Vulvodynia Support
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» Hope to all my suffering ladies
lost and want to help... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
lost and want to help... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
lost and want to help... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
lost and want to help... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
lost and want to help... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
lost and want to help... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
lost and want to help... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
lost and want to help... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
lost and want to help... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


lost and want to help...

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Post  Benji Wed May 02, 2012 5:43 pm

Hi

I've been reading what everyone has posted on here, trying to understand my fiancees condition better. But i am struggling as i feel so helpless.

Basically my fiancee was diagnosed with V early this year, after months if not years of pain. She is amazing but recently has been really low. She suffers from depression and suffering from v obviously has made it worse.

i cant even comprehend what she's going threw and find myself getting frustrated. Not with her you must understand but with the whole condition. i don't know how to help her, i try being supportive but she thinks i don't understand the condition and how she feels. I guess this is why i am hear, to try and research but i don't know where to start.

i know i need to be more calming etc because stress doesn't help what else can i do and how??


Benji

Posts : 1
Join date : 2012-05-02

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Post  londonlady Mon Jun 11, 2012 9:27 pm

hi,

really sorry to hear that your partner is feeling low. I'm so impressed that you are looking for ways to help her!

It can make me very low too, especially when it feels like there is nothing that helps, so I think it's important to keep trying things until something helps it.

I don't know what/if she has had any treatment but things I have found helpful:

- amitryptaline to suppress the pain. This is not a long term solution & the side affects were very tough for a month (made me feel like I couldn't think properly and was exhausted) but it has made it possible for me to keep working and doing lots of the things that make me happy, while I work on helping to reduce the pain without medication so I can come off it.

- physiotherapy: I saw a physio who started me off by asking me to gently touch the area around the vagina and just inside it each day. At first it was excruciating but after a couple of weeks I felt that the pain I felt on contact reduced significantly. She said this was de-sensitizing the nerves.

-internal massage: she then recommended that I search for internal trigger points where I felt more pain inside/could feel a muscle knot and massage this very gently for 30 seconds. This also helped a bit.

- I bought this book: Heal Your Pelvis by Physiotherapist amy stein. It includes exercises to lengthen the pelvic floor, relax it and stretch the muscles around it which get tense. I don't think it will cure me but I think it is helping me to relax and to feel like my general pelvic area is less tense and painful.

Then I would recommend finding a physio/chiropractor to help your partner with some professional advice.

take care


londonlady

Posts : 12
Join date : 2012-05-04

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Post  junobug85 Mon Sep 03, 2012 5:10 pm

I am impressed too that you took the initiative to try to help her and reach out to other women suffering, can you please read my recent post called Dr. Goldstein! I really think it will be insightful for you and your wife. Best of luck!!

junobug85

Posts : 14
Join date : 2012-04-22

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