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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
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» MY STORY & Vestibulectomy 2/8/17
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» Pain aftee vestibulectimy
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» Freaking out because I don't think surgery worked HELP!!!!
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» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hallo, I am Tanya, I have vulvodynia..

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Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 4:13 pm

My name is Tanya, I am from Bulgaria, now I am in London, UK. I have vulvodynia from 11 months. I was diagnosed 2 months ago and I am taking amitriptyline 10 mg In the beggining I felt better, but right now I am in very bad pain Crying or Very sad

Nice to meet you!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Tue May 31, 2011 7:57 pm

Hi Tanya and welcome. If the Ami helped in the beginning maybe you should try upping the dose? I'm on 50mg but it never helped my V, I actually got prescribed it for Fibromyalgia. I'm also on 300mg of Pregabalin a day and that's not proving to be a great success either! Anyway, have a good look round and see what you can find here.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 9:10 pm

Sarah001 thank you for your answer! I will try with 20 mg daily..
Today was real nightmare Neutral

Wish you luck sunny

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Wed Jun 01, 2011 7:14 pm

Make sure you run your increased dose by your doctor so they know what you're doing, some women only need a tiny dose and others a bit more and others aren't helped by Ami at all but only trying it out will let you know. You can always add anti-convulsants if you need to.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Wed Jun 01, 2011 7:46 pm

Thanks Sarah001 !

I took 2 pills last night, and today I feel better. My Dr said to take the second pill if I neet it. I will try 20mg Ami for 2-3 days, and than again just 10 mg.

Thanks once again!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  jules on Sun Jun 05, 2011 7:49 pm

Hi Tanya, i hope the increase helps. i haven't been on Ami for this. I started off w/ Gabepentin (anti-convulsant), then added Lyrica (also known as preg.) and now Cymbalta. I take all three. my nurse just increased my Cymbalta. I also take Percocet (oxycodone w/ tylenol) if your pain continues, you may want to get a referral to a pain clinic. they should be able to help you manage the pain. so sorry you had to join our "club." there are a lot of knowledgeable ladies here. hope we can help. i haven't visited this site for a couple of months. I hope i can visit again soon. i'm off to get my nails done. we need to remember to pamper ourselves too. OH...i recommend physical therapy too. i do that and will soon see an acupuncturist. surgery is in my future as well. i am going to have surgery to have wires implanted in my spine w/ a battery put under my skin. it's called a neurostimulator. i will have a remote control which will control vibrations to the nerves and will hopefully interrupt the pain signal to the brain. i have no idea if it will help. i will have a one week trial before they implant the battery in my upper buttocks. this is kind of a last resort. also, if you have a hard time sitting, i recommend a foam donut (cushion). i can't sit w/out one. try it all! good luck!

jules

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sebby (Admin) on Thu Jun 09, 2011 7:39 pm


Welcome Tanya, I am too from London.

Im not sure what part of London you are from but I do recommend Dr Karen Gibbons at Whipps Cross Hosptial. She is a Vulvar Dermotologist but also knows a lot about this condition as a whole. I was pleased to be examined and have skin disease ruled out and she gave great all round advice.

I recently had to up my dose of Pregabalin (anticonvulsant) and have found it helped a great deal.

I hope the increased Ami does work for you


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Re: Hallo, I am Tanya, I have vulvodynia..

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