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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New member

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New member

Post  meghan on Wed Jun 15, 2011 3:14 pm

Hi everyone I am newly diagnosed with vulvodynia even though I have been experiencing symptoms on and off for three years. Does anyone have any suggestions for finding a good Dr? I live in California.

meghan

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Age : 40
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Re: New member

Post  noni on Wed Jun 15, 2011 10:50 pm

You have a few options:

1. Get referred to a Pain Clinic
2. Get referred to a Vulvar Clinic (usually headed by a Dermatologist)
3. Look into physio for Pelvic Pain

Your already past all the horrible stuff! Being diagnosed starts you on the road to recovery...its a long process but you just need to find what will give you relief

PS: Try meditation? Accupuncture???

I dunno...anyways take care!

Oh and welcome Smile
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noni

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doctors in CA

Post  annaCA on Wed Jun 22, 2011 5:12 am

I was having trouble also finding a doctor in California. I subscribed to nva.org and within 48 hours they emailed a list of doctors in my area and told me their specialty (pelvic pain specialist, physical therapy, holistic medicine, urology, etc.) and how many patients they see with vulvodynia per month. It helped me a lot and was worth $45 to have all the information. I picked the doctor with the most experience.

I hope you find a specialist! I was lost without one and my mom finally convinced me it was worth the money. I wish more OBGYN knew about the condition since I believe it is more wide spread than anyone thinks.

annaCA

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Re:new member

Post  ria on Wed Jun 22, 2011 4:22 pm



Hi Meghan,

So much information on here from the Ladies, I hope you find a good consultant. Sorry I cant help I live in the UK.

Take care

Ria
Very Happy Very Happy Very Happy Very Happy

ria

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Re: New member

Post  Sebby (Admin) on Fri Jun 24, 2011 5:38 pm


Welcome to the forum Meghan

joining the NVA (National Vulvodynia Associationn is a good tip for our USA members


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Re: New member

Post  jules on Sat Jun 25, 2011 12:58 am

Welcome! Another option for you is to go on Facebook (it is public) and look up Vulvodynia group. There are over 500 members. you can tell them you're looking for a specialist in CA and see if anyone knows of one. I live in MN. too far for you. :-) i was given a list of 6 doctors in Mn from the NVA (after paying 45.00). I picked one closest to my home. i was not impressed w/ her. you can also ask your doctor to refer you to a pain clinic. The pain docs know how to treat nerve disorders w/ meds. nerve blocks etc. I went to 7 doctors before i landed at the pain clinic. the pain docs have helped me the most.

jules

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