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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Surgery for Vulvodynia

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Surgery for Vulvodynia

Post  Melonhead627 on Thu Nov 17, 2011 10:53 pm

I'm 21 and for the past year I have suffered from SEVERE pain during sex. My gynocologist had me try estrogen creams and anesthetics to try to fix the area. I finally saw a specialist and he was the one who diagnosed me with vulvodynia in July and put me on an anti-depressant. While the medicine postponed the length of time before I experienced pain during sex, it was still just as bad when it did come. The medicine also increased my heart rate to a dangerous rate. I had to be taken off of it and my symptoms have come back just as strong. My doctor said the best approach is to get surgery. He says that the part of my non-intact hymen is sensitive and it needs to be surgically removed. I feel so alone and I just want to enjoy sex again. Any advice? Has anyone had the surgery and has it helped? I haven't had a surgery like this before.

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Re: Surgery for Vulvodynia

Post  itchyandscratchy on Tue Nov 22, 2011 10:33 pm

Hi Melonhead, I'm sorry to hear your condition is so severe. I have no idea about surgery, most people on here seem to be focusing on physiotherapy, there's a section for it here. As far as info on surgery there's a topic on it here and Sebby has made two very informative posts on the topic also (1, 2). Vulval pain conditions seem to vary a lot from person to person, so I couldn't possibly say whether surgery is right for you, but maybe it would be a good idea to consult with another doctor before going down that route? As far as I can tell most doctors don't really know what causes vulvodynia and other vulval pain conditions, and for this reason I'd be hesitant to undergo surgery for it myself, because obviously surgery's irreversible and if it makes things worse or doesn't help at all that would be awful.
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Vestibulectomy

Post  florence1009 on Fri Nov 25, 2011 8:06 am

Hy!
Surgery -Vestibulectomoy- is a good option treamtent if you suffer for primary vestibulodynia. So first question is wether you already had intercourse-penetration without pain? If yes and the pain just came after a long period of "normal" sexual life" then I would try other treatment option. I am a bit puzzled by the "non-intact hymen"... Are you sure your MD is a good specialist of Vulvodynia?
Did you check the pill hypothesis; more and more young lady are suffering Vestibulodynia because of new OCs generation (type Jazz). In these cases stopping OC's and applying topical estrogens and androgens cream is a efficacious solution.
SO
1) do you suffer pain only on pressure/penetration at the entrance of the vagina (the so called vestibule) and even more very precisely on very specific area 9 and 11 hours arround the Vagina? If yes this is probably a Provocked Vestibulodynia
2) Is it a Primary or secondary Vestibulodynia? If it is primary look for a wel trained OBGYN who will do a vestibulectomy (surgery). Please look for a trained one...
3) If not, you have a secondary PVD... Think about the OC's issues (stop OCs) and try Neogyn topically first as is it a efficacious non drug approach.
4) Go to a good Physiotherapist who can help you to relex your pelvic muscles are they may be super contracted do to the Vulvodynia and even sometime this is causing the vulvodynia... Are you doing a lot of exercize?


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Re: Surgery for Vulvodynia

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