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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


lost and want to help...

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lost and want to help...

Post  Benji on Wed May 02, 2012 5:43 pm

Hi

I've been reading what everyone has posted on here, trying to understand my fiancees condition better. But i am struggling as i feel so helpless.

Basically my fiancee was diagnosed with V early this year, after months if not years of pain. She is amazing but recently has been really low. She suffers from depression and suffering from v obviously has made it worse.

i cant even comprehend what she's going threw and find myself getting frustrated. Not with her you must understand but with the whole condition. i don't know how to help her, i try being supportive but she thinks i don't understand the condition and how she feels. I guess this is why i am hear, to try and research but i don't know where to start.

i know i need to be more calming etc because stress doesn't help what else can i do and how??


Benji

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Re: lost and want to help...

Post  londonlady on Mon Jun 11, 2012 9:27 pm

hi,

really sorry to hear that your partner is feeling low. I'm so impressed that you are looking for ways to help her!

It can make me very low too, especially when it feels like there is nothing that helps, so I think it's important to keep trying things until something helps it.

I don't know what/if she has had any treatment but things I have found helpful:

- amitryptaline to suppress the pain. This is not a long term solution & the side affects were very tough for a month (made me feel like I couldn't think properly and was exhausted) but it has made it possible for me to keep working and doing lots of the things that make me happy, while I work on helping to reduce the pain without medication so I can come off it.

- physiotherapy: I saw a physio who started me off by asking me to gently touch the area around the vagina and just inside it each day. At first it was excruciating but after a couple of weeks I felt that the pain I felt on contact reduced significantly. She said this was de-sensitizing the nerves.

-internal massage: she then recommended that I search for internal trigger points where I felt more pain inside/could feel a muscle knot and massage this very gently for 30 seconds. This also helped a bit.

- I bought this book: Heal Your Pelvis by Physiotherapist amy stein. It includes exercises to lengthen the pelvic floor, relax it and stretch the muscles around it which get tense. I don't think it will cure me but I think it is helping me to relax and to feel like my general pelvic area is less tense and painful.

Then I would recommend finding a physio/chiropractor to help your partner with some professional advice.

take care


londonlady

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Re: lost and want to help...

Post  junobug85 on Mon Sep 03, 2012 5:10 pm

I am impressed too that you took the initiative to try to help her and reach out to other women suffering, can you please read my recent post called Dr. Goldstein! I really think it will be insightful for you and your wife. Best of luck!!

junobug85

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Re: lost and want to help...

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