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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Surgery for Vulvodynia

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Surgery for Vulvodynia

Post  Melonhead627 on Thu Nov 17, 2011 10:53 pm

I'm 21 and for the past year I have suffered from SEVERE pain during sex. My gynocologist had me try estrogen creams and anesthetics to try to fix the area. I finally saw a specialist and he was the one who diagnosed me with vulvodynia in July and put me on an anti-depressant. While the medicine postponed the length of time before I experienced pain during sex, it was still just as bad when it did come. The medicine also increased my heart rate to a dangerous rate. I had to be taken off of it and my symptoms have come back just as strong. My doctor said the best approach is to get surgery. He says that the part of my non-intact hymen is sensitive and it needs to be surgically removed. I feel so alone and I just want to enjoy sex again. Any advice? Has anyone had the surgery and has it helped? I haven't had a surgery like this before.


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Re: Surgery for Vulvodynia

Post  itchyandscratchy on Tue Nov 22, 2011 10:33 pm

Hi Melonhead, I'm sorry to hear your condition is so severe. I have no idea about surgery, most people on here seem to be focusing on physiotherapy, there's a section for it here. As far as info on surgery there's a topic on it here and Sebby has made two very informative posts on the topic also (1, 2). Vulval pain conditions seem to vary a lot from person to person, so I couldn't possibly say whether surgery is right for you, but maybe it would be a good idea to consult with another doctor before going down that route? As far as I can tell most doctors don't really know what causes vulvodynia and other vulval pain conditions, and for this reason I'd be hesitant to undergo surgery for it myself, because obviously surgery's irreversible and if it makes things worse or doesn't help at all that would be awful.

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Post  florence1009 on Fri Nov 25, 2011 8:06 am

Surgery -Vestibulectomoy- is a good option treamtent if you suffer for primary vestibulodynia. So first question is wether you already had intercourse-penetration without pain? If yes and the pain just came after a long period of "normal" sexual life" then I would try other treatment option. I am a bit puzzled by the "non-intact hymen"... Are you sure your MD is a good specialist of Vulvodynia?
Did you check the pill hypothesis; more and more young lady are suffering Vestibulodynia because of new OCs generation (type Jazz). In these cases stopping OC's and applying topical estrogens and androgens cream is a efficacious solution.
1) do you suffer pain only on pressure/penetration at the entrance of the vagina (the so called vestibule) and even more very precisely on very specific area 9 and 11 hours arround the Vagina? If yes this is probably a Provocked Vestibulodynia
2) Is it a Primary or secondary Vestibulodynia? If it is primary look for a wel trained OBGYN who will do a vestibulectomy (surgery). Please look for a trained one...
3) If not, you have a secondary PVD... Think about the OC's issues (stop OCs) and try Neogyn topically first as is it a efficacious non drug approach.
4) Go to a good Physiotherapist who can help you to relex your pelvic muscles are they may be super contracted do to the Vulvodynia and even sometime this is causing the vulvodynia... Are you doing a lot of exercize?


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Re: Surgery for Vulvodynia

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