Log in

I forgot my password

Latest topics
» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Is there anyone out there with these conditions!! Need Suggestions!!

Go down

Is there anyone out there with these conditions!! Need Suggestions!!

Post  painful on Sun Jul 17, 2011 4:57 pm

Hello everyone,

I've just joined this forum and would like to share my story and like to find out if anyone out there in same condition?

I am 23 old and my symptoms started about 4 yrs ago with yeast infection. I have very severe bacterial/ yeast infection where i don't have a relive from all the painful symptoms and discharges not even for one hour. I have been continousally examined by many different doctors have done so many procedures but other than yeast infection no dr had anything to say. Its very irritating, but more than that My Biggest Problem is SEX. I have been in a relationship with One guy all over my life and never had a good sex. Every time we try its seems to be impossible for me. He is very understanding unlike other guys, but now it seems like i am loosing him. He always asks me when its going to get fixed??
Recently, after taking all the Antibiotics and treatments when nothing was working, my Gynecologist referred me to a Vulvo specialist. After my visit, my dr says i have Vulvodynia due to bacterial infection. He gave me Antibiotics for yeast and Estrogen cream. and he says if nothing works i can go for surgery. Its been one month i have taking the medications and i have no relive from the pain and other symptoms. I really cant take this anymore. Even if we try to have sex, its feels soo swollen and like an acid being poured on the cut. Another option he mentioned was Botox injection. But i really dont want this.I am thinking to go for surgery.

Is Going for Surgery a good idea? Has anyone out there have done the surgery and have they found any relive or any complications came across with. Please share your ideas.

Thanks

painful

Posts : 1
Join date : 2011-07-17
Location : CA

View user profile

Back to top Go down

Re: Is there anyone out there with these conditions!! Need Suggestions!!

Post  Sebby (Admin) on Sun Jul 17, 2011 9:16 pm


Hi and welcome to the forum

From what I know of surgury can work but its a huge thing to go through and for me it would be the last option. It seems your gynea has not mentioned anything to do with Pelvic Floor therapy or biofeedback? Not suprising as most drs know little about it.

I would like to know if you have actually tested positive for yeast/bacteria recently? It seems drs are all to quick to give out creams and antibiotics/antifungals even when the women has not tested positive. Its like they do not know what else to do. Make sure firstly that you are tested again to make sure no yeast or bacteria infection is still present.

Then start researching other available treatments. Many women including myself are looking into Pelvic Floor therapy (mine is specifically from www.vulvodynia.com) Dr Glazers biofeedback protocol. I have had a break for a few weeks as had to have another vaginal sensor shipped over. You can also look for a Women's Physical Therapist. Check that they have treated the condition before.

Get yourself a copy of 'The Vulvodynia Survival Guide' Glazer & Rodke for a good all round intro to the condition and treatments.

Also a book many recommend is 'Ending Female Pain' Isa Herrera - she concentrates also on the Pelvic Floor theory. That an unstable and tight Pelvic Floor causes continued pain after the original trauma (either infection or injury) and prevents the vulval skin from healing and proper blood supply getting to the vulvar

Another option is medication used for nerve pain. Either an antidepressant like Amitriptyline or anticonvulsants like Pregabalin. I am on Pregabalin. I feel that it was working coupled with the biofeedback but had a bad flare up recently since being unable to do the exercises so do not feel they work just on there own without other physical treatments.

Im not saying you cannot try surgury but that it would be useful to look into less invasive treatments first.

We have all had to pretty much research this condition and treatments ourselves due to a lot of the medical community knowning little about it. So if a doctor says there is nothing much more they can do for you....check with us first! and as you learn more you will know what is worth trying and what options you have.

As for sex another good book to get is 'Let Me Count The Ways' discovering great sex without intercourse. Klein & Robbins - Im not saying that you will never be able to have good intercourse with little or no pain. But it is true that we have to be very creative with this condition. Try what least hurts to keep the intimacy whether that is oral or touching. Try to experience pleasure again so your brain is not always linking your Vulva to pain.

This is a lot of info to take in so do some research and dont give up trying to find an answer to your pain.

Take Care






_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Is there anyone out there with these conditions!! Need Suggestions!!

Post  Zazu on Mon Jul 18, 2011 2:07 pm

Hi there,
If you read the recent posts on this forum, you'll find that many women have a similar story - it starts with an infection and then the pain continues, even after the infection has cleared. The pain can be due to hormones, too many nerve endings that sense pain which grow after a sustained immune response to infection, or pelvic muscle problems. Sarah already gave you a great, detailed response on the treatments for this.

I'm surprised, too, to hear that your doctor has only given you one option before the surgery. Usually, they try a topical cream (like estrogen). If that doesn't work, then they can give you a compound cream using drugs that work on the nerve system to calm your nerves (gabapentin or amitriptyline). If that doesn't work then they give you those drugs in pill form, usually amitriptyline (a low dose antidepressant), then gabapentin or pregabalin (an anti-epileptic).

Personally I'd look into a book called "When Sex Hurts' by Dr. Goldstein for a detailed explanation of causes, symptoms and treatment options. Surgery can be quite successful, but it also carries risks. Usually it is more successful if you get physiotherapy alongside it, so that's really key to look into.

Best to you
Katie

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

View user profile

Back to top Go down

Re: Is there anyone out there with these conditions!! Need Suggestions!!

Post  Sarah001 on Tue Jul 19, 2011 7:31 pm

I'm with the other girls on this one, surgery isn't a small thing and should only be considered as a last option after PF therapy, medication etc. All the books above are worth a read but I would try Amy Stein's "Heal Pelvic Pain" first as it's very inexpensive and covers much the same as Isa Herrera's book which is alot more expensive. "When Sex Hurts" is also very good, especially for figuring out what your problem is caused by. Don't rush into surgery just because a Dr can't be arsed to look into current treatment options, there are women out there who have been made worse by surgery so it's a very serious decision. The pelvic floor is something all women with V should get checked properly by a physio who uses biofeedback, it's the only reliable way to see exactly what's happening with those muscles.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Is there anyone out there with these conditions!! Need Suggestions!!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum