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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


lost and want to help...

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lost and want to help...

Post  Benji on Wed May 02, 2012 5:43 pm

Hi

I've been reading what everyone has posted on here, trying to understand my fiancees condition better. But i am struggling as i feel so helpless.

Basically my fiancee was diagnosed with V early this year, after months if not years of pain. She is amazing but recently has been really low. She suffers from depression and suffering from v obviously has made it worse.

i cant even comprehend what she's going threw and find myself getting frustrated. Not with her you must understand but with the whole condition. i don't know how to help her, i try being supportive but she thinks i don't understand the condition and how she feels. I guess this is why i am hear, to try and research but i don't know where to start.

i know i need to be more calming etc because stress doesn't help what else can i do and how??


Benji

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Re: lost and want to help...

Post  londonlady on Mon Jun 11, 2012 9:27 pm

hi,

really sorry to hear that your partner is feeling low. I'm so impressed that you are looking for ways to help her!

It can make me very low too, especially when it feels like there is nothing that helps, so I think it's important to keep trying things until something helps it.

I don't know what/if she has had any treatment but things I have found helpful:

- amitryptaline to suppress the pain. This is not a long term solution & the side affects were very tough for a month (made me feel like I couldn't think properly and was exhausted) but it has made it possible for me to keep working and doing lots of the things that make me happy, while I work on helping to reduce the pain without medication so I can come off it.

- physiotherapy: I saw a physio who started me off by asking me to gently touch the area around the vagina and just inside it each day. At first it was excruciating but after a couple of weeks I felt that the pain I felt on contact reduced significantly. She said this was de-sensitizing the nerves.

-internal massage: she then recommended that I search for internal trigger points where I felt more pain inside/could feel a muscle knot and massage this very gently for 30 seconds. This also helped a bit.

- I bought this book: Heal Your Pelvis by Physiotherapist amy stein. It includes exercises to lengthen the pelvic floor, relax it and stretch the muscles around it which get tense. I don't think it will cure me but I think it is helping me to relax and to feel like my general pelvic area is less tense and painful.

Then I would recommend finding a physio/chiropractor to help your partner with some professional advice.

take care


londonlady

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Re: lost and want to help...

Post  junobug85 on Mon Sep 03, 2012 5:10 pm

I am impressed too that you took the initiative to try to help her and reach out to other women suffering, can you please read my recent post called Dr. Goldstein! I really think it will be insightful for you and your wife. Best of luck!!

junobug85

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Re: lost and want to help...

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