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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Vestibulodynia wiith cuts and sores

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Vestibulodynia wiith cuts and sores

Post  Ukvestibulodynia on Thu Oct 13, 2011 4:53 pm

I have had pain with sex for 3 years and was diagnosed with vestibulodynia yesterday. I get pain and also little cuts and sores after sex and found it hard to believe that its a nerve cell problem and not a skin problem when I do get grazes and cuts. It was a dermatologist who eventually diagnosed me with this after gyno's and gp's had no idea. I would have thought a derm would have said it was eczma or something similar but she said the cuts probably just happen to most people and they don't notice. A bit unconvinced and wondered if anyone else gets physical signs or their pains eg cuts/redness.

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Re: Vestibulodynia wiith cuts and sores

Post  Sarah001 on Thu Oct 13, 2011 8:20 pm

Hi and welcome, I have vulvar vestibulitis syndrome (VVS) as well as generalised vulvodynia and I have very red areas that get worse with any contact. I too see a dermatologist because my doctor was convinced it was a skin problem but got told no it wasn't. I don't buy the nerve theory for some women because it's caused by different things but tight pelvic floor muscles can affect the area and produce red inflamed skin by cutting off the blood supply to that area and no new blood, nutrients and oxygen getting to it so that's the theory I think fits me. It depends on the source of the problem, for some women it is nerves and others it's not. As for cuts and sores you could try sea buckthorn oil to heal the skin, some of the members of www.vulvarvestibulitisrelief.com have had great results with it. I didn't get on with it but it might be worth a go. It is orange though and does stain underwear so be warned! A good book is "When Sex Hurts" which explains the various types of vulvar pain and the various causes they've found so it could help you solve why you have the problem in the first place and point you in the right direction for treatment. Get used to doing your own legwork and research though, doctors just want to throw medication at it which isn't very successful if it's not the nerves (I know because I'm a fair way down that road now.).
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I hate those soars :(

Post  skippypie23 on Tue Nov 29, 2011 7:53 pm

I have VVS and I get the soars too; they're tiny but incredibly painful - sometimes it's almost impossible to walk.
They don't appear all the time; i remember i first started getting them after taking antibiotics (for a flu). I'm wondering if they could be triggered by yeast infections, because antibiotics often cause them.

I wish you all the best, and hope we can find a solution to this.

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Re: Vestibulodynia wiith cuts and sores

Post  ButterflyLiz on Tue Nov 29, 2011 8:22 pm

I do get those little cuts but rarely. My consultant told me they're down to thrush, which would make sense as I don't get them most of the time (I'm sure I would notice, I'm forever examining myself!). Then again I guess there could be other reasons too, but this is what I've been told.

Liz
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Re: Vestibulodynia wiith cuts and sores

Post  naomi on Tue Nov 29, 2011 10:44 pm

me too! wooooop we are lucky lasses! I apply Emu oil, soothes it more than the coconut oil i was using. not as nice smell though!
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Re: Vestibulodynia wiith cuts and sores

Post  Melissa777 on Sat Dec 03, 2011 4:55 am

Have any of you been tested for hsv 1 or 2. These symptoms sound typical of that

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Re: Vestibulodynia wiith cuts and sores

Post  raven86 on Fri Dec 09, 2011 9:59 pm

I have lichen sclerosis, which has caused significant thinning of the skin of my vulva and anus, and as a result get cracks/sores during flare ups. They definitely suck! My gyno also explained that you are more prone to getting them around your period, since menstrual fluid can be hard on your skin. Eczema can also cause sores and redness, especially if you are scratching in your sleep.

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Re: Vestibulodynia wiith cuts and sores

Post  Lindilou on Wed Feb 15, 2012 11:51 am

I get a 'paper cut' at the base entrance of my vagina [perineum end], I just posted elsewhere about this, sorry, my head and eyes are jumping aroudn all over the place and I might post in the wrong place. However mine could be due to my anatomy

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Re: Vestibulodynia wiith cuts and sores

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