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» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New member

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New member

Post  meghan on Wed Jun 15, 2011 3:14 pm

Hi everyone I am newly diagnosed with vulvodynia even though I have been experiencing symptoms on and off for three years. Does anyone have any suggestions for finding a good Dr? I live in California.

meghan

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Age : 41
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Re: New member

Post  noni on Wed Jun 15, 2011 10:50 pm

You have a few options:

1. Get referred to a Pain Clinic
2. Get referred to a Vulvar Clinic (usually headed by a Dermatologist)
3. Look into physio for Pelvic Pain

Your already past all the horrible stuff! Being diagnosed starts you on the road to recovery...its a long process but you just need to find what will give you relief

PS: Try meditation? Accupuncture???

I dunno...anyways take care!

Oh and welcome Smile
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doctors in CA

Post  annaCA on Wed Jun 22, 2011 5:12 am

I was having trouble also finding a doctor in California. I subscribed to nva.org and within 48 hours they emailed a list of doctors in my area and told me their specialty (pelvic pain specialist, physical therapy, holistic medicine, urology, etc.) and how many patients they see with vulvodynia per month. It helped me a lot and was worth $45 to have all the information. I picked the doctor with the most experience.

I hope you find a specialist! I was lost without one and my mom finally convinced me it was worth the money. I wish more OBGYN knew about the condition since I believe it is more wide spread than anyone thinks.

annaCA

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Re:new member

Post  ria on Wed Jun 22, 2011 4:22 pm



Hi Meghan,

So much information on here from the Ladies, I hope you find a good consultant. Sorry I cant help I live in the UK.

Take care

Ria
Very Happy Very Happy Very Happy Very Happy

ria

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Re: New member

Post  Sebby (Admin) on Fri Jun 24, 2011 5:38 pm


Welcome to the forum Meghan

joining the NVA (National Vulvodynia Associationn is a good tip for our USA members


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Re: New member

Post  jules on Sat Jun 25, 2011 12:58 am

Welcome! Another option for you is to go on Facebook (it is public) and look up Vulvodynia group. There are over 500 members. you can tell them you're looking for a specialist in CA and see if anyone knows of one. I live in MN. too far for you. :-) i was given a list of 6 doctors in Mn from the NVA (after paying 45.00). I picked one closest to my home. i was not impressed w/ her. you can also ask your doctor to refer you to a pain clinic. The pain docs know how to treat nerve disorders w/ meds. nerve blocks etc. I went to 7 doctors before i landed at the pain clinic. the pain docs have helped me the most.

jules

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Re: New member

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