Pudendal Nerve RFA

So I had the Pudendal Nerve Ablation over a month ago. The Dr.s told me that my pain would worsen for a month and then get better. I'm still waiting for the *better* part. I will give it one more month and if I don't feel any improvement then I will be back to square one. My pain specialists said that there were other things they could try. Can't wait to see what other torture they will put me through. I'm sssoooo tired of getting my hopes up and then being let down. This always happens.

What procedures have you ladies tried? Surgeries? I've already tried every med., lotion, jell, ointment, pill, oil, etc.

I hear you- I've had about 50 gyno appointments. It's an infection here take an antibiotic, its this its that, here try this topical. The one thing that helped for about a month was a compound of 1 antideprassant, 1 nerve thing and lidocaine. It helped but than Bam right back to square one. I have lidocaine patches that relieve the pain, tried accupuncture that just takes the initial annoyance off (I couldn't think of a better word) and now I'm facing a vestibulectomy. My entire vag feels like its on fire, and I just can't take it anymore. Kill me. I hope this is the best thing for me though because nothing else has worked for me. After the topical wore off it came back with a venegance OMG i Feel horrible (and of course I had a pelvic yesterday so that def didn't help). It's amazing how one spot feels like your entire hooha. That being said just because something didn't work for someone else does NOT mean it wont work for you. I always have to keep telling myself that and of course a positive attitude helps. But be open to anything and everything and remember they have seen this before more than likely and you arent the first or the last!! Oh, and I had a huge fear of going on antidepressants because of the negative affects. They can put it in a cream and allow you to put it on topically so that's awesome.

What exactly is prudenital nerve? they said with a vestibulectomy that dispite the surgery pain it wouldnt be so bad.

Hello Alana, Have you tried Lyrica yet? Lyrica took my pain completely away.....for about two months and then it came back. Those two months were Heaven. I still take it regularly, sometimes it takes the edge off and sometimes it does nothing except make me feel like Im in La La Land. Also, have you tried Amitryptaline ointment? It numbs the area, which is nice, but doesn't last long and it doesn't stop the burning of my butt cheeks or inner thighs. I would need a gallon of the stuff so that I could cover my entire ass with it. haha A bit of humor.

The Pudendal nerve runs from your buttox, inner thighs and vulva areas. A Pudendal Ablation is where they burn the ends of the Pudendal nerve which is supposed to stop the pain.

After reading many posts I have a theory. I have Lichen Simplex Chronicus which is the thickening of the vulva skin. The LSC only covers a small area, only about the size of a nickel. Yet I have burning pain in the entire Perineum region. When I was first diagnosed with LSC the pain was only in a small area. It hurt to sit, so I started sitting at a funny angle. I sit back on my tail bone area so that I don't put as much pressure on my vulva area. After sitting like that for many months my burning pain started to spread. So I believe that my Pudendal nerve is being affected by the way I sit. So I think thats why the pain has spread outwards.

As for meds and ointments that I use now, I use A and D ointment all day, pro B tablets, Amitryptaline ointment twice a day, Lyrica twice a day and sometimes I will throw in a pain med. in hopes that it will help. *rolling eyes* I have also asked my Dr. to prescribe Fluconozole(sp) because I get yeast infects all the time.

So do you have an apt. to get the vestibulectomy done? If you get it done, let us know how your doing. Good luck to you

Thanks! Yeah I have Gabapentin lidocaine and that amiwhatever drug doesn't help (it did at first tho) im just sick of it helping for 2 months and coming back or it coming back really strong with my period. I want it gone! I never heard of that sounds like it could work (hopefully!) Yeah I have an appointment Dec 5. I just spoke to my therapist and she said I have a good doc for this I really hope so! Ok and what's lsc? Ugh more horror stories?!

LSC is Lichen Simplex Chronicus vulva. Its thickening of the skin on the vulva area. I've had two biopsies done and both confirmed it. There is no cure, only useless treatments. It causes burning pain in the vulva area, buttocks and inner thighs. So its a lot like Vulvodynia. As a matter of fact, my Dr.s sometimes will call it Vulvodynia. I believe that Vulvodynia is more of a description of the pain, redness, swelling, etc. But I'm not sure about that, so don't quote me.

Ugh I sometimes get shooting pains throughout my vag even tho I technically only have it one spot it feels like everything is on fire it sucks! I can't imagine that at all can you do surgery for it too or no?

There are surgeries that can be done but they are pretty evasive. They can go in and remove the nerves in the vulva area. I guess it can cause all kinds of awful side effects and can be disfiguring. If I have tried everything and nothing else works, then I will have no choice but to have surgery done.

Good luck on your surgery. I hope it works

Yeah, I'm scared that my surgery will disfigure me!!! Terrified of that what kind of side effects? is it similar to a vestibulectomy or worse? ugh

I'm not sure what all of the side effects are. My Gyno started to tell me and I had her stop after she told me only one. The one that she told me scared me enough to wait until I have totally exhausted my search for relief. She said that my vagina could close up completely. Like the sides grow