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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vestibulodynia wiith cuts and sores

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Vestibulodynia wiith cuts and sores

Post  Ukvestibulodynia on Thu Oct 13, 2011 4:53 pm

I have had pain with sex for 3 years and was diagnosed with vestibulodynia yesterday. I get pain and also little cuts and sores after sex and found it hard to believe that its a nerve cell problem and not a skin problem when I do get grazes and cuts. It was a dermatologist who eventually diagnosed me with this after gyno's and gp's had no idea. I would have thought a derm would have said it was eczma or something similar but she said the cuts probably just happen to most people and they don't notice. A bit unconvinced and wondered if anyone else gets physical signs or their pains eg cuts/redness.


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Re: Vestibulodynia wiith cuts and sores

Post  Sarah001 on Thu Oct 13, 2011 8:20 pm

Hi and welcome, I have vulvar vestibulitis syndrome (VVS) as well as generalised vulvodynia and I have very red areas that get worse with any contact. I too see a dermatologist because my doctor was convinced it was a skin problem but got told no it wasn't. I don't buy the nerve theory for some women because it's caused by different things but tight pelvic floor muscles can affect the area and produce red inflamed skin by cutting off the blood supply to that area and no new blood, nutrients and oxygen getting to it so that's the theory I think fits me. It depends on the source of the problem, for some women it is nerves and others it's not. As for cuts and sores you could try sea buckthorn oil to heal the skin, some of the members of www.vulvarvestibulitisrelief.com have had great results with it. I didn't get on with it but it might be worth a go. It is orange though and does stain underwear so be warned! A good book is "When Sex Hurts" which explains the various types of vulvar pain and the various causes they've found so it could help you solve why you have the problem in the first place and point you in the right direction for treatment. Get used to doing your own legwork and research though, doctors just want to throw medication at it which isn't very successful if it's not the nerves (I know because I'm a fair way down that road now.).

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I hate those soars :(

Post  skippypie23 on Tue Nov 29, 2011 7:53 pm

I have VVS and I get the soars too; they're tiny but incredibly painful - sometimes it's almost impossible to walk.
They don't appear all the time; i remember i first started getting them after taking antibiotics (for a flu). I'm wondering if they could be triggered by yeast infections, because antibiotics often cause them.

I wish you all the best, and hope we can find a solution to this.


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Re: Vestibulodynia wiith cuts and sores

Post  ButterflyLiz on Tue Nov 29, 2011 8:22 pm

I do get those little cuts but rarely. My consultant told me they're down to thrush, which would make sense as I don't get them most of the time (I'm sure I would notice, I'm forever examining myself!). Then again I guess there could be other reasons too, but this is what I've been told.


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Re: Vestibulodynia wiith cuts and sores

Post  naomi on Tue Nov 29, 2011 10:44 pm

me too! wooooop we are lucky lasses! I apply Emu oil, soothes it more than the coconut oil i was using. not as nice smell though!

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Re: Vestibulodynia wiith cuts and sores

Post  Melissa777 on Sat Dec 03, 2011 4:55 am

Have any of you been tested for hsv 1 or 2. These symptoms sound typical of that


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Re: Vestibulodynia wiith cuts and sores

Post  raven86 on Fri Dec 09, 2011 9:59 pm

I have lichen sclerosis, which has caused significant thinning of the skin of my vulva and anus, and as a result get cracks/sores during flare ups. They definitely suck! My gyno also explained that you are more prone to getting them around your period, since menstrual fluid can be hard on your skin. Eczema can also cause sores and redness, especially if you are scratching in your sleep.


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Re: Vestibulodynia wiith cuts and sores

Post  Lindilou on Wed Feb 15, 2012 11:51 am

I get a 'paper cut' at the base entrance of my vagina [perineum end], I just posted elsewhere about this, sorry, my head and eyes are jumping aroudn all over the place and I might post in the wrong place. However mine could be due to my anatomy


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Re: Vestibulodynia wiith cuts and sores

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