Log in
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Histamine Intolerance
2 posters
Page 1 of 1
Histamine Intolerance
My problems started about 12 years ago with "just" vestibulitis and pain during intercourse. I hit the internet, and basically tried everything most people on here have tried at some point. Nothing really helped.
Early on I realized that some foods made what was always there to some degree worse. The first foods I took care to avoid were soy, wheat bran, and black tea, but still I did not get rid of the always present mild irritation, let alone sudden flare ups. Over time other seemingly random symptoms (burning, itching skin especially on my legs, occasional diarrhea, bladder pain) appeared. This went on until four years ago I read an article on food intolerance in a German online news magazine. Suddenly it all made sense, because I realized that the foods that were giving me the most trouble were all naturally high in histamine, which causes inflammation. The reason that even by avoiding those the irritation never went completely away was that many foods contain histamine to some degree, and histamine content increases as foods age. So one day you eat something without any consequences, while a day later all hell breaks loose. Very confusing. The causes for histamine intolerance are very complex, but basically it all comes down to how much histamine (and other biogenic amines) the body needs to metabolize and how much Diamine oxidase (DAO) it has to do so. DAO is the enzyme necessary neutralize histamine and the other biogenic amines. My body clearly does not make enough DAO, but in general histamine tolerance varies from person to person. Fish poisoning is caused by histamine, so at some point everybody folds.
Since I first figured things out for me things have greatly improved. I take medications (Singulair and Gastrochrom) to keep my body from releasing too much histamine in the first place. I take supplements (high doses of vitamin C, Alpha Lipoic Acid, Quercitin, P5P, Amylase, DAO) to support that. Hydra 7 to keep the mucous membranes moist. And I am on a strict histamine avoidance diet, which is often difficult and frustrating, but only until I consider the alternative.
I realize that the causes for vulvodynia/vestibulitis are many, but also hope that I can help point somebody in the right direction for them. It took me eight long years to figure this out. My gynecologist was supportive, but at a loss. The specialist she sent me to (Dr. Soper at MUSC in Charleston SC) wanted to operate, which might help some, but in my case would not have made any sense. The allergy doctor never even mentioned the possibility, but technically it`s not an allergy. I still think he should have known.
Early on I realized that some foods made what was always there to some degree worse. The first foods I took care to avoid were soy, wheat bran, and black tea, but still I did not get rid of the always present mild irritation, let alone sudden flare ups. Over time other seemingly random symptoms (burning, itching skin especially on my legs, occasional diarrhea, bladder pain) appeared. This went on until four years ago I read an article on food intolerance in a German online news magazine. Suddenly it all made sense, because I realized that the foods that were giving me the most trouble were all naturally high in histamine, which causes inflammation. The reason that even by avoiding those the irritation never went completely away was that many foods contain histamine to some degree, and histamine content increases as foods age. So one day you eat something without any consequences, while a day later all hell breaks loose. Very confusing. The causes for histamine intolerance are very complex, but basically it all comes down to how much histamine (and other biogenic amines) the body needs to metabolize and how much Diamine oxidase (DAO) it has to do so. DAO is the enzyme necessary neutralize histamine and the other biogenic amines. My body clearly does not make enough DAO, but in general histamine tolerance varies from person to person. Fish poisoning is caused by histamine, so at some point everybody folds.
Since I first figured things out for me things have greatly improved. I take medications (Singulair and Gastrochrom) to keep my body from releasing too much histamine in the first place. I take supplements (high doses of vitamin C, Alpha Lipoic Acid, Quercitin, P5P, Amylase, DAO) to support that. Hydra 7 to keep the mucous membranes moist. And I am on a strict histamine avoidance diet, which is often difficult and frustrating, but only until I consider the alternative.
I realize that the causes for vulvodynia/vestibulitis are many, but also hope that I can help point somebody in the right direction for them. It took me eight long years to figure this out. My gynecologist was supportive, but at a loss. The specialist she sent me to (Dr. Soper at MUSC in Charleston SC) wanted to operate, which might help some, but in my case would not have made any sense. The allergy doctor never even mentioned the possibility, but technically it`s not an allergy. I still think he should have known.
Kallista- Posts : 2
Join date : 2012-05-01
Re: Histamine Intolerance
I'm glad you're beginning to solve your mystery! Could you tell me some foods that contain histamine etc? Would be interested to see if this could flare me up too.
penfebruary- Posts : 39
Join date : 2011-12-14
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer