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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Brand of biofeedback device
4 posters
Page 1 of 1
Brand of biofeedback device
Does anyone have a brand of a biofeedback device that they like?
karris87- Posts : 9
Join date : 2012-01-17
Re: Brand of biofeedback device
I'm not sure anyone has one, Sebby had one she was using with Dr Glazer but I'm not sure what type it was. I was looking at a Neurotrac one a while ago but when I emailed the company to ask if it could be used for tight pelvic floors they didn't know so I haven't bought one.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
handheld devices
I have been looking into this, too. Dr. Glazer's studies on using biofeedback for V involved at-home practice for 20 minutes 2 times a day for up to six months - That's a lot practice! We certainly can't afford the time or money to go to the physio that much! I think it really sucks that our medical coverage and treatment doesn't include a unit to use at home...
Anyhow, the laptop and computer software that my physio uses is thousands of dollars, so not feasible for the average person. For home use, there are handheld units that have a bunch of lights that light up to show you what's going on. They are generally designed for pelvic floor rehab for people who are incontinent. The cheaper devices only measure muscle tone. For more money, you can get a device that also stimulates the muscles. My physio said that the stimulating feature was something that I could use way down the road at the end of treatment. Here are some prices: the cheaper unit was $280, the one that also had the stimulating capability was $500, the one that Dr. Glazer sells (which does not stimulate) is $350. I have read that biofeedback units are medical devices and usually only sold through medical practitioners. In addition to the unit, you also have to buy a probe. Before you choose a unit, find out what the probe looks like and how big it is. The probe for Dr. Glazer's unit looks downright evil - it has a huge bulbous end on it that makes me cringe just looking at it! The one he sells is made for incontinent ladies, who are usually very slack and don't have pain. My physio had a whole catalog of medical equipment, and there were several units in it. Your physio should have the same.
Right now, I can't tolerate inserting anything without increasing my pain. In her clinic, the physio uses a system that handles three sizes of probes - an anal probe (pinky width - less than 1/2 inch), and two sizes of vag probe, both of which look big to me! I will first have to train with her in the office before buying anything. I have had three sessions so far (no biofeedback), and it will be at least four more before I will be ready to carry on at home. I have a particularly severe case of V now, after slowly getting worse for the past 30 years. Anyone who still has "only" provoked pain, I would encourage you to seek treatment and be diligent in following biofeedback exercises. I wish I had done this 10 years ago when I only had pain with intercourse. No one warned me that I could get this bad - on disability, unable to sit at all, constant pain, etc.... This is not how I pictured my life!
Anyhow, the laptop and computer software that my physio uses is thousands of dollars, so not feasible for the average person. For home use, there are handheld units that have a bunch of lights that light up to show you what's going on. They are generally designed for pelvic floor rehab for people who are incontinent. The cheaper devices only measure muscle tone. For more money, you can get a device that also stimulates the muscles. My physio said that the stimulating feature was something that I could use way down the road at the end of treatment. Here are some prices: the cheaper unit was $280, the one that also had the stimulating capability was $500, the one that Dr. Glazer sells (which does not stimulate) is $350. I have read that biofeedback units are medical devices and usually only sold through medical practitioners. In addition to the unit, you also have to buy a probe. Before you choose a unit, find out what the probe looks like and how big it is. The probe for Dr. Glazer's unit looks downright evil - it has a huge bulbous end on it that makes me cringe just looking at it! The one he sells is made for incontinent ladies, who are usually very slack and don't have pain. My physio had a whole catalog of medical equipment, and there were several units in it. Your physio should have the same.
Right now, I can't tolerate inserting anything without increasing my pain. In her clinic, the physio uses a system that handles three sizes of probes - an anal probe (pinky width - less than 1/2 inch), and two sizes of vag probe, both of which look big to me! I will first have to train with her in the office before buying anything. I have had three sessions so far (no biofeedback), and it will be at least four more before I will be ready to carry on at home. I have a particularly severe case of V now, after slowly getting worse for the past 30 years. Anyone who still has "only" provoked pain, I would encourage you to seek treatment and be diligent in following biofeedback exercises. I wish I had done this 10 years ago when I only had pain with intercourse. No one warned me that I could get this bad - on disability, unable to sit at all, constant pain, etc.... This is not how I pictured my life!
toosore- Posts : 18
Join date : 2012-06-18
Location : Vancouver
Re: Brand of biofeedback device
I have the NeutroTrac Simplex and have started using it at home every day. It seems fine for what I need it for. Let me know how you get on!
Rose86- Posts : 51
Join date : 2011-06-23
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer