Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Anyone else doing this?

View previous topic View next topic Go down

Anyone else doing this?

Post  Sarah001 on Sat Jul 09, 2011 8:20 pm

I'm currently reading a book about pelvic instability in pregnancy (I'm not pregnant I just read everything pelvic related I can find!) and there's some interesting stuff in it. It doesn't mention V but as alot of us have pelvic stability issues I wondered if anyone else was doing this: Is anyone else standing with most of their weight on one leg more than the other? It's mentioned as something that upsets the alignment of a lax pelvis and keeps the misalignment going and as we all know there's a link between V and these kinds of things. I realised I was doing it really badly and weirdly I was putting most of my weight through my worst side. Anyone else doing this? To find out you need to concetrate on what you're doing when you stand still, or use a Wii board and it will tell you!

The author talks alot about tight adductors too and says tight adductors usually equal tight pelvic floor muscles and she's right again, I've got trigger points galore in my adductors and I've only just got the left side so it will abduct to normal amounts with my knee straight so it's more the long adductors on that side and the short ones on the right. And I have noticed when I lay with my legs bent it tightens them up really badly and it shouldn't. My adductors were the reason the doctor who "diagnosed" me suggested physio as a first course of action because when she got me into examination position it looked like I was tensing my thighs really badly and I wasn't at all.

Just interesting to me, especially the weight bearing one as if I was asked which leg I use more I'd have chosen the other one but sure enough I'm putting most of my weight through the loosest SI joint and just helping keep the dysfunction going! Rolling Eyes I know some of you won't think this is a very relevant post and apologies for waffling on but I know there's a big link between V and SI joint dysfunction. Anyway, I'll stop now...! Laughing
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Anyone else doing this?

Post  lolainslacks on Sun Jul 10, 2011 12:30 am

I find this really fascinating. I have been shifting my weight constantly from one leg to the other for years. I seem to be incapable of standing straight up -- my weight is always dramatically shifted onto one side. My lower back becomes very sore if I stand straight for too long, so I do this to make it more comfortable for myself.

I have a lot of problems with my pelvic floor muscles. I can tighten, but I have never ever been able top untighten. I just don't know how to relax those muscles, and descriptions of how other women do this have never helped me. Because I have so little control, they seem to have a life of their own. I am trying to use dilators every single day, but if I'm stressed, or upset, or sometimes just for no reason whatsoever, my muslces will feel a lot tighter than usual, and I am powerless to do anything about it, which really limits my progress. It seems that my pelvic 'situation' changes from day to day and I just have to wait and see what it's going to be like. I don't have vaginismus, and have been told repeatedly by specialists that I don't, so it's not a case of me having 'muscles spasms', it's just a mysterious tightening that I can't explain.

I don't know much about pelvic instability or what causes it, but I am grateful for this post. I think it is worth looking into this sort of thing, and now that I know there is a possible link I will definately be making a conscious effort to change the way I stand. Thank you.

lolainslacks

Posts : 115
Join date : 2011-04-18

View user profile

Back to top Go down

Re: Anyone else doing this?

Post  Sarah001 on Sun Jul 10, 2011 12:27 pm

You do sound as though your pelvis is unstable, I too do the shifting thing even when I look like my weight is balanced between both feet it isn't. The author also said to put the weight onto the heels more and feel the lower back as you do it so you can find the position that is the best for relaxing the back muscles. I'm like you and my back gets really tight and tired if I stand for any length of time but apparently our muscles aren't supposed to get tight from standing, if we stand correctly the muscles are relaxed, who knew?!! Laughing I now make a point of shifting my weight until it feels centred and checking I'm on my heels by wiggling my toes around and if wiggling my toes doesn't affect my balance I'm doing quite well! I also wonder if you have a leg length discrepancy? A pelvic rotation can cause this and it's something that would also make you shift from one foot to the other, have you had that checked by a physio at all?

I'm hugely interested in pelvic instability because I've had it for years (long before V came along) so I've done alot of research into it and consider myself to be quite knowledgeable at this point! One physio said it was a shame I couldn't get better because I'd have breezed through the physio exams!! Laughing The book I'm reading is one I bought out of desperation to see if there was anything else I needed to know and it's useless to me in parts because it's about pregnancy but great in others. It's one of the few books I've read that mentions inflares and outflares in detail and I have one of each of those and have noticed it's hard to find information on them so I'm reading it thoroughly now.

I have the same issue with my PF, I can't release it at all and it's always in spasm even when I'm trying to release it which again is related to my pelvic instability and is my body's way of trying to stabilise the pelvis. Pelvic instability has alot to answer for!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

lolainslacks

Post  Aussie on Mon Aug 01, 2011 5:50 am

Have you tried biofeedback? I did not even know how to relax my muscles down there either untill I tried this. The visual just makes your brain do what it is suppost to and you just relax the muscles. Then you can hold onto that feeling and do it without.

The machine I used had lights on it. The aim was to get the lights to the bottom by relaxing the muscles. There was a small probe too.

Hope this helps.

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Anyone else doing this?

Post  Sarah001 on Mon Aug 01, 2011 12:38 pm

Yes if you remember Claire I'm the person who started with the ridiculous resting tone of 20. I got to 12 last time I went but that was November last year and I'm sure my resting tone will have crept up with all the stress I've had this year so far. The machine I was on didn't have lights it had numbers in a graph kind of setting that you watched as you did the exercises and I once managed to get to 6 but it was a blink and you'd miss it occasion, 12 is the lowest I got for any length of time which obviously isn't low enough but I have a vicious cycle going on where I stop clenching the pelvic floor then lose all stability in my right SI joint which tightens it back up and the pain makes me clench again so stabilising the SI seems to be the only way I can break that but my hypermobility issues mean that's next to impossible. I'm currently trying to get enough money coming in to afford physio again but it won't be for a while yet.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Anyone else doing this?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum