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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Brand of biofeedback device

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Brand of biofeedback device

Post  karris87 on Tue Jan 17, 2012 10:26 am

Does anyone have a brand of a biofeedback device that they like?

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Re: Brand of biofeedback device

Post  Sarah001 on Thu Jan 19, 2012 12:22 pm

I'm not sure anyone has one, Sebby had one she was using with Dr Glazer but I'm not sure what type it was. I was looking at a Neurotrac one a while ago but when I emailed the company to ask if it could be used for tight pelvic floors they didn't know so I haven't bought one.
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handheld devices

Post  toosore on Fri Jan 11, 2013 8:04 pm

I have been looking into this, too. Dr. Glazer's studies on using biofeedback for V involved at-home practice for 20 minutes 2 times a day for up to six months - That's a lot practice! We certainly can't afford the time or money to go to the physio that much! I think it really sucks that our medical coverage and treatment doesn't include a unit to use at home...

Anyhow, the laptop and computer software that my physio uses is thousands of dollars, so not feasible for the average person. For home use, there are handheld units that have a bunch of lights that light up to show you what's going on. They are generally designed for pelvic floor rehab for people who are incontinent. The cheaper devices only measure muscle tone. For more money, you can get a device that also stimulates the muscles. My physio said that the stimulating feature was something that I could use way down the road at the end of treatment. Here are some prices: the cheaper unit was $280, the one that also had the stimulating capability was $500, the one that Dr. Glazer sells (which does not stimulate) is $350. I have read that biofeedback units are medical devices and usually only sold through medical practitioners. In addition to the unit, you also have to buy a probe. Before you choose a unit, find out what the probe looks like and how big it is. The probe for Dr. Glazer's unit looks downright evil - it has a huge bulbous end on it that makes me cringe just looking at it! The one he sells is made for incontinent ladies, who are usually very slack and don't have pain. My physio had a whole catalog of medical equipment, and there were several units in it. Your physio should have the same.

Right now, I can't tolerate inserting anything without increasing my pain. In her clinic, the physio uses a system that handles three sizes of probes - an anal probe (pinky width - less than 1/2 inch), and two sizes of vag probe, both of which look big to me! I will first have to train with her in the office before buying anything. I have had three sessions so far (no biofeedback), and it will be at least four more before I will be ready to carry on at home. I have a particularly severe case of V now, after slowly getting worse for the past 30 years. Anyone who still has "only" provoked pain, I would encourage you to seek treatment and be diligent in following biofeedback exercises. I wish I had done this 10 years ago when I only had pain with intercourse. No one warned me that I could get this bad - on disability, unable to sit at all, constant pain, etc.... This is not how I pictured my life!

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Re: Brand of biofeedback device

Post  Rose86 on Thu Oct 24, 2013 10:14 pm

I have the NeutroTrac Simplex and have started using it at home every day. It seems fine for what I need it for. Let me know how you get on!

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Re: Brand of biofeedback device

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