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» 7 months since the diagnosis
Today at 9:09 am by Gaby

» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
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» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


CHIROPRACTOR CURED MY VULVODYNIA

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CHIROPRACTOR CURED MY VULVODYNIA

Post  ivyrose on Thu May 03, 2012 11:46 pm

Hello. Please read this, I want to help as many women as possible. One thing I have learned over the last 3 yrs suffering from this condition is NOT TO ACCEPT EVERYTHING YOUR DR TELLS YOU.

I posted on here a while ago claiming that I had experienced a large decrease in my provoked pain due to taking baking soda baths. Since then the pain came back with vengeance and I realised I was wrong. The depression hit again. Suddenly, a light bulb went on in my head - I had been bedridden the whole week of my miraculous 'cure' due to having the flu. I started to wonder whether my pain was something to do with my back, as it seemed to decrease to the point of almost disappearing completely when I was lying flat for a long period of time. Then, I remembered something else. Just before the onset of my pain, I had experienced a strange spasming and pain down the left side of my back, left leg, foot and toe. This pain and spasming was on and off and had been going on about 2 months previous but I never saw a doctor about it. Embarrassingly, the pain came to a head one time in the middle of sex when my toe started spasming and then shot out at a right angle, causing excruciating pain to run up and down the inside of my left leg. It was the time I had sex after this that my vulvodynia had started, at first only in the left hand side (then it eventually spread to all over the vulva). But I had completely shrugged this toe thing off until now, not connecting it with the vulvodynia. That's why I never mentioned it before. (also, its a bit embarrassing so I didn't really tell anybody!)

I asked a doctor who was experienced in vulvodynia about whether my problem could stem from these foot spasms, and he shot down the idea before I had even finished explaining it to him and put me on amitriptyline. Didn't even test my blood pressure or anything first. This is a Dr who claims to have been 'treating' women with vul. for 40 yrs, but who admits he has not ever found a definitive cure for any of his patients. Basically when I saw him (feeling completely miserable with and deserted by my body aged 18) he told me that it would be likely I would suffer from the condition my whole life. He didn't exatly sugar coat it and when I left the hospital I burst into tears. I decided I needed to take matters into my own hands.

Through the Vulval Pain Society I heard about a chiropractic group called the McTimoney Group based in the UK, who are carrying out research on whether back problems can cause vulvodynia. I contacted the group and booked an appointment.

My chiropractor identified that my pelvis was incredibly misaligned - the left side more than a centimetre higher than the right. The symptoms such as the spasming and shooting pain I described led her to believe that I had a trapped nerve somewhere in my back, probably caused by this twisted pelvis. When I started the chiropractic treatment, I came off the amitriptyline first to make absolutely sure that it wasn't just the drugs that were dulling my provoked pain. The first few sessions left me in incredible pain afterwards. The spasming that had mysteriously disappeared after the onset of the vulvodynia came back. I tried sex during this time and was forced to discontinue, it was so painful. I was sceptical of the treatment at first and it is certainly pricey.

However, after about seven sessions (a session a week) with the chiropractor sorting out my back and pelvis my pain has gone from about 9/10 to 0.5. It has pretty much disappeared completely and my chiropractor is now certain my vulvodynia was caused by a trapped nerve. She has completely straightened my pelvis and I have responded very well to the treatment. Everything is in the right place now! I will have to visit her intermittently throughout my life to make sure the pain stays away and my back / pelvis doesn't slip back to the way it was, but we are both optimistic that in a few more sessions my pain will have disappeared completely. I am over the moon.

I am now living my life the way I have wanted to for so long. I have a new boyfriend and painful sex is no longer an issue. It feels like a miracle. Manipulation from a chiropractor is all it has taken for me to go from feeling like hot pokers were on my skin during all sexual contact to no pain. I am so happy and relieved, but in a way I also feel quite guilty that I have found a cure when so many women out there are still suffering from this terrible affliction. PLEASE, even if you think it unlikely to be the cause of your pain, go see a chiropractor. It might be the best thing you ever do. The money is worth it, and at the McTimoney practice all patients' case studies will (anonymously) support their research, so you are doing your bit for other women with the condition!

I have an appointment to see my Dr in a few weeks to see 'how the amitriptyline is progressing'. I'm going to give him a piece of my mind. I think that many of the problems with this illness is Drs only want to treat the symptoms and not find the cause. In my opinion this is negligence. Tricyllic antidepressants are not pretty. The ami made me pile on weight and act a bit like a vegetable. Over 2 months after stopping it I am still suffering from terrible insomnia. It is not worth it when there are other methods to actually CURE vulvodynia.

I hope this helps. If anyone would like more information about the McTimoney Group and which particular chiropractor I visit please contact me, I am happy to help.

Good luck!!

