Vulvodynia Support
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» Hope to all my suffering ladies
Easier sex? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Easier sex? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Easier sex? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Easier sex? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Easier sex? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Easier sex? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Easier sex? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Easier sex? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Easier sex? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Easier sex?

4 posters

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Easier sex? Empty Easier sex?

Post  Layla2121 Fri Apr 13, 2012 1:43 am

I've only recently found i've had vulva vestubulitis (after years of thinking it was all in my head) and it's been quite depressing finding that there's not many treatments out there for it. I was hoping that, since i can't cure it, there might anything i can do that makes the symptoms more bearable - and make sex easier?

I've been with my boyfriend for 2 years and its almost always hurt during sex. At first I thought it was normal (since i thought after your 1st time it took a while to get used to it) but i've realized this isn't normal and it always seems to be just the opening of the vagina that gets sore and inflamed.

I wondered if anyone has found something that helps make sex less painful? I've heard that you can numb it but since i dont really trust condoms, my boyfriend would probably get numb too - which sorta defeats the purpose xD Is there any creams or anything that helps stops the pain but doesn't effect the contraceptive pill?

Please help D: x (I made it colourful so it's more fun to read ;D)

Layla2121

Posts : 2
Join date : 2012-04-13

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Easier sex? Empty Yes you can make it better

Post  LizLemonny Sun Apr 15, 2012 5:52 am

Your experience matches mine, though I was not diagnosed for much longer, after I became more communicative to guys I was with and several said that this WAS very unusual; so I went back to the doctors and said there WAS something and I would not be denied or fobbed off, and got referred to a proper gynaecologist and got my diagnosis. It's Vulvar Vestibulitis VVA and sounds like yours.

I had a long-term partner and sex with him was much more manageable as we could fully communicate. Most of this is probably evident to you and your BF but here you go:

1. Know exactly where your weak spots are.
2. Warm up for ages before attempting penetration - build in routines that are outercourse ie frottage (very good and guy likes it), hand, oral if you like, self stimulation for both if you like.
3. Pschology of guy - they get anxty if they don't know if sex is on the menu or not so tell them asap before or during - I think we can/can't have sex tonight. Once they know they relax much more (either way).
4. Make sure you know the guy's favourite second choice if intercourse is not going to be good.
5. Intercourse is very variable - at some times of the month it is more manageable.
6. If intercourse is very slow or almost stationary then it is much better. Not exactly what a guy expects but there are ways of getting him off (eg squeeze, talk dirty etc) without the movement.
7. Sit on him so you are in control.
8. Boost visual stimuli as you are not keen on highly physical sex.
9. Become a star at BJs - try extras like champagne, ice (put in your mouth first for minute or two then remove) to divert from the fact you are not a star at sex.
10. Can't think of number 10 right now but I'm sure you will..................

Have fun
Put in lidocaine afterwards and lie back and relax the area and the pain will subside much quicker.
Remember that although you hurt or even bleed a little bit during sex (I sometimes got a little blood if sex was too fast) but it is not as if you are going to do yourself any real damage it will heal up again very quickly - so try not to be scared.
I don't know about yours, but my VVA was inflamed entrance to Bartholins glands so it was possible to 'bipass' the pain if sex was very slow, but any pulling would open up the gland entrance and then I would get the burning pain. If I gritted my teeth and took the pain then the pulling (even if very lubricated) would sometimes nick the inflamation so there would be spots of blood or swelling up. (I never identified what was happening till after my diagnosis as I really had no idea where the pain was coming from).
xx

LizLemonny

Posts : 14
Join date : 2012-04-14

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Easier sex? Empty Thanks!

Post  Layla2121 Tue Apr 17, 2012 6:42 pm

Thanks, thats really helped alot. Taking things slowly has made it alot easier and although it still hurts a little its much better since i'm more relaxed than before.
I was wondering aswell if it can get worse? like if you don't try and do anything about it. Because I haven't tried anything since sex is still bearable and its only during penetration that it hurts, but i'm worried that maybe I should....has it gotten worse for you over time? x

Layla2121

Posts : 2
Join date : 2012-04-13

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Easier sex? Empty The pill

Post  xlmc89x Thu Apr 19, 2012 9:00 pm

I would suggest not taking a birth control pill. I know it sucks and makes things a bit more frustrating, but the pill can stop natural hormone production in some women and can make vulvodynia worse. I'd suggest The V Book by Elizabeth Stewart or When Sex Hurts by Irwin and Andrew Goldstein. It can really explain why the pill isn't good for women with this condition. I don't know if it has anything to do with your pain or not but I know it was a huge factor in mine and I was told to stop taking it immediately.

xlmc89x

Posts : 8
Join date : 2012-03-24

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Easier sex? Empty Re: Easier sex?

Post  joanna82 Fri Apr 20, 2012 7:31 am

hello girls,
I was wondering if any of you has tried the lubricant "Yes" and what are your thoughts on it.
Apologies if I'm repeating a topic....

Next month i'm going to see a Gynec in Barcelona, she has writen a few papers on Vulvodynia, I hope she can give more advice than what i received from irish doctors (use cotton nickers and don't use soaps down there.... really?!?!?!?! i didnt know that yet, so helpfull!! and what about sex????)

I'm really frustrated right now, and so is my partner, i dont blame him. Its not only the sex that is bad, is also that i have become this angry lonely woman, i always enjoyed sex, now i dont wnat to even be touched. There's sex on tv, i change the channel. I hate trying new things, i always say no to everything that he proposes... I know it's my head but i dont know how to control it, how to change this mindset. I was reading your post LizLemmony and i was thinking, yeah that sounds good, i could do that! but i know that once i'm there in bed, i'll start getting angry and will stop..... No

joanna82

Posts : 3
Join date : 2011-11-01

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Easier sex? Empty Yep not surprising

Post  LizLemonny Fri Apr 20, 2012 12:14 pm

Hi Layla Hi Joanna

Layla - mine never got worse (got better after I had babies as well).

Joanna - mine is vestibulitis which is not as bad as vulvodynia. So bearing that in mind - at first I didn't get 'angry' because I did not know what was the matter with me and thought it was me or something in my mind - which is what doctors were saying or implying as they could not find anything wrong. So... I had nothing to be angry with. Once I had the diagnosis I did get much, much angrier so I get this.

Also I was lucky to have a very inexperienced partner so he went along with the whole thing and did not feel cheated. When I saw other men they were very put out and although some were cool with the way I needed sex to be I also knew they were thinking this was something they would not have been OK with in a long term relationship. So, again, this is not surprising.

Also I have never had pain-free sex (except as I have described) so have not 'missed' it though often I think about it.

So...... taking it all into consideration..... no wonder you and he are fed up. I think the best way back in is to wait for an occasion where you both want to have sex and agree not to have penetrative sex but explore the other possibilities with an open mind. There are some quite surprising things that guys do seem to like a lot which do not involve penetration. As a result you get turned on by this. It's really not bad.

But also I remember times when we did try having sex and ended up both pissed off as a lot of complex things happen (you don't say that it is hurting; he is trying to find out; he's too busy worrying to enjoy the sex; you are therefore basically faking it; it just gets going then you say you have to stop etc etc). We also had an agreement that we would start sex at the 'last poss minute' so that it was very quick and there was not enough time for me to resent what was happening but I could think about him enjoying it (I could keep this up for a few minutes but then it begins to get alienating).

Good luck in Barcelona!
Liz

LizLemonny

Posts : 14
Join date : 2012-04-14

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