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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Dr Glazer's Book-Does it help?

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Dr Glazer's Book-Does it help?

Post  pepper7 on Tue Feb 07, 2012 10:49 pm

Hi,

I was wondering if anyone actually bought "The Vulvodyinia Survival Guide" Howard I Glazer. Im really interested in it but I want to know if it is helpful/useful?
Thank you
Pepper x

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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Wed Feb 08, 2012 1:01 pm

Yes I bought it but no I wouldn't recommend it, it's full of statistics about who gets V and a bit about the causes but it barely goes into the Glazer Protocol which is why I bought it and doesn't actually give much help at all about how to help yourself. I would however recommend When Sex Hurts by Andrew Goldstein (I think, the title will find it for you) which goes in to various causes and treatments and helps you to establish why you have V and what to do about it.
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Re: Dr Glazer's Book-Does it help?

Post  pepper7 on Wed Feb 08, 2012 10:09 pm

Hi

Thank you! Ok Ill look into the Goldstein book. I look online but while some of the stuff is helpful a lot is a bit random and useless Rolling Eyes
Id really like to find something where all the information is in one area.

Thanks again x

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Re: Dr Glazer's Book-Does it help?

Post  Kam10 on Thu Feb 09, 2012 2:21 am

It's funny I came across this. A few days ago I just got both books from my local library. My library actaully had nothing about V, but I got the books ordered at no cost through an intralibrary loan. I wasn't sure if they would tell me anything I didn't already know, so I wanted to rent them before I decide to buy them.

That is an option you could try to see if you like a book before you buy it.

I'm 65 pages into the Vulvodynia Survival Guide and so far it's mostly statics on Dr. Glazer's informal web survey. Though the begining did have some helpful definiations and he does briefly discuss the different theories for V. I'm not far enough in to know if it's helpful to me yet.

I haven't started reading when Sex Hurts yet.
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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Fri Feb 10, 2012 9:04 pm

When Sex Hurts is vastly better and addresses the reader as a sufferer who needs good solid information and advice and really focuses on the different causes and treatments which I think is something we all like to know about rather than the age groups/races/careers etc of women most likely to suffer. I was very disappointed with Dr Glazer's book because I wanted to know about his method and it doesn't give any information about it at all except he thinks it's the only method that works which simply isn't true.
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Re: Dr Glazer's Book-Does it help?

Post  Gizzy on Mon Oct 01, 2012 4:56 pm

Hey ladies,
Thanks for recommending this book,i'm just going to buy this book now online to see if it can help me also! Very Happy
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Re: Dr Glazer's Book-Does it help?

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