Hey, I'm new :)

Hello everyone,

I randomly came accross this site when aimlessley searching around the internet ( I can't sleep). I first noticed signs of vulvodynia when i was 15, I took alittle piece of paper to my doctor with 'vulval vestibulitis' written on it when i was 17, got ignored. Took 2 years to go back at 19 and finally got diagnosed at 22, 3 years ago. (many more bits inbetween but thats the basics).

I have so much anger directed towards health professionals (despite being one myself) especially a lady calls margret, who goes under the job description of psycosexual counsellor. Thinking about it is making my hands shake. I attempt to spend every day of my life ignoring my symptons of vulvodynia. I dont feel strong enough to ever go back to a health proessional and discuss my treatment options.

I am trying to take the first step in no longer 'avoiding' by joining this forum (deep breaths)

Thank you all for making me feel like a mentally sane human!! Laura xx

Hi Laura and welcome!

So glad you have found us! You will find a wealth of information and support here. Well done on taking the first step to journeying out of avoidance.. I have been stuck there many times myself. We all deserve to find relief, and sometimes the best way to do that is continuing the difficult search for helpful doctors, but you will also find several things you can try yourself if you look around the forum.

Unfortunately, dealing with rude, unhelpful and disrespectful medical people is something that most of us are all too familiar with, so you're not alone on that. This is a great place to share, vent and throw around ideas.

Oh, we also have a "secret" facebook group, PM Naomi if you would like to be added.

Liz xx

Hi there I am new too. We could keep each other going, I am from the North West too. And in pain everyday now since week before xmas on v low ami at present, back to gynae in just over a week for first follow up. You could try another Dr and see if you have more success. must admit I have had to chase drs and appts and prescriptions. Keep Strong xx

hello! welcome to the forum.

dont be afraid to ask loads of questions...we all do! and educating the 'professionals' about this condition. Dont get me started on 'specialists'...i can feel my blood pressure rise already!!!

if u fancy joining the facebook secret group you are more than welcome, put names to faces. Message me on here if you'd like to. over the past few years I have met girls on here and on the facebook group that I really consider to be close friends...all deserve medals

hopefully you will gain confidence to start the ball rolling and seek help again. and if you find a lady who lives near you and can recommend you a nice specialist, then all the better!

xxxx

Thank you so much girls, its reassuring to read that there are actually decent doctors out there somewhere! Edina, I hope your follow up goes okay and your symtoms ease slightly soon xxx