Log in

I forgot my password

Latest topics
» Vulvodynia is a secret
Today at 1:59 am by ryn207

» does anyone else have nocturnal itching?
Yesterday at 4:57 pm by aspaceodyssey

» Pressure to have sex.
Yesterday at 4:30 pm by aspaceodyssey

» Looking for a friend..... and new problems
Thu Jan 18, 2018 5:08 pm by PainBlogger

» Can you guys tell me your experiences with diflucan/Fluconazole?
Thu Jan 18, 2018 3:07 pm by RainyShay77

» Vestibulectomy today and no pain
Thu Jan 18, 2018 4:53 am by Sandra4372

» Reviews on Amy Stein's Book and Methods
Thu Jan 18, 2018 4:51 am by Sandra4372

» Dilator Discount Code
Thu Jan 18, 2018 4:48 am by Sandra4372

» Why don't more women know about pelvic pt?
Thu Jan 18, 2018 4:39 am by Sandra4372

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Newly diagnosed

View previous topic View next topic Go down

Newly diagnosed

Post  christina1 on Mon Jan 23, 2012 1:17 am

I was diagnosed this past Friday with VV after having intense burning occurring suddenly in December. I was treated for yeast infections multiple times despite negative cultures. The treatments did not help and some made the burning worse. I have tested negative to all STD's and bacteria as well. I am to start Estrace cream tonight. I'm nervous. I don't like taking meds and this scares me. I don't get this disease at all and am so confused. Does anyone else have discharge with this? It is white, no odor, and looks liked fluffy cooked egg whites. I have had it already. I can only where sweats and don't want to go out. HELP please!!!!! I have been married almost 22 years and this is ruining everything.

christina1

Posts : 6
Join date : 2012-01-23

View user profile

Back to top Go down

?

Post  AroraNightfire on Tue Jan 24, 2012 4:50 am

Is it the outside of the vagina that it burns? The perineum? The lips? Im 27 and Ive been in a relationship for 5yrs now. Im lucky he is very understanding. He never asks for sex because he knows it will hurt me. Im on Lyrica for pain. When its bad I try Cymbalta along with it. How long has your pain been going on? Is your husband understanding?
avatar
AroraNightfire

Posts : 40
Join date : 2012-01-20
Location : Cape Cod Massachusetts

View user profile

Back to top Go down

Newly diagnosed

Post  Loulou on Tue Jan 24, 2012 1:59 pm

Hi Christina

I can completely understand and empathise with your confusion and anxiety as my circumstances are similar - I was diagnosed last week after my symptoms started up in November, treated for thrush, all tests coming back negative etc.

Firstly a positive - I think we are both so lucky that we have been diagnosed so early. This means we can start treatment quickly rather than suffering years of pain and discomfort which so many other women have experienced. I'm also telling myself that this means that my pain will have less time to become embedded, less time for my body to have a 'memory' of this type of pain and therefore I have a better chance for my nerves to be 'retrained' back to 'normal' - no idea if this is possible but I will be asking this question when I next see my consultant in a few weeks. I've also come to realise very quickly that it is so important to be as positive as possible (can be hard i know). I've noticed that when I get stressed or upset about this my whole pelvic area tenses up and seems to make it worse (something else i'll be talking to my consultant about).

Regarding the discharge, yes I'm getting a white discharge but not curdy like thrush. My consultant wasn't concerned by this and said that discharge is normal for all women and it can vary during your cycle. I'm just gonna keep an eye on this and note any changes.

As for your treatment, it sounds like your GP/consultant thinks it might be hormonal/menopausal related? Was this discussed? what's your thoughts on this? Has anyone else here had success with Estrace?
My consultant gave me Lidocaine 5% to numb the area (worked the first time but burnt like hell the second time and seemed to worsen my symptoms so I haven't dared use it again yet - I will try again if i get a bad flare up just to be sure). She also recommended i use an emollient - i've been using E45 cream liberally and this seems to have helped - my symptoms have been relatively calm for the last couple of days. My thinking is that my lady bits have been subject to so much over the last couple of months that i'm trying to do the minimum to them at the moment!

I found the Vulval Pain Society's handbook very helpful - it costs £10 but is worth it. This would help you understand the condition. I can't post the weblink (i only joined this forum last week and there's a 7 day wait before i can post a link but if you google Vulval Pain Society you'll be able to access their website)
I also did loads of internet research - though I got a bit overwhelmed by all the potential info available and it stressed me out a bit so now i'm taking it a step at a time.

Hope this is of some help Christina. I felt like you in the first few days after my diagnosis but with help and support (medical and otherwise) believe things will improve.

Loulou

Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: Newly diagnosed

Post  christina1 on Wed Jan 25, 2012 12:29 am

Yes my burning is only on the outside. I can't touch any of the skin without it burning afterwards. I wasn't really told it was hormonal. Not sure why the Estrace. I'm only 41 and she said I'm young for premenopause but it can happen this early. I am also supposed to do salt baths but so far Im too afraid. Today I saw a new Gyn and she gave me a script for Lidocaine. I havent filled it yet. I was also started on a tricyclics antidepressant yesterday because I am now severely depressed by this. The psychiatrist also thought it might help with the pain. The discharge is annoying. I've never had anything like it before. I'm scared and don't understand why this came on so suddenly. I have never had issues below ever.

christina1

Posts : 6
Join date : 2012-01-23

View user profile

Back to top Go down

Re: Newly diagnosed

Post  Sarah001 on Wed Jan 25, 2012 12:55 pm

I use salt in the bath and it's been fine for me, start with just a bit and work up to more. I find it odd that they frequently associate generalised V to hormones because to me hormones would only affect the vestibule and not the external area, I have generalised V as well as VVS so it's something I keep coming across online but I don't really get it to be honest!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Newly diagnosed

Post  christina1 on Wed Jan 25, 2012 5:12 pm

What kind of salt do you use? I was told aquarium salt from the pet store. The Gyn I went to yesterday suggested Domeboro instead. Has anyone tried that? Not sure which to try really.

christina1

Posts : 6
Join date : 2012-01-23

View user profile

Back to top Go down

Re: Newly diagnosed

Post  shortstuff on Thu Jan 26, 2012 12:52 am

I use Aveeno oatmeal bath usually, this seems to help a lot (and for soap, the Aveeno baby soap when I shower)... or the Vasaline brand bath beads with Vitamin E.. The ocean breeze one for some reason was the best for me, no idea why.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Newly diagnosed

Post  christina1 on Thu Jan 26, 2012 1:35 pm

OMG, I tried an Aveeno bath and it burned so bad afterwards I almost had to go to the ER, but then I thought seriously what could they do. Maybe I will try the Vaseline needs. Just running plain water down there in the shower bothers me!

christina1

Posts : 6
Join date : 2012-01-23

View user profile

Back to top Go down

Re: Newly diagnosed

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum