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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
New member
+2
noni
meghan
6 posters
Page 1 of 1
New member
meghan Wed Jun 15, 2011 3:14 pm
Hi everyone I am newly diagnosed with vulvodynia even though I have been experiencing symptoms on and off for three years. Does anyone have any suggestions for finding a good Dr? I live in California.
meghan- Posts : 3
Join date : 2011-06-15
Age : 46
Location : California
Re: New member
noni Wed Jun 15, 2011 10:50 pm
You have a few options:
1. Get referred to a Pain Clinic
2. Get referred to a Vulvar Clinic (usually headed by a Dermatologist)
3. Look into physio for Pelvic Pain
Your already past all the horrible stuff! Being diagnosed starts you on the road to recovery...its a long process but you just need to find what will give you relief
PS: Try meditation? Accupuncture???
I dunno...anyways take care!
Oh and welcome
1. Get referred to a Pain Clinic
2. Get referred to a Vulvar Clinic (usually headed by a Dermatologist)
3. Look into physio for Pelvic Pain
Your already past all the horrible stuff! Being diagnosed starts you on the road to recovery...its a long process but you just need to find what will give you relief
PS: Try meditation? Accupuncture???
I dunno...anyways take care!
Oh and welcome
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
doctors in CA
annaCA Wed Jun 22, 2011 5:12 am
I was having trouble also finding a doctor in California. I subscribed to nva.org and within 48 hours they emailed a list of doctors in my area and told me their specialty (pelvic pain specialist, physical therapy, holistic medicine, urology, etc.) and how many patients they see with vulvodynia per month. It helped me a lot and was worth $45 to have all the information. I picked the doctor with the most experience.
I hope you find a specialist! I was lost without one and my mom finally convinced me it was worth the money. I wish more OBGYN knew about the condition since I believe it is more wide spread than anyone thinks.
I hope you find a specialist! I was lost without one and my mom finally convinced me it was worth the money. I wish more OBGYN knew about the condition since I believe it is more wide spread than anyone thinks.
annaCA- Posts : 8
Join date : 2011-05-16
Re:new member
ria Wed Jun 22, 2011 4:22 pm
Hi Meghan,
So much information on here from the Ladies, I hope you find a good consultant. Sorry I cant help I live in the UK.
Take care
Ria
ria- Posts : 99
Join date : 2010-07-21
Re: New member
Sebby (Admin) Fri Jun 24, 2011 5:38 pm
Welcome to the forum Meghan
joining the NVA (National Vulvodynia Associationn is a good tip for our USA members
Sebby (Admin)- Admin
- Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK -
Re: New member
jules Sat Jun 25, 2011 12:58 am
Welcome! Another option for you is to go on Facebook (it is public) and look up Vulvodynia group. There are over 500 members. you can tell them you're looking for a specialist in CA and see if anyone knows of one. I live in MN. too far for you. :-) i was given a list of 6 doctors in Mn from the NVA (after paying 45.00). I picked one closest to my home. i was not impressed w/ her. you can also ask your doctor to refer you to a pain clinic. The pain docs know how to treat nerve disorders w/ meds. nerve blocks etc. I went to 7 doctors before i landed at the pain clinic. the pain docs have helped me the most.
jules- Posts : 225
Join date : 2010-03-17
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» How I cured my Vulvodynia!
» 7 months since the diagnosis
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