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Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Recently diagnosed :(

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Recently diagnosed :(

Post  d_self23 on Mon Aug 27, 2012 9:34 pm

Hello everyone,

I was diagnosed with Vulvodynia 4 weeks ago. I am in a relationship of 5 years and have never been able to have sex without being in pain. For a while I put up with it but this past year I decided enough is enough and went to a clinic. My main symptom is itchiness and painful sex - it drives me crazy. After many doctors telling me I had thrush and it never going away I seeked more advice from a sexual health clinic. Since the beginning of the year I have been going back and forth to this clinic trying out different steroid creams and treatments until the lady referred me to the hospital to see another specialist.

I saw them 4 weeks ago and was diagnosed with Vulvodynia. I was devastated, still am. They specialist told me to try and remain positive and build up my confidence using dilators. I have been working through the different sizes trying to get comfortable with the pain. I am finding it really hard.

My boyfriend is really understanding and I am extremely grateful for his support. We haven't have sex in a while and to be honest I prefer it this way because I don't have to go through the pain. It really upsets me because I wish I wasn't like this, I just want to be normal and to have a normal sex life..

Does any one else suffer from regular itching? It's really getting me down and I am struggling to find a cream/treatment to calm it down. I have changed my washing powder, I have changed all my soaps, I don't wear tight clothing - I have done everything the doctors have told me to and I am still itchy and uncomfortable. Has any one got any advice/suggestions on this?

Thanks for listening Smile

d_self23

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Join date : 2012-08-27

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Re: Recently diagnosed :(

Post  ilovebaxter1 on Thu Aug 30, 2012 1:23 am

hi there! i'm sorry about everything youve been going through:(. i also am kind of new to all this when last summer i randomly became very itchy and irritated down there. I have been seeing a specialist and she noticed i had inflamed skin so i've been on steriod cream for about a year now...she said my nerve endings became sensitive to the inflammation so now i've been trying different medications to treat the nerve endings but nothing works so far im still itchy Sad


Has your doctor suggested lidocaine? it's a numbing cream it really helps so much with the itching. I only use it once a day and i barely get bothered by my irritation/itching! I thought i was the only one with itching/irritation.

ilovebaxter1

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Age : 26
Location : Boston

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