PS: I would also like to add that my chiropractor has 2 more success stories where the vulvodynia has completely gone away for her patients. It certainly is very promising.

ivyrose

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Sarah001 on Fri May 04, 2012 12:24 pm

I'm really pleased you're fine now and that you posted this! I keep banging on about misaligned pelvises being behind it for alot of women and I'm sure everyone is ignoring me!! Laughing I too am working on a misaligned unstable pelvis and also find when I have to lay down for a few days my pain goes away completely until I get up and about again so I put that down to it being back and pelvis related. Thank you for the input!
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chiropractor cured my vulvodynia

Post  Sunflower82 on Sat May 05, 2012 4:23 pm

Hi,
Do you mind me asking who you saw? I looked at the research on the vulvar pain society website, it's a little way for me to travel as I'm in Surrey. Thinking that Southampton is the best option for me.


Many thanks

Katie

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  ivyrose on Thu May 17, 2012 9:29 pm

Hello, sorry it's taken me so long to reply! I saw this lady:
http://www.mctimoneychiropractic.org/index.php?option=com_comprofiler&task=userProfile&user=138

She's very good. Best of luck!

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Joanna91 on Sun May 20, 2012 4:55 pm

Hi there! Reading your story there has made me think/hope that this could be exactly what i have! I was diagnosed with vulvodynia about 18 months ago. I was sent to 7 different doctors before being referred to a gynechologist who put me on amitriptyline. Dont feel this helps in the slightest, and if i forget to take it i find it very difficult to get too sleep.
I have suffered with this back problem for a few years, which comes and goes every 2-3 months, but like you were saying the pain goes down my leg. Nobody has every said anything about this maybe being connected!!! i have had an MRI scan which showed i have a nerve sticking out slightly.. I havent had the pain in my back for around 4-5 months now. I would really love to hear more info on what you did!!! I hoping this could be my cure!!!! Sad

Thanks,

Joanna

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  bluekangeroo on Mon Jun 25, 2012 8:29 am

Hey there, just to let you know, I went to see the Chiropractor Ivyrose talks about on Saturday, and it turns out I do have a pelvic misalignment. Which could be the cause of my vulva pain, lower back pain and even my digestive issues!

I am trying not to get too over excited, but potentially if she can just re-align me, all these problems could disappear. She said she has had good success rates so far. It's a new trial in early stages but out of everyone she has seen all but one have been either totally cured or cured to a point where they said if this is as good as it gets then they can live with that.

Fingers are so crossed! Lots of work to do, but I will keep you posted.

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Lms911 on Sat Nov 23, 2013 3:00 pm

I know I'm a bit late, but did any of you ladies have vaginal burning, or was it shooting pains?

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update

Post  bluekangeroo on Mon Nov 25, 2013 11:25 am

Hi there, my pain was/is burning and raw sore - no shooting pains.

I went to see the chiropractor for about 4 months in total and it was helping a bit, but in the end I had to stop as it wasn't the cure I had hoped for and I couldn't keep travelling all the way down to Worthing to see her, it was exhausting and expensive!

I started seeing a local Physio who said I still had a misaligned pelvis 1inch higher on one side than the other! And she has been working for the past year to put it right and strengthen my back and help take the pressure off my pudendal nerve and stop this v pain once and for all.

All sounds very good in theory. However I am still in terrible pain most of the time and unable to have sex or even sit comfortably most of the time. So - sorry - not a huge cure for me. :-(


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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Kathy100 on Mon Nov 25, 2013 2:59 pm

My pain is burning with some prickly shooting pains. I'm currently seeing a physio who specialises in myofascial release and she found that my pelvis was mis-aligned and also that my tailbone was mis-aligned & pointing outwards rather than down. She's re-aligned these and got rid of some knots in my back and stomach. So far my v pain has reduced, stomach pains have gone - the tailbone is still painful though & I have to use a donut cushion to get through the day at work.

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Niknak on Fri Nov 20, 2015 5:55 pm

Hi ladies, ive just come across this post...even though it was a few years ago I thought I would try and get some tips as I'm new to all this vulvodynia...I'm thinking of seeing a chiropractor as I've always been told I have a tilted pelvis so thought it might be worth a shot..surely it can't make things worse? Was there a specific type of chiropractor you need to see? I've never been to one before - thank you

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Chiropractor helped me too!

Post  ouch1234 on Thu Jun 07, 2018 10:13 pm

Hi! Based off of this post and a few others, I went to a chiropractor (just picked the ones with the best Yelp reviews in my city).

Short story: Just had penetrative sex for the first time in two months. Hurt a little, but not much.

Additional info: I've had lower back pain about the same amount of time I've had vulvodynia, so when I read this and other posts about the two being (three days ago) connected I started doing stretches and sleeping on the floor (has always helped my back). This also helped, so I was in slightly better than usual condition when I went to the chiropractor.

Have still had on and off pain during the day (rawness/burning), BUT leading up to this and the stretching I was totally distracted by the pain of the burning/rawness all day. Will continue posting updates.

Last note: The chiropractor said he'd never treated anyone with vulvodynia, but that he saw guys with testicles that hurt all the time, that it was likely the same system.

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  fairlight10 on Sat Jun 23, 2018 6:39 pm

Very interesting reading.I know I have read all of the posts on this site but I didn't make a connection with any of these posts until l hurt my back recently and had a flare up at the same time!

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Re: CHIROPRACTOR CURED MY VULVODYNIA

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