Vulvodynia Support
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» Hope to all my suffering ladies
Burning Feet EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Burning Feet EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Burning Feet EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Burning Feet EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Burning Feet EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Burning Feet EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Burning Feet EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Burning Feet EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Burning Feet EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Burning Feet

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Post  Sarah001 Wed Aug 31, 2011 12:59 pm

I know we've discussed this before so bear with me! Recently I've been having alot of burning and pain in the soles of my feet and the Ami and Lyrica I take isn't controlling either my V or my foot pain very well so I decided to try and establish what was going on with my feet. My GP immediately wrote it off as nerves but my last physio said because I hyper-pronate the muscles in my feet and the fascia underneath are all a mess so she didn't think it was nerves. I looked it up a few times over several evenings and found a few sites about foot pain that have links for both peripheral neuropathy and plantar fasciitis and found the defining symptom to distinguish between the two is muscle tenderness, this intrigued me because I've had my doubts about whether my V is nerve related or not and as I have muscle tenderness and soreness in and around the vulval area I think it's more likely to be muscular coming from my wobbly pelvis. As neuropathy in the feet apparently should have NO muscle tenderness and my soles feel really tight and sore (as do my lower legs) I think it's more likely to be inflammation of the fascia and it kind of confirms for me that my V is coming from muscular origins too. What I wondered was if any of you ladies that have burning elsewhere have trigger points or spasms that could be the source rather than nerves? If you have burning hands look in your shoulders around the back and sides for muscular problems and if it's the scalp try your neck, muscles that run along the sides of the spine or directly under the area that burns. I'd be very interested to know if anyone else who thinks it might be neuropathic pain actually has muscular problems that could explain it instead.

Sarah001
Sarah001

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Post  noni Thu Sep 01, 2011 1:50 am

Hey Sarah --

I get burning in my hands and feet occasionally.

The body is a system of nerve pathways, connections, etc etc...so I can see the correlation between a burning vulva and burning in other parts of the body....

I think it would be tied in with peripheral neuropathy... I hate that terminology, sounds so doom and gloom...

So, yeah some ladies on here have mentioned burning in other areas of the body, so there's got to be something to it.
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Post  Sarah001 Thu Sep 01, 2011 10:33 am

I obviously haven't made my point very well! The point I'm making noni is that with peripheral neuropathy there should be NO MUSCLE TENDERNESS and I was wondering if any of you ladies with other areas burning too had muscular problems that could account for that.
Sarah001
Sarah001

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Location : UK

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Post  grassy Fri Sep 02, 2011 6:48 pm

I have had alot of experience with this type of thing. In all areas. My feet burn too, but on the top right before the toes. It seems to alternate in minutes from, burning vag, then the feet. But? i have a serious neck problem. With muscle troubles too, as well as bone issues. It can make the skin on my arms burn. it does. I have had all sorts of things like this from bones-muscles nerves. I think a muscle problem can make the burning.
Ten years ago i was severely injured by a dentist. he dislocate my jaw. anyways, the muscles were very sore, They created severe burning pain.
Anxiety! believe it or not. gives me burning arms. It also will target anything not perfectly healthy. For example. Lately its my v area, so any anxiety will make my V burn. after ten years of all these things. i now can turn off the anxiety switch with my mind. But anxiety can do weird stuff with nerves. and burning is mostly what it does to me. hope that helps a teeny bit anyways.
When you guys burn the worse, stop and think if you are having negative emotions in your mind at the same time. I have been noticing that when i burn, i am thinking bad, neg thoughts about my vag. Like why did this happen? will it ever go away? and if i think about it could be an infection, it burns really bad. weird stuff. weird! cindy

grassy

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Post  Sarah001 Mon Sep 05, 2011 8:05 pm

Well update on my feet, it's another bout of plantar fasciitis not nerve pain. I've been treating it as i did before with massage, heat and orthotics and it's already improved and doesn't feel like burning anymore. It could be mechanically connected though as I flatten my arches when I walk it translates postural problems up to the hip and pelvis so I suspect that's the link for me.
Sarah001
Sarah001

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Location : UK

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