Vulvodynia Support
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Latest topics
» Hope to all my suffering ladies
Taking my Pain to twitter. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Taking my Pain to twitter. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Taking my Pain to twitter. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Taking my Pain to twitter. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Taking my Pain to twitter. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Taking my Pain to twitter. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Taking my Pain to twitter. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Taking my Pain to twitter. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Taking my Pain to twitter. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Taking my Pain to twitter.

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Taking my Pain to twitter. Empty Taking my Pain to twitter.

Post  KalesDynoLove Wed Jul 20, 2011 6:03 am

My name is Kaleigh Anderson and I have vulvar vestibulitis. One of the hardest things about having pelvic pain is the feeling “aloneness” that comes with it. Unfortunately, I know that there are plenty of girls and women who are exactly like me. The emotional and psychological stress that comes from the physical pain is something that I have come to understand very well. I have become very comfortable with talking about “uncomfortable” things in my life. I have been to dozens of doctors and have done dozens of treatments. I have not found relief from any of my pain but I will never give up hope. I am so proud of who I am as a person and how strong I have become.
I have never been shy to tell people about my vulvar vestibulitis because I know ultimately it is either something I can suffer with quietly or I can talk about it honestly and potentially help people. I am choosing to put aside my pride and talk about my genitals! My friends in high school were embarrassed to be talking about my vagina and my vulva so openly so they gave it the nickname “Dyno” because of vulvodynia. I have created a Twitter account under the name of KalesDynoLove. I plan to tweet about the day to day process of living a normal life with pelvic pain. I am trying to eliminate the feeling of “aloneness” in as many females as I possibly can. Just being able to hear about my pain, my feelings of inadequacy, my stories, my faith, my victories, my failures, my relationships, my appointments, my treatments, my support system, my attitude, my life is something I KNOW can help females like me to understand that they are not alone.
I am more than willing to talk about anything in an open setting to make others feel more comfortable but I do not want to be talking about my “Dyno” on a social networking site if no one is benefitting. That is why I am emailing you; I would appreciate anything you could possibly do to have people follow me on my Twitter account. Anyone who could potentially benefit or anyone who might know someone who could benefit, if I even help one person it will be worth it but I do not have many connections to people with pelvic pain. My goal is to help women and girls feel more comfortable and to bring awareness to taboo subject. I am not a professional and I am not going to be giving any medical advice. Please let me know if you have any recommendations of something I can do or if there is anything that you would be willing to do to help.
You can contact me at KalesAnderson14@gmail.com . I am also willing to answer any questions you might have for me. I was pretty general in my description of myself and I would be more than willing to answer any further questions you may have. Please help me start something and allow me to use my experiences in a positive way. Thank you so much for your time and your help.
Kaleigh Anderson

KalesDynoLove

Posts : 1
Join date : 2011-07-20

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