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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Surgery for Vulvodynia

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Surgery for Vulvodynia

Post  Melonhead627 on Thu Nov 17, 2011 10:53 pm

I'm 21 and for the past year I have suffered from SEVERE pain during sex. My gynocologist had me try estrogen creams and anesthetics to try to fix the area. I finally saw a specialist and he was the one who diagnosed me with vulvodynia in July and put me on an anti-depressant. While the medicine postponed the length of time before I experienced pain during sex, it was still just as bad when it did come. The medicine also increased my heart rate to a dangerous rate. I had to be taken off of it and my symptoms have come back just as strong. My doctor said the best approach is to get surgery. He says that the part of my non-intact hymen is sensitive and it needs to be surgically removed. I feel so alone and I just want to enjoy sex again. Any advice? Has anyone had the surgery and has it helped? I haven't had a surgery like this before.


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Re: Surgery for Vulvodynia

Post  itchyandscratchy on Tue Nov 22, 2011 10:33 pm

Hi Melonhead, I'm sorry to hear your condition is so severe. I have no idea about surgery, most people on here seem to be focusing on physiotherapy, there's a section for it here. As far as info on surgery there's a topic on it here and Sebby has made two very informative posts on the topic also (1, 2). Vulval pain conditions seem to vary a lot from person to person, so I couldn't possibly say whether surgery is right for you, but maybe it would be a good idea to consult with another doctor before going down that route? As far as I can tell most doctors don't really know what causes vulvodynia and other vulval pain conditions, and for this reason I'd be hesitant to undergo surgery for it myself, because obviously surgery's irreversible and if it makes things worse or doesn't help at all that would be awful.

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Post  florence1009 on Fri Nov 25, 2011 8:06 am

Surgery -Vestibulectomoy- is a good option treamtent if you suffer for primary vestibulodynia. So first question is wether you already had intercourse-penetration without pain? If yes and the pain just came after a long period of "normal" sexual life" then I would try other treatment option. I am a bit puzzled by the "non-intact hymen"... Are you sure your MD is a good specialist of Vulvodynia?
Did you check the pill hypothesis; more and more young lady are suffering Vestibulodynia because of new OCs generation (type Jazz). In these cases stopping OC's and applying topical estrogens and androgens cream is a efficacious solution.
1) do you suffer pain only on pressure/penetration at the entrance of the vagina (the so called vestibule) and even more very precisely on very specific area 9 and 11 hours arround the Vagina? If yes this is probably a Provocked Vestibulodynia
2) Is it a Primary or secondary Vestibulodynia? If it is primary look for a wel trained OBGYN who will do a vestibulectomy (surgery). Please look for a trained one...
3) If not, you have a secondary PVD... Think about the OC's issues (stop OCs) and try Neogyn topically first as is it a efficacious non drug approach.
4) Go to a good Physiotherapist who can help you to relex your pelvic muscles are they may be super contracted do to the Vulvodynia and even sometime this is causing the vulvodynia... Are you doing a lot of exercize?


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Re: Surgery for Vulvodynia

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