Vulvodynia Support
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» Hope to all my suffering ladies
Newbie - ---- EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newbie - ---- EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newbie - ---- EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newbie - ---- EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newbie - ---- EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newbie - ---- EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newbie - ---- EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newbie - ---- EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newbie - ---- EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  SimplyBelle Thu Nov 03, 2011 2:44 am

Just a quick introduction, but I imagine for the most part I'll spend my next few weeks creeping the boards reading your stories.

Been spending some time with the Nurse regarding the issue, finally had my first appointment with my obgyn today, and off for another round of testing to rule out ALL pathogens. He suspects its vulvodynia.

I'm still young though, just turned 21, and only really been dealing with the issue for about a year (since the beginning).

Aside from that, I'm from Canada, a student, and getting married in 6 months! Very Happy

That's the hardest part... the wedding is in six months

- Simply Belle


PS. Why do titles need to be 10 characters?

SimplyBelle

Posts : 17
Join date : 2011-11-03
Location : British Columbia

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Post  joanna82 Thu Nov 03, 2011 8:07 am

Hello Simply Belle,

i'm new here too. Was "formally" diagnosed yesterday after 5 years of going around in circles. I am so angry at all those doctors that kept telling me it was all in my head... I can't even beggin to explain what it did to my confidence in bed and to my relationship with my partner.
On the positive side, at least now what i have has a name!

Congratulations on your wedding, I hope your husband-to-be supports you all the way.

Joanna

joanna82

Posts : 3
Join date : 2011-11-01

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Post  Aussie Fri Nov 04, 2011 1:11 am

Congrats on the wedding Simply Belle!

My v started 6 weeks into my marriage. I married at 21 also! People think you are young. But when you know, you know! I have been lucky enough to have a very supportive husband. We work around any sexual pain I have but things are vastly improved after internal physical therapy and the herbal route. I have another post here listing my herbs. I also came off BCP as I felt it was contibuting to my symptoms. Since I have PCOS I now don't have periods which I suppose stops period induced vulva flares. The pill was making my vulva pain worse also. Sometimes it is just one one thing, but a few things that contribute to form the pain symdrome. I recently just found some more parts to my puzzle.

Muscles, nerves and skin irritation. I tired meds for the nerve part but the herbs work way better. Once I got the nerves settled my muscles have started to relax and it no longer hurts to sit! (sex hurts at first and then gets better after a minute or so, but if I am turned on we can go straight into it now, I'ts not like it was before, but I stopped hoping for 100% a while ago). It really is just finding YOUR treatment and I bet if you really put yourself into finding it over the next few months, you will improve! First port of call would be Physical Therapy, especially if your pain is only with sex.

Good luck in your journey and marriage - Sometimes having a partner, really can make it easier - mine does.

Claire xoxo

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  SimplyBelle Mon Dec 05, 2011 6:53 am

Just an update: Final diagnosis after a clear ultra sound last week, and now my gynaecologist is sending me off with a referral to the Multidisciplinary Vulvodynia Clinic in Vancouver. Anyone heard anything about it?

SimplyBelle

Posts : 17
Join date : 2011-11-03
Location : British Columbia

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