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» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
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» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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CHIROPRACTOR CURED MY VULVODYNIA

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CHIROPRACTOR CURED MY VULVODYNIA

Post  ivyrose on Thu May 03, 2012 11:46 pm

Hello. Please read this, I want to help as many women as possible. One thing I have learned over the last 3 yrs suffering from this condition is NOT TO ACCEPT EVERYTHING YOUR DR TELLS YOU.

I posted on here a while ago claiming that I had experienced a large decrease in my provoked pain due to taking baking soda baths. Since then the pain came back with vengeance and I realised I was wrong. The depression hit again. Suddenly, a light bulb went on in my head - I had been bedridden the whole week of my miraculous 'cure' due to having the flu. I started to wonder whether my pain was something to do with my back, as it seemed to decrease to the point of almost disappearing completely when I was lying flat for a long period of time. Then, I remembered something else. Just before the onset of my pain, I had experienced a strange spasming and pain down the left side of my back, left leg, foot and toe. This pain and spasming was on and off and had been going on about 2 months previous but I never saw a doctor about it. Embarrassingly, the pain came to a head one time in the middle of sex when my toe started spasming and then shot out at a right angle, causing excruciating pain to run up and down the inside of my left leg. It was the time I had sex after this that my vulvodynia had started, at first only in the left hand side (then it eventually spread to all over the vulva). But I had completely shrugged this toe thing off until now, not connecting it with the vulvodynia. That's why I never mentioned it before. (also, its a bit embarrassing so I didn't really tell anybody!)

I asked a doctor who was experienced in vulvodynia about whether my problem could stem from these foot spasms, and he shot down the idea before I had even finished explaining it to him and put me on amitriptyline. Didn't even test my blood pressure or anything first. This is a Dr who claims to have been 'treating' women with vul. for 40 yrs, but who admits he has not ever found a definitive cure for any of his patients. Basically when I saw him (feeling completely miserable with and deserted by my body aged 18) he told me that it would be likely I would suffer from the condition my whole life. He didn't exatly sugar coat it and when I left the hospital I burst into tears. I decided I needed to take matters into my own hands.

Through the Vulval Pain Society I heard about a chiropractic group called the McTimoney Group based in the UK, who are carrying out research on whether back problems can cause vulvodynia. I contacted the group and booked an appointment.

My chiropractor identified that my pelvis was incredibly misaligned - the left side more than a centimetre higher than the right. The symptoms such as the spasming and shooting pain I described led her to believe that I had a trapped nerve somewhere in my back, probably caused by this twisted pelvis. When I started the chiropractic treatment, I came off the amitriptyline first to make absolutely sure that it wasn't just the drugs that were dulling my provoked pain. The first few sessions left me in incredible pain afterwards. The spasming that had mysteriously disappeared after the onset of the vulvodynia came back. I tried sex during this time and was forced to discontinue, it was so painful. I was sceptical of the treatment at first and it is certainly pricey.

However, after about seven sessions (a session a week) with the chiropractor sorting out my back and pelvis my pain has gone from about 9/10 to 0.5. It has pretty much disappeared completely and my chiropractor is now certain my vulvodynia was caused by a trapped nerve. She has completely straightened my pelvis and I have responded very well to the treatment. Everything is in the right place now! I will have to visit her intermittently throughout my life to make sure the pain stays away and my back / pelvis doesn't slip back to the way it was, but we are both optimistic that in a few more sessions my pain will have disappeared completely. I am over the moon.

I am now living my life the way I have wanted to for so long. I have a new boyfriend and painful sex is no longer an issue. It feels like a miracle. Manipulation from a chiropractor is all it has taken for me to go from feeling like hot pokers were on my skin during all sexual contact to no pain. I am so happy and relieved, but in a way I also feel quite guilty that I have found a cure when so many women out there are still suffering from this terrible affliction. PLEASE, even if you think it unlikely to be the cause of your pain, go see a chiropractor. It might be the best thing you ever do. The money is worth it, and at the McTimoney practice all patients' case studies will (anonymously) support their research, so you are doing your bit for other women with the condition!

I have an appointment to see my Dr in a few weeks to see 'how the amitriptyline is progressing'. I'm going to give him a piece of my mind. I think that many of the problems with this illness is Drs only want to treat the symptoms and not find the cause. In my opinion this is negligence. Tricyllic antidepressants are not pretty. The ami made me pile on weight and act a bit like a vegetable. Over 2 months after stopping it I am still suffering from terrible insomnia. It is not worth it when there are other methods to actually CURE vulvodynia.

I hope this helps. If anyone would like more information about the McTimoney Group and which particular chiropractor I visit please contact me, I am happy to help.

Good luck!!

PS: I would also like to add that my chiropractor has 2 more success stories where the vulvodynia has completely gone away for her patients. It certainly is very promising.

ivyrose

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Sarah001 on Fri May 04, 2012 12:24 pm

I'm really pleased you're fine now and that you posted this! I keep banging on about misaligned pelvises being behind it for alot of women and I'm sure everyone is ignoring me!! Laughing I too am working on a misaligned unstable pelvis and also find when I have to lay down for a few days my pain goes away completely until I get up and about again so I put that down to it being back and pelvis related. Thank you for the input!
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chiropractor cured my vulvodynia

Post  Sunflower82 on Sat May 05, 2012 4:23 pm

Hi,
Do you mind me asking who you saw? I looked at the research on the vulvar pain society website, it's a little way for me to travel as I'm in Surrey. Thinking that Southampton is the best option for me.


Many thanks

Katie

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  ivyrose on Thu May 17, 2012 9:29 pm

Hello, sorry it's taken me so long to reply! I saw this lady:
http://www.mctimoneychiropractic.org/index.php?option=com_comprofiler&task=userProfile&user=138

She's very good. Best of luck!

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Joanna91 on Sun May 20, 2012 4:55 pm

Hi there! Reading your story there has made me think/hope that this could be exactly what i have! I was diagnosed with vulvodynia about 18 months ago. I was sent to 7 different doctors before being referred to a gynechologist who put me on amitriptyline. Dont feel this helps in the slightest, and if i forget to take it i find it very difficult to get too sleep.
I have suffered with this back problem for a few years, which comes and goes every 2-3 months, but like you were saying the pain goes down my leg. Nobody has every said anything about this maybe being connected!!! i have had an MRI scan which showed i have a nerve sticking out slightly.. I havent had the pain in my back for around 4-5 months now. I would really love to hear more info on what you did!!! I hoping this could be my cure!!!! Sad

Thanks,

Joanna

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  bluekangeroo on Mon Jun 25, 2012 8:29 am

Hey there, just to let you know, I went to see the Chiropractor Ivyrose talks about on Saturday, and it turns out I do have a pelvic misalignment. Which could be the cause of my vulva pain, lower back pain and even my digestive issues!

I am trying not to get too over excited, but potentially if she can just re-align me, all these problems could disappear. She said she has had good success rates so far. It's a new trial in early stages but out of everyone she has seen all but one have been either totally cured or cured to a point where they said if this is as good as it gets then they can live with that.

Fingers are so crossed! Lots of work to do, but I will keep you posted.

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Lms911 on Sat Nov 23, 2013 3:00 pm

I know I'm a bit late, but did any of you ladies have vaginal burning, or was it shooting pains?

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update

Post  bluekangeroo on Mon Nov 25, 2013 11:25 am

Hi there, my pain was/is burning and raw sore - no shooting pains.

I went to see the chiropractor for about 4 months in total and it was helping a bit, but in the end I had to stop as it wasn't the cure I had hoped for and I couldn't keep travelling all the way down to Worthing to see her, it was exhausting and expensive!

I started seeing a local Physio who said I still had a misaligned pelvis 1inch higher on one side than the other! And she has been working for the past year to put it right and strengthen my back and help take the pressure off my pudendal nerve and stop this v pain once and for all.

All sounds very good in theory. However I am still in terrible pain most of the time and unable to have sex or even sit comfortably most of the time. So - sorry - not a huge cure for me. :-(


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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Kathy100 on Mon Nov 25, 2013 2:59 pm

My pain is burning with some prickly shooting pains. I'm currently seeing a physio who specialises in myofascial release and she found that my pelvis was mis-aligned and also that my tailbone was mis-aligned & pointing outwards rather than down. She's re-aligned these and got rid of some knots in my back and stomach. So far my v pain has reduced, stomach pains have gone - the tailbone is still painful though & I have to use a donut cushion to get through the day at work.

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Re: CHIROPRACTOR CURED MY VULVODYNIA

Post  Niknak on Fri Nov 20, 2015 5:55 pm

Hi ladies, ive just come across this post...even though it was a few years ago I thought I would try and get some tips as I'm new to all this vulvodynia...I'm thinking of seeing a chiropractor as I've always been told I have a tilted pelvis so thought it might be worth a shot..surely it can't make things worse? Was there a specific type of chiropractor you need to see? I've never been to one before - thank you

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Re: CHIROPRACTOR CURED MY VULVODYNIA

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