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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Hallo, I am Tanya, I have vulvodynia..

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Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 4:13 pm

My name is Tanya, I am from Bulgaria, now I am in London, UK. I have vulvodynia from 11 months. I was diagnosed 2 months ago and I am taking amitriptyline 10 mg In the beggining I felt better, but right now I am in very bad pain Crying or Very sad

Nice to meet you!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Tue May 31, 2011 7:57 pm

Hi Tanya and welcome. If the Ami helped in the beginning maybe you should try upping the dose? I'm on 50mg but it never helped my V, I actually got prescribed it for Fibromyalgia. I'm also on 300mg of Pregabalin a day and that's not proving to be a great success either! Anyway, have a good look round and see what you can find here.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Tue May 31, 2011 9:10 pm

Sarah001 thank you for your answer! I will try with 20 mg daily..
Today was real nightmare Neutral

Wish you luck sunny

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sarah001 on Wed Jun 01, 2011 7:14 pm

Make sure you run your increased dose by your doctor so they know what you're doing, some women only need a tiny dose and others a bit more and others aren't helped by Ami at all but only trying it out will let you know. You can always add anti-convulsants if you need to.
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Re: Hallo, I am Tanya, I have vulvodynia..

Post  tannya on Wed Jun 01, 2011 7:46 pm

Thanks Sarah001 !

I took 2 pills last night, and today I feel better. My Dr said to take the second pill if I neet it. I will try 20mg Ami for 2-3 days, and than again just 10 mg.

Thanks once again!

tannya

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  jules on Sun Jun 05, 2011 7:49 pm

Hi Tanya, i hope the increase helps. i haven't been on Ami for this. I started off w/ Gabepentin (anti-convulsant), then added Lyrica (also known as preg.) and now Cymbalta. I take all three. my nurse just increased my Cymbalta. I also take Percocet (oxycodone w/ tylenol) if your pain continues, you may want to get a referral to a pain clinic. they should be able to help you manage the pain. so sorry you had to join our "club." there are a lot of knowledgeable ladies here. hope we can help. i haven't visited this site for a couple of months. I hope i can visit again soon. i'm off to get my nails done. we need to remember to pamper ourselves too. OH...i recommend physical therapy too. i do that and will soon see an acupuncturist. surgery is in my future as well. i am going to have surgery to have wires implanted in my spine w/ a battery put under my skin. it's called a neurostimulator. i will have a remote control which will control vibrations to the nerves and will hopefully interrupt the pain signal to the brain. i have no idea if it will help. i will have a one week trial before they implant the battery in my upper buttocks. this is kind of a last resort. also, if you have a hard time sitting, i recommend a foam donut (cushion). i can't sit w/out one. try it all! good luck!

jules

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Re: Hallo, I am Tanya, I have vulvodynia..

Post  Sebby (Admin) on Thu Jun 09, 2011 7:39 pm


Welcome Tanya, I am too from London.

Im not sure what part of London you are from but I do recommend Dr Karen Gibbons at Whipps Cross Hosptial. She is a Vulvar Dermotologist but also knows a lot about this condition as a whole. I was pleased to be examined and have skin disease ruled out and she gave great all round advice.

I recently had to up my dose of Pregabalin (anticonvulsant) and have found it helped a great deal.

I hope the increased Ami does work for you


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Re: Hallo, I am Tanya, I have vulvodynia..

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