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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Brand of biofeedback device

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Brand of biofeedback device

Post  karris87 on Tue Jan 17, 2012 10:26 am

Does anyone have a brand of a biofeedback device that they like?

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Re: Brand of biofeedback device

Post  Sarah001 on Thu Jan 19, 2012 12:22 pm

I'm not sure anyone has one, Sebby had one she was using with Dr Glazer but I'm not sure what type it was. I was looking at a Neurotrac one a while ago but when I emailed the company to ask if it could be used for tight pelvic floors they didn't know so I haven't bought one.
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handheld devices

Post  toosore on Fri Jan 11, 2013 8:04 pm

I have been looking into this, too. Dr. Glazer's studies on using biofeedback for V involved at-home practice for 20 minutes 2 times a day for up to six months - That's a lot practice! We certainly can't afford the time or money to go to the physio that much! I think it really sucks that our medical coverage and treatment doesn't include a unit to use at home...

Anyhow, the laptop and computer software that my physio uses is thousands of dollars, so not feasible for the average person. For home use, there are handheld units that have a bunch of lights that light up to show you what's going on. They are generally designed for pelvic floor rehab for people who are incontinent. The cheaper devices only measure muscle tone. For more money, you can get a device that also stimulates the muscles. My physio said that the stimulating feature was something that I could use way down the road at the end of treatment. Here are some prices: the cheaper unit was $280, the one that also had the stimulating capability was $500, the one that Dr. Glazer sells (which does not stimulate) is $350. I have read that biofeedback units are medical devices and usually only sold through medical practitioners. In addition to the unit, you also have to buy a probe. Before you choose a unit, find out what the probe looks like and how big it is. The probe for Dr. Glazer's unit looks downright evil - it has a huge bulbous end on it that makes me cringe just looking at it! The one he sells is made for incontinent ladies, who are usually very slack and don't have pain. My physio had a whole catalog of medical equipment, and there were several units in it. Your physio should have the same.

Right now, I can't tolerate inserting anything without increasing my pain. In her clinic, the physio uses a system that handles three sizes of probes - an anal probe (pinky width - less than 1/2 inch), and two sizes of vag probe, both of which look big to me! I will first have to train with her in the office before buying anything. I have had three sessions so far (no biofeedback), and it will be at least four more before I will be ready to carry on at home. I have a particularly severe case of V now, after slowly getting worse for the past 30 years. Anyone who still has "only" provoked pain, I would encourage you to seek treatment and be diligent in following biofeedback exercises. I wish I had done this 10 years ago when I only had pain with intercourse. No one warned me that I could get this bad - on disability, unable to sit at all, constant pain, etc.... This is not how I pictured my life!

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Re: Brand of biofeedback device

Post  Rose86 on Thu Oct 24, 2013 10:14 pm

I have the NeutroTrac Simplex and have started using it at home every day. It seems fine for what I need it for. Let me know how you get on!

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Re: Brand of biofeedback device

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