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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


lost and want to help...

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lost and want to help...

Post  Benji on Wed May 02, 2012 5:43 pm

Hi

I've been reading what everyone has posted on here, trying to understand my fiancees condition better. But i am struggling as i feel so helpless.

Basically my fiancee was diagnosed with V early this year, after months if not years of pain. She is amazing but recently has been really low. She suffers from depression and suffering from v obviously has made it worse.

i cant even comprehend what she's going threw and find myself getting frustrated. Not with her you must understand but with the whole condition. i don't know how to help her, i try being supportive but she thinks i don't understand the condition and how she feels. I guess this is why i am hear, to try and research but i don't know where to start.

i know i need to be more calming etc because stress doesn't help what else can i do and how??


Benji

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Re: lost and want to help...

Post  londonlady on Mon Jun 11, 2012 9:27 pm

hi,

really sorry to hear that your partner is feeling low. I'm so impressed that you are looking for ways to help her!

It can make me very low too, especially when it feels like there is nothing that helps, so I think it's important to keep trying things until something helps it.

I don't know what/if she has had any treatment but things I have found helpful:

- amitryptaline to suppress the pain. This is not a long term solution & the side affects were very tough for a month (made me feel like I couldn't think properly and was exhausted) but it has made it possible for me to keep working and doing lots of the things that make me happy, while I work on helping to reduce the pain without medication so I can come off it.

- physiotherapy: I saw a physio who started me off by asking me to gently touch the area around the vagina and just inside it each day. At first it was excruciating but after a couple of weeks I felt that the pain I felt on contact reduced significantly. She said this was de-sensitizing the nerves.

-internal massage: she then recommended that I search for internal trigger points where I felt more pain inside/could feel a muscle knot and massage this very gently for 30 seconds. This also helped a bit.

- I bought this book: Heal Your Pelvis by Physiotherapist amy stein. It includes exercises to lengthen the pelvic floor, relax it and stretch the muscles around it which get tense. I don't think it will cure me but I think it is helping me to relax and to feel like my general pelvic area is less tense and painful.

Then I would recommend finding a physio/chiropractor to help your partner with some professional advice.

take care


londonlady

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Re: lost and want to help...

Post  junobug85 on Mon Sep 03, 2012 5:10 pm

I am impressed too that you took the initiative to try to help her and reach out to other women suffering, can you please read my recent post called Dr. Goldstein! I really think it will be insightful for you and your wife. Best of luck!!

junobug85

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Re: lost and want to help...

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