Log in

I forgot my password

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

lost and want to help...

Go down

lost and want to help...

Post  Benji on Wed May 02, 2012 5:43 pm


I've been reading what everyone has posted on here, trying to understand my fiancees condition better. But i am struggling as i feel so helpless.

Basically my fiancee was diagnosed with V early this year, after months if not years of pain. She is amazing but recently has been really low. She suffers from depression and suffering from v obviously has made it worse.

i cant even comprehend what she's going threw and find myself getting frustrated. Not with her you must understand but with the whole condition. i don't know how to help her, i try being supportive but she thinks i don't understand the condition and how she feels. I guess this is why i am hear, to try and research but i don't know where to start.

i know i need to be more calming etc because stress doesn't help what else can i do and how??


Posts : 1
Join date : 2012-05-02

View user profile

Back to top Go down

Re: lost and want to help...

Post  londonlady on Mon Jun 11, 2012 9:27 pm


really sorry to hear that your partner is feeling low. I'm so impressed that you are looking for ways to help her!

It can make me very low too, especially when it feels like there is nothing that helps, so I think it's important to keep trying things until something helps it.

I don't know what/if she has had any treatment but things I have found helpful:

- amitryptaline to suppress the pain. This is not a long term solution & the side affects were very tough for a month (made me feel like I couldn't think properly and was exhausted) but it has made it possible for me to keep working and doing lots of the things that make me happy, while I work on helping to reduce the pain without medication so I can come off it.

- physiotherapy: I saw a physio who started me off by asking me to gently touch the area around the vagina and just inside it each day. At first it was excruciating but after a couple of weeks I felt that the pain I felt on contact reduced significantly. She said this was de-sensitizing the nerves.

-internal massage: she then recommended that I search for internal trigger points where I felt more pain inside/could feel a muscle knot and massage this very gently for 30 seconds. This also helped a bit.

- I bought this book: Heal Your Pelvis by Physiotherapist amy stein. It includes exercises to lengthen the pelvic floor, relax it and stretch the muscles around it which get tense. I don't think it will cure me but I think it is helping me to relax and to feel like my general pelvic area is less tense and painful.

Then I would recommend finding a physio/chiropractor to help your partner with some professional advice.

take care


Posts : 12
Join date : 2012-05-04

View user profile

Back to top Go down

Re: lost and want to help...

Post  junobug85 on Mon Sep 03, 2012 5:10 pm

I am impressed too that you took the initiative to try to help her and reach out to other women suffering, can you please read my recent post called Dr. Goldstein! I really think it will be insightful for you and your wife. Best of luck!!


Posts : 14
Join date : 2012-04-22

View user profile

Back to top Go down

Re: lost and want to help...

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum