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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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Dr Glazer's Book-Does it help?

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Dr Glazer's Book-Does it help?

Post  pepper7 on Tue Feb 07, 2012 10:49 pm

Hi,

I was wondering if anyone actually bought "The Vulvodyinia Survival Guide" Howard I Glazer. Im really interested in it but I want to know if it is helpful/useful?
Thank you
Pepper x

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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Wed Feb 08, 2012 1:01 pm

Yes I bought it but no I wouldn't recommend it, it's full of statistics about who gets V and a bit about the causes but it barely goes into the Glazer Protocol which is why I bought it and doesn't actually give much help at all about how to help yourself. I would however recommend When Sex Hurts by Andrew Goldstein (I think, the title will find it for you) which goes in to various causes and treatments and helps you to establish why you have V and what to do about it.
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Re: Dr Glazer's Book-Does it help?

Post  pepper7 on Wed Feb 08, 2012 10:09 pm

Hi

Thank you! Ok Ill look into the Goldstein book. I look online but while some of the stuff is helpful a lot is a bit random and useless Rolling Eyes
Id really like to find something where all the information is in one area.

Thanks again x

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Re: Dr Glazer's Book-Does it help?

Post  Kam10 on Thu Feb 09, 2012 2:21 am

It's funny I came across this. A few days ago I just got both books from my local library. My library actaully had nothing about V, but I got the books ordered at no cost through an intralibrary loan. I wasn't sure if they would tell me anything I didn't already know, so I wanted to rent them before I decide to buy them.

That is an option you could try to see if you like a book before you buy it.

I'm 65 pages into the Vulvodynia Survival Guide and so far it's mostly statics on Dr. Glazer's informal web survey. Though the begining did have some helpful definiations and he does briefly discuss the different theories for V. I'm not far enough in to know if it's helpful to me yet.

I haven't started reading when Sex Hurts yet.
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Re: Dr Glazer's Book-Does it help?

Post  Sarah001 on Fri Feb 10, 2012 9:04 pm

When Sex Hurts is vastly better and addresses the reader as a sufferer who needs good solid information and advice and really focuses on the different causes and treatments which I think is something we all like to know about rather than the age groups/races/careers etc of women most likely to suffer. I was very disappointed with Dr Glazer's book because I wanted to know about his method and it doesn't give any information about it at all except he thinks it's the only method that works which simply isn't true.
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Re: Dr Glazer's Book-Does it help?

Post  Gizzy on Mon Oct 01, 2012 4:56 pm

Hey ladies,
Thanks for recommending this book,i'm just going to buy this book now online to see if it can help me also! Very Happy
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