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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Vulvodynia diagnosis...now what?

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Vulvodynia diagnosis...now what?

Post  Lancslady on Wed Jul 04, 2012 6:13 pm

Hi there all!

I am a newbie here as I have just been diagnosed with Vulvodynia. It has been a long journey, and involved some experiences with consultants who are less than helpful.

Initially I was relieved to finally see a consultant who seemed to believe what I was telling her and actually had a 'name' for what I have been suffering. But now I am in the minefield of information and am not sure what to do or where to turn first. I have been prescribed a low dose of Amitriptyline but I am nervous about taking this due to the side affects, what experiences have any of you had with this? I would appreciate any feedback?

I suffer from pain on touch and therefore intercourse. I have been with my partner for 10 years, and we got married this year, which is fab, but our sex life is suffering due to this condition. I am lucky, he is very helpful and understanding but I just want a normal sex life. I have suffered with this for about 5 years, but it has got increasingly worse in the last 2 years - and it is very draining. I suffer from intense burning and aching after intercourse and at times have an unexplained pelvic ache teamed with stabbing pains at other times - not a result of intercourse.

Do any of you have suggestions for help? I have read about the gels that numb the area etc, how useful is this? We are going on our honeymoon next month and I was really hoping to be able to try and have some form of a normal sex life Smile

Please share you advice with me, I would truly appreciate it! Very Happy

Lancslady

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Age : 36

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Re: Vulvodynia diagnosis...now what?

Post  April lily on Wed Jul 04, 2012 8:33 pm

Hi my name is April

I am also fairly new to this forum too but it has been a great help i have gained some really good help, advise and support from it. It just a nice feeling to know that you are not alone feeling this way and can chat and relate to people, it has been very good for me and i really hope it helps you too Smile

I am very similar to you in the symptoms that you have shared.
When i first got diagnosed they started me off on a low dose of Amitriptaline too, i am now taking 75mg. My side affects are very mild i just feel a bit more drowsey at times but it is nothing major. It has controled most of my inner pain whilst having intercorse, it still hurts at times but it has helped the over all pain alot.

I tried the lidocaine 5% gel, i got it prescribed by my Dr. as i have pain out side to even the slightest touch is painful especially around my clitoris area it is awful. It seemed to work for the first few times of using it it really did make a difference, i just appyed it 30 mins before i had intercorse (which isn't very romantic unfortunately it had to be planned! but needs must) So may be give that a try it may work for you and help you.
Although for some reason after a few times of using it it started not to agree with me it felt burning and saw and itchy so i told my Dr. and she gave me a lower percentage i am now using its called Vagisil it has 2% of lidocaine in it, which i find excellent as it helps with soreness and itching after sex too.

Also i use Yes lubricant which i find really good and effective as when i used other lubricants from supermarkets they made me sore and itchy afterwards which wasn't nice.
I buy the disposable applicators which are really handy because it sends the lubricant inside the vagina instead of just around it which i find helps the pain also.
The Yes lubricants are for patients with Vulvodynia it says why it is good for patients etc. on the website we are advised to use the 'water based lubricants' that's what i have and i have had no problem with them i think they are fab!

I hope this has been helpful too you and hopefully some of the products that have helped me will work for you too.

Take Care x

April lily

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Age : 24

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Re: Vulvodynia diagnosis...now what?

Post  April lily on Wed Jul 04, 2012 8:34 pm

PS. Here is the link to the Yes lubricant website if you want to have a look Smile http://www.yesyesyes.org

April lily

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Age : 24

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Thanks

Post  Lancslady on Wed Jul 04, 2012 10:30 pm

Hi April

Thank you so much for you reply and the advice you have given me, it is, as you say, comforting to have a place to discuss this horrid condition and know that people understand.

I am certainly going to try the lidocaine gel and the 'yes' lubricant, it seems a good place to start. I still have concerns about the Amitriptaline, but then I suppose I really can't cope with it much longer so maybe I should try anything available.
I really appreciate your help and ideas, having found this forum from the advise of the consultant I now have lots of reading to do to understand how to try and control things, but just knowing that I am not abnormal and not alone in this counts for so much.

Will keep you informed of progress. Very Happy

x

Lancslady

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Age : 36

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Amitriptaline

Post  blessed on Wed Jul 04, 2012 11:36 pm

Hi there.. after 6 months of unanswered questions and extreme torment, i was diagnosed last week with vulvodynia. the doc said there is no cure, no hope..but he gave me Amitriptaline to try and get some relief. so far its been 4 days and though i have to give it some time to work, its doing a number on the rest of my body. i have terrible headaches, nightmares and i feel drowsy and dizzy during the day though i take it at night...i hope after a while these effects would wear off and the pain would subside.. but time will tell..

blessed

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Right there with ya!

Post  jmcmil on Sat Jul 07, 2012 4:00 am

Hey, I take Amitryptaline and it does have some side effects, particularly drowsiness. Give it a few days to get into your system and the side effects should go away. Good luck and we are here to support you!

Jackie

jmcmil

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Re: Vulvodynia diagnosis...now what?

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