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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Dr Glazer's Book-Does it help?

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Dr Glazer's Book-Does it help?

Post  pepper7 on Tue Feb 07, 2012 10:49 pm

Hi,

I was wondering if anyone actually bought "The Vulvodyinia Survival Guide" Howard I Glazer. Im really interested in it but I want to know if it is helpful/useful?
Thank you
Pepper x

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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Wed Feb 08, 2012 1:01 pm

Yes I bought it but no I wouldn't recommend it, it's full of statistics about who gets V and a bit about the causes but it barely goes into the Glazer Protocol which is why I bought it and doesn't actually give much help at all about how to help yourself. I would however recommend When Sex Hurts by Andrew Goldstein (I think, the title will find it for you) which goes in to various causes and treatments and helps you to establish why you have V and what to do about it.
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Re: Dr Glazer's Book-Does it help?

Post  pepper7 on Wed Feb 08, 2012 10:09 pm

Hi

Thank you! Ok Ill look into the Goldstein book. I look online but while some of the stuff is helpful a lot is a bit random and useless Rolling Eyes
Id really like to find something where all the information is in one area.

Thanks again x

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Re: Dr Glazer's Book-Does it help?

Post  Kam10 on Thu Feb 09, 2012 2:21 am

It's funny I came across this. A few days ago I just got both books from my local library. My library actaully had nothing about V, but I got the books ordered at no cost through an intralibrary loan. I wasn't sure if they would tell me anything I didn't already know, so I wanted to rent them before I decide to buy them.

That is an option you could try to see if you like a book before you buy it.

I'm 65 pages into the Vulvodynia Survival Guide and so far it's mostly statics on Dr. Glazer's informal web survey. Though the begining did have some helpful definiations and he does briefly discuss the different theories for V. I'm not far enough in to know if it's helpful to me yet.

I haven't started reading when Sex Hurts yet.
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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Fri Feb 10, 2012 9:04 pm

When Sex Hurts is vastly better and addresses the reader as a sufferer who needs good solid information and advice and really focuses on the different causes and treatments which I think is something we all like to know about rather than the age groups/races/careers etc of women most likely to suffer. I was very disappointed with Dr Glazer's book because I wanted to know about his method and it doesn't give any information about it at all except he thinks it's the only method that works which simply isn't true.
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Re: Dr Glazer's Book-Does it help?

Post  Gizzy on Mon Oct 01, 2012 4:56 pm

Hey ladies,
Thanks for recommending this book,i'm just going to buy this book now online to see if it can help me also! Very Happy
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Re: Dr Glazer's Book-Does it help?

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