Vulvodynia Support
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» Hope to all my suffering ladies
Vestibulodynia wiith cuts and sores EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vestibulodynia wiith cuts and sores EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vestibulodynia wiith cuts and sores EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vestibulodynia wiith cuts and sores EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vestibulodynia wiith cuts and sores EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vestibulodynia wiith cuts and sores EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vestibulodynia wiith cuts and sores EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vestibulodynia wiith cuts and sores EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vestibulodynia wiith cuts and sores EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vestibulodynia wiith cuts and sores

+4
ButterflyLiz
skippypie23
Sarah001
Ukvestibulodynia
8 posters

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Vestibulodynia wiith cuts and sores Empty Vestibulodynia wiith cuts and sores

Post  Ukvestibulodynia Thu Oct 13, 2011 4:53 pm

I have had pain with sex for 3 years and was diagnosed with vestibulodynia yesterday. I get pain and also little cuts and sores after sex and found it hard to believe that its a nerve cell problem and not a skin problem when I do get grazes and cuts. It was a dermatologist who eventually diagnosed me with this after gyno's and gp's had no idea. I would have thought a derm would have said it was eczma or something similar but she said the cuts probably just happen to most people and they don't notice. A bit unconvinced and wondered if anyone else gets physical signs or their pains eg cuts/redness.

Ukvestibulodynia

Posts : 2
Join date : 2011-10-13

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Vestibulodynia wiith cuts and sores Empty Re: Vestibulodynia wiith cuts and sores

Post  Sarah001 Thu Oct 13, 2011 8:20 pm

Hi and welcome, I have vulvar vestibulitis syndrome (VVS) as well as generalised vulvodynia and I have very red areas that get worse with any contact. I too see a dermatologist because my doctor was convinced it was a skin problem but got told no it wasn't. I don't buy the nerve theory for some women because it's caused by different things but tight pelvic floor muscles can affect the area and produce red inflamed skin by cutting off the blood supply to that area and no new blood, nutrients and oxygen getting to it so that's the theory I think fits me. It depends on the source of the problem, for some women it is nerves and others it's not. As for cuts and sores you could try sea buckthorn oil to heal the skin, some of the members of www.vulvarvestibulitisrelief.com have had great results with it. I didn't get on with it but it might be worth a go. It is orange though and does stain underwear so be warned! A good book is "When Sex Hurts" which explains the various types of vulvar pain and the various causes they've found so it could help you solve why you have the problem in the first place and point you in the right direction for treatment. Get used to doing your own legwork and research though, doctors just want to throw medication at it which isn't very successful if it's not the nerves (I know because I'm a fair way down that road now.).
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Vestibulodynia wiith cuts and sores Empty I hate those soars :(

Post  skippypie23 Tue Nov 29, 2011 7:53 pm

I have VVS and I get the soars too; they're tiny but incredibly painful - sometimes it's almost impossible to walk.
They don't appear all the time; i remember i first started getting them after taking antibiotics (for a flu). I'm wondering if they could be triggered by yeast infections, because antibiotics often cause them.

I wish you all the best, and hope we can find a solution to this.

skippypie23

Posts : 23
Join date : 2011-11-29
Location : Greece

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Vestibulodynia wiith cuts and sores Empty Re: Vestibulodynia wiith cuts and sores

Post  ButterflyLiz Tue Nov 29, 2011 8:22 pm

I do get those little cuts but rarely. My consultant told me they're down to thrush, which would make sense as I don't get them most of the time (I'm sure I would notice, I'm forever examining myself!). Then again I guess there could be other reasons too, but this is what I've been told.

Liz
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

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Vestibulodynia wiith cuts and sores Empty Re: Vestibulodynia wiith cuts and sores

Post  naomi Tue Nov 29, 2011 10:44 pm

me too! wooooop we are lucky lasses! I apply Emu oil, soothes it more than the coconut oil i was using. not as nice smell though!
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Vestibulodynia wiith cuts and sores Empty Re: Vestibulodynia wiith cuts and sores

Post  Melissa777 Sat Dec 03, 2011 4:55 am

Have any of you been tested for hsv 1 or 2. These symptoms sound typical of that

Melissa777

Posts : 55
Join date : 2011-07-10

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Vestibulodynia wiith cuts and sores Empty Re: Vestibulodynia wiith cuts and sores

Post  raven86 Fri Dec 09, 2011 9:59 pm

I have lichen sclerosis, which has caused significant thinning of the skin of my vulva and anus, and as a result get cracks/sores during flare ups. They definitely suck! My gyno also explained that you are more prone to getting them around your period, since menstrual fluid can be hard on your skin. Eczema can also cause sores and redness, especially if you are scratching in your sleep.

raven86

Posts : 4
Join date : 2011-12-09
Location : Ontario, Canada

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Post  Lindilou Wed Feb 15, 2012 11:51 am

I get a 'paper cut' at the base entrance of my vagina [perineum end], I just posted elsewhere about this, sorry, my head and eyes are jumping aroudn all over the place and I might post in the wrong place. However mine could be due to my anatomy

Lindilou

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Join date : 2012-02-14

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