.

Im not sure what part of London you are from but I do recommend Dr Karen Gibbons at Whipps Cross Hosptial. She is a Vulvar Dermotologist but also knows a lot about this condition as a whole. I was pleased to be examined and have skin disease ruled out and she gave great all round advice.

I recently had to up my dose of Pregabalin (anticonvulsant) and have found it helped a great deal.

I hope the increased Ami does work for you


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Re: Hallo, I am Tanya, I have vulvodynia..

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