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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Dr Glazer's Book-Does it help?
4 posters
Page 1 of 1
Dr Glazer's Book-Does it help?
Hi,
I was wondering if anyone actually bought "The Vulvodyinia Survival Guide" Howard I Glazer. Im really interested in it but I want to know if it is helpful/useful?
Thank you
Pepper x
I was wondering if anyone actually bought "The Vulvodyinia Survival Guide" Howard I Glazer. Im really interested in it but I want to know if it is helpful/useful?
Thank you
Pepper x
pepper7- Posts : 39
Join date : 2012-02-04
Location : UK
Re: Dr Glazer's Book-Does it help?
Yes I bought it but no I wouldn't recommend it, it's full of statistics about who gets V and a bit about the causes but it barely goes into the Glazer Protocol which is why I bought it and doesn't actually give much help at all about how to help yourself. I would however recommend When Sex Hurts by Andrew Goldstein (I think, the title will find it for you) which goes in to various causes and treatments and helps you to establish why you have V and what to do about it.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Dr Glazer's Book-Does it help?
Hi
Thank you! Ok Ill look into the Goldstein book. I look online but while some of the stuff is helpful a lot is a bit random and useless
Id really like to find something where all the information is in one area.
Thanks again x
Thank you! Ok Ill look into the Goldstein book. I look online but while some of the stuff is helpful a lot is a bit random and useless
Id really like to find something where all the information is in one area.
Thanks again x
pepper7- Posts : 39
Join date : 2012-02-04
Location : UK
Re: Dr Glazer's Book-Does it help?
It's funny I came across this. A few days ago I just got both books from my local library. My library actaully had nothing about V, but I got the books ordered at no cost through an intralibrary loan. I wasn't sure if they would tell me anything I didn't already know, so I wanted to rent them before I decide to buy them.
That is an option you could try to see if you like a book before you buy it.
I'm 65 pages into the Vulvodynia Survival Guide and so far it's mostly statics on Dr. Glazer's informal web survey. Though the begining did have some helpful definiations and he does briefly discuss the different theories for V. I'm not far enough in to know if it's helpful to me yet.
I haven't started reading when Sex Hurts yet.
That is an option you could try to see if you like a book before you buy it.
I'm 65 pages into the Vulvodynia Survival Guide and so far it's mostly statics on Dr. Glazer's informal web survey. Though the begining did have some helpful definiations and he does briefly discuss the different theories for V. I'm not far enough in to know if it's helpful to me yet.
I haven't started reading when Sex Hurts yet.
Kam10- Posts : 32
Join date : 2012-01-16
Re: Dr Glazer's Book-Does it help?
When Sex Hurts is vastly better and addresses the reader as a sufferer who needs good solid information and advice and really focuses on the different causes and treatments which I think is something we all like to know about rather than the age groups/races/careers etc of women most likely to suffer. I was very disappointed with Dr Glazer's book because I wanted to know about his method and it doesn't give any information about it at all except he thinks it's the only method that works which simply isn't true.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Dr Glazer's Book-Does it help?
Hey ladies,
Thanks for recommending this book,i'm just going to buy this book now online to see if it can help me also!
Thanks for recommending this book,i'm just going to buy this book now online to see if it can help me also!
Gizzy- Posts : 5
Join date : 2012-09-30
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer