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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia diagnosis...now what?

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Vulvodynia diagnosis...now what?

Post  Lancslady on Wed Jul 04, 2012 6:13 pm

Hi there all!

I am a newbie here as I have just been diagnosed with Vulvodynia. It has been a long journey, and involved some experiences with consultants who are less than helpful.

Initially I was relieved to finally see a consultant who seemed to believe what I was telling her and actually had a 'name' for what I have been suffering. But now I am in the minefield of information and am not sure what to do or where to turn first. I have been prescribed a low dose of Amitriptyline but I am nervous about taking this due to the side affects, what experiences have any of you had with this? I would appreciate any feedback?

I suffer from pain on touch and therefore intercourse. I have been with my partner for 10 years, and we got married this year, which is fab, but our sex life is suffering due to this condition. I am lucky, he is very helpful and understanding but I just want a normal sex life. I have suffered with this for about 5 years, but it has got increasingly worse in the last 2 years - and it is very draining. I suffer from intense burning and aching after intercourse and at times have an unexplained pelvic ache teamed with stabbing pains at other times - not a result of intercourse.

Do any of you have suggestions for help? I have read about the gels that numb the area etc, how useful is this? We are going on our honeymoon next month and I was really hoping to be able to try and have some form of a normal sex life Smile

Please share you advice with me, I would truly appreciate it! Very Happy


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Re: Vulvodynia diagnosis...now what?

Post  April lily on Wed Jul 04, 2012 8:33 pm

Hi my name is April

I am also fairly new to this forum too but it has been a great help i have gained some really good help, advise and support from it. It just a nice feeling to know that you are not alone feeling this way and can chat and relate to people, it has been very good for me and i really hope it helps you too Smile

I am very similar to you in the symptoms that you have shared.
When i first got diagnosed they started me off on a low dose of Amitriptaline too, i am now taking 75mg. My side affects are very mild i just feel a bit more drowsey at times but it is nothing major. It has controled most of my inner pain whilst having intercorse, it still hurts at times but it has helped the over all pain alot.

I tried the lidocaine 5% gel, i got it prescribed by my Dr. as i have pain out side to even the slightest touch is painful especially around my clitoris area it is awful. It seemed to work for the first few times of using it it really did make a difference, i just appyed it 30 mins before i had intercorse (which isn't very romantic unfortunately it had to be planned! but needs must) So may be give that a try it may work for you and help you.
Although for some reason after a few times of using it it started not to agree with me it felt burning and saw and itchy so i told my Dr. and she gave me a lower percentage i am now using its called Vagisil it has 2% of lidocaine in it, which i find excellent as it helps with soreness and itching after sex too.

Also i use Yes lubricant which i find really good and effective as when i used other lubricants from supermarkets they made me sore and itchy afterwards which wasn't nice.
I buy the disposable applicators which are really handy because it sends the lubricant inside the vagina instead of just around it which i find helps the pain also.
The Yes lubricants are for patients with Vulvodynia it says why it is good for patients etc. on the website we are advised to use the 'water based lubricants' that's what i have and i have had no problem with them i think they are fab!

I hope this has been helpful too you and hopefully some of the products that have helped me will work for you too.

Take Care x

April lily

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Re: Vulvodynia diagnosis...now what?

Post  April lily on Wed Jul 04, 2012 8:34 pm

PS. Here is the link to the Yes lubricant website if you want to have a look Smile http://www.yesyesyes.org

April lily

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Post  Lancslady on Wed Jul 04, 2012 10:30 pm

Hi April

Thank you so much for you reply and the advice you have given me, it is, as you say, comforting to have a place to discuss this horrid condition and know that people understand.

I am certainly going to try the lidocaine gel and the 'yes' lubricant, it seems a good place to start. I still have concerns about the Amitriptaline, but then I suppose I really can't cope with it much longer so maybe I should try anything available.
I really appreciate your help and ideas, having found this forum from the advise of the consultant I now have lots of reading to do to understand how to try and control things, but just knowing that I am not abnormal and not alone in this counts for so much.

Will keep you informed of progress. Very Happy



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Post  blessed on Wed Jul 04, 2012 11:36 pm

Hi there.. after 6 months of unanswered questions and extreme torment, i was diagnosed last week with vulvodynia. the doc said there is no cure, no hope..but he gave me Amitriptaline to try and get some relief. so far its been 4 days and though i have to give it some time to work, its doing a number on the rest of my body. i have terrible headaches, nightmares and i feel drowsy and dizzy during the day though i take it at night...i hope after a while these effects would wear off and the pain would subside.. but time will tell..


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Right there with ya!

Post  jmcmil on Sat Jul 07, 2012 4:00 am

Hey, I take Amitryptaline and it does have some side effects, particularly drowsiness. Give it a few days to get into your system and the side effects should go away. Good luck and we are here to support you!



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Re: Vulvodynia diagnosis...now what?

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