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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Brand of biofeedback device

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Brand of biofeedback device

Post  karris87 on Tue Jan 17, 2012 10:26 am

Does anyone have a brand of a biofeedback device that they like?

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Re: Brand of biofeedback device

Post  Sarah001 on Thu Jan 19, 2012 12:22 pm

I'm not sure anyone has one, Sebby had one she was using with Dr Glazer but I'm not sure what type it was. I was looking at a Neurotrac one a while ago but when I emailed the company to ask if it could be used for tight pelvic floors they didn't know so I haven't bought one.
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handheld devices

Post  toosore on Fri Jan 11, 2013 8:04 pm

I have been looking into this, too. Dr. Glazer's studies on using biofeedback for V involved at-home practice for 20 minutes 2 times a day for up to six months - That's a lot practice! We certainly can't afford the time or money to go to the physio that much! I think it really sucks that our medical coverage and treatment doesn't include a unit to use at home...

Anyhow, the laptop and computer software that my physio uses is thousands of dollars, so not feasible for the average person. For home use, there are handheld units that have a bunch of lights that light up to show you what's going on. They are generally designed for pelvic floor rehab for people who are incontinent. The cheaper devices only measure muscle tone. For more money, you can get a device that also stimulates the muscles. My physio said that the stimulating feature was something that I could use way down the road at the end of treatment. Here are some prices: the cheaper unit was $280, the one that also had the stimulating capability was $500, the one that Dr. Glazer sells (which does not stimulate) is $350. I have read that biofeedback units are medical devices and usually only sold through medical practitioners. In addition to the unit, you also have to buy a probe. Before you choose a unit, find out what the probe looks like and how big it is. The probe for Dr. Glazer's unit looks downright evil - it has a huge bulbous end on it that makes me cringe just looking at it! The one he sells is made for incontinent ladies, who are usually very slack and don't have pain. My physio had a whole catalog of medical equipment, and there were several units in it. Your physio should have the same.

Right now, I can't tolerate inserting anything without increasing my pain. In her clinic, the physio uses a system that handles three sizes of probes - an anal probe (pinky width - less than 1/2 inch), and two sizes of vag probe, both of which look big to me! I will first have to train with her in the office before buying anything. I have had three sessions so far (no biofeedback), and it will be at least four more before I will be ready to carry on at home. I have a particularly severe case of V now, after slowly getting worse for the past 30 years. Anyone who still has "only" provoked pain, I would encourage you to seek treatment and be diligent in following biofeedback exercises. I wish I had done this 10 years ago when I only had pain with intercourse. No one warned me that I could get this bad - on disability, unable to sit at all, constant pain, etc.... This is not how I pictured my life!

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Re: Brand of biofeedback device

Post  Rose86 on Thu Oct 24, 2013 10:14 pm

I have the NeutroTrac Simplex and have started using it at home every day. It seems fine for what I need it for. Let me know how you get on!

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Re: Brand of biofeedback device

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