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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

Vestibulodynia wiith cuts and sores

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Vestibulodynia wiith cuts and sores

Post  Ukvestibulodynia on Thu Oct 13, 2011 4:53 pm

I have had pain with sex for 3 years and was diagnosed with vestibulodynia yesterday. I get pain and also little cuts and sores after sex and found it hard to believe that its a nerve cell problem and not a skin problem when I do get grazes and cuts. It was a dermatologist who eventually diagnosed me with this after gyno's and gp's had no idea. I would have thought a derm would have said it was eczma or something similar but she said the cuts probably just happen to most people and they don't notice. A bit unconvinced and wondered if anyone else gets physical signs or their pains eg cuts/redness.


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Re: Vestibulodynia wiith cuts and sores

Post  Sarah001 on Thu Oct 13, 2011 8:20 pm

Hi and welcome, I have vulvar vestibulitis syndrome (VVS) as well as generalised vulvodynia and I have very red areas that get worse with any contact. I too see a dermatologist because my doctor was convinced it was a skin problem but got told no it wasn't. I don't buy the nerve theory for some women because it's caused by different things but tight pelvic floor muscles can affect the area and produce red inflamed skin by cutting off the blood supply to that area and no new blood, nutrients and oxygen getting to it so that's the theory I think fits me. It depends on the source of the problem, for some women it is nerves and others it's not. As for cuts and sores you could try sea buckthorn oil to heal the skin, some of the members of www.vulvarvestibulitisrelief.com have had great results with it. I didn't get on with it but it might be worth a go. It is orange though and does stain underwear so be warned! A good book is "When Sex Hurts" which explains the various types of vulvar pain and the various causes they've found so it could help you solve why you have the problem in the first place and point you in the right direction for treatment. Get used to doing your own legwork and research though, doctors just want to throw medication at it which isn't very successful if it's not the nerves (I know because I'm a fair way down that road now.).

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I hate those soars :(

Post  skippypie23 on Tue Nov 29, 2011 7:53 pm

I have VVS and I get the soars too; they're tiny but incredibly painful - sometimes it's almost impossible to walk.
They don't appear all the time; i remember i first started getting them after taking antibiotics (for a flu). I'm wondering if they could be triggered by yeast infections, because antibiotics often cause them.

I wish you all the best, and hope we can find a solution to this.


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Re: Vestibulodynia wiith cuts and sores

Post  ButterflyLiz on Tue Nov 29, 2011 8:22 pm

I do get those little cuts but rarely. My consultant told me they're down to thrush, which would make sense as I don't get them most of the time (I'm sure I would notice, I'm forever examining myself!). Then again I guess there could be other reasons too, but this is what I've been told.


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Re: Vestibulodynia wiith cuts and sores

Post  naomi on Tue Nov 29, 2011 10:44 pm

me too! wooooop we are lucky lasses! I apply Emu oil, soothes it more than the coconut oil i was using. not as nice smell though!

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Re: Vestibulodynia wiith cuts and sores

Post  Melissa777 on Sat Dec 03, 2011 4:55 am

Have any of you been tested for hsv 1 or 2. These symptoms sound typical of that


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Re: Vestibulodynia wiith cuts and sores

Post  raven86 on Fri Dec 09, 2011 9:59 pm

I have lichen sclerosis, which has caused significant thinning of the skin of my vulva and anus, and as a result get cracks/sores during flare ups. They definitely suck! My gyno also explained that you are more prone to getting them around your period, since menstrual fluid can be hard on your skin. Eczema can also cause sores and redness, especially if you are scratching in your sleep.


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Re: Vestibulodynia wiith cuts and sores

Post  Lindilou on Wed Feb 15, 2012 11:51 am

I get a 'paper cut' at the base entrance of my vagina [perineum end], I just posted elsewhere about this, sorry, my head and eyes are jumping aroudn all over the place and I might post in the wrong place. However mine could be due to my anatomy


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Re: Vestibulodynia wiith cuts and sores

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