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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member

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New member

Post  meghan on Wed Jun 15, 2011 3:14 pm

Hi everyone I am newly diagnosed with vulvodynia even though I have been experiencing symptoms on and off for three years. Does anyone have any suggestions for finding a good Dr? I live in California.

meghan

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Re: New member

Post  noni on Wed Jun 15, 2011 10:50 pm

You have a few options:

1. Get referred to a Pain Clinic
2. Get referred to a Vulvar Clinic (usually headed by a Dermatologist)
3. Look into physio for Pelvic Pain

Your already past all the horrible stuff! Being diagnosed starts you on the road to recovery...its a long process but you just need to find what will give you relief

PS: Try meditation? Accupuncture???

I dunno...anyways take care!

Oh and welcome Smile
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doctors in CA

Post  annaCA on Wed Jun 22, 2011 5:12 am

I was having trouble also finding a doctor in California. I subscribed to nva.org and within 48 hours they emailed a list of doctors in my area and told me their specialty (pelvic pain specialist, physical therapy, holistic medicine, urology, etc.) and how many patients they see with vulvodynia per month. It helped me a lot and was worth $45 to have all the information. I picked the doctor with the most experience.

I hope you find a specialist! I was lost without one and my mom finally convinced me it was worth the money. I wish more OBGYN knew about the condition since I believe it is more wide spread than anyone thinks.

annaCA

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Re:new member

Post  ria on Wed Jun 22, 2011 4:22 pm



Hi Meghan,

So much information on here from the Ladies, I hope you find a good consultant. Sorry I cant help I live in the UK.

Take care

Ria
Very Happy Very Happy Very Happy Very Happy

ria

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Re: New member

Post  Sebby (Admin) on Fri Jun 24, 2011 5:38 pm


Welcome to the forum Meghan

joining the NVA (National Vulvodynia Associationn is a good tip for our USA members


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Re: New member

Post  jules on Sat Jun 25, 2011 12:58 am

Welcome! Another option for you is to go on Facebook (it is public) and look up Vulvodynia group. There are over 500 members. you can tell them you're looking for a specialist in CA and see if anyone knows of one. I live in MN. too far for you. :-) i was given a list of 6 doctors in Mn from the NVA (after paying 45.00). I picked one closest to my home. i was not impressed w/ her. you can also ask your doctor to refer you to a pain clinic. The pain docs know how to treat nerve disorders w/ meds. nerve blocks etc. I went to 7 doctors before i landed at the pain clinic. the pain docs have helped me the most.

jules

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Re: New member

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