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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Pudendal Nerve Injection
2 posters
Page 1 of 1
Pudendal Nerve Injection
Hello all you girls sitting on ice packs *waving*, I finally found a pain specialist who would see me. I had made countless phone calls to pain specialists in the past and all of them turned me away. I had given up on the pain specialists but then the other day I got a wild hair and decided to try calling them again. Finally found one. Saw them today and they set up an apt. for Wed. to have a Pudendal Nerve Injection done in the vagina area. Actually its two injections. Im a bit nervous of the unknown so Im going to have them load me up with some good old fashioned sedating med.
Im trying hard not to get too excited or to become too hopeful because in the past I have only been let down. But at least this is something new for me. Keep your fingers and legs crossed for me girls. I will let you know if it works and how it went.
Im trying hard not to get too excited or to become too hopeful because in the past I have only been let down. But at least this is something new for me. Keep your fingers and legs crossed for me girls. I will let you know if it works and how it went.
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
Re: Pudendal Nerve Injection
Best wishes to you, hope it helps! It pays to be persistent - such a shame that we have the additional burden of having to fight so hard just to get treatment - as if the pain itself wasn't enough of a curse!
toosore- Posts : 18
Join date : 2012-06-18
Location : Vancouver
re-Pudendal nerve inj.
The injection went well but I was numb from my butt all the way down to my toes. So I couldn't walk too well. Getting a second one done in two weeks and after that I have a follow up apt to discuss whether or not burning the nerves will help. I just hope that if they burn the nerves my legs will still work.
After reading a few threads about Pudendal Nerve entrapment, then reading about Pudendal Nerve blocks and being in pain for so long, I have a theory. A year and a half ago I started getting the burning sensation. The gyno did a biopsy and the diag. was Lichen Simplex Chronicus. The burning pain was located in my vulva area, about the size of a quarter. As time passed my burning pain got worse so I started sitting in an awkward position, hips tilted forward and slouching to take the pressure off of my vulva area. Then after months of sitting like that, my burning pain spread out to my pubic hair area, then up to the top of my clitoris, down my butt cheeks and now to my inner thighs. All my Gynos said it must be nerve related. AHA, yes, it is nerve related but I dont think its necessarily from the LSC, I think the burning/pain spread because of the way I was sitting and then in turn trapped the Pudendal nerve. So now I actually have two problems, LSC and trapped Pudendal nerves. I will have to have both treated separately by different kinds of Dr.'s. So thats my theory.
After reading a few threads about Pudendal Nerve entrapment, then reading about Pudendal Nerve blocks and being in pain for so long, I have a theory. A year and a half ago I started getting the burning sensation. The gyno did a biopsy and the diag. was Lichen Simplex Chronicus. The burning pain was located in my vulva area, about the size of a quarter. As time passed my burning pain got worse so I started sitting in an awkward position, hips tilted forward and slouching to take the pressure off of my vulva area. Then after months of sitting like that, my burning pain spread out to my pubic hair area, then up to the top of my clitoris, down my butt cheeks and now to my inner thighs. All my Gynos said it must be nerve related. AHA, yes, it is nerve related but I dont think its necessarily from the LSC, I think the burning/pain spread because of the way I was sitting and then in turn trapped the Pudendal nerve. So now I actually have two problems, LSC and trapped Pudendal nerves. I will have to have both treated separately by different kinds of Dr.'s. So thats my theory.
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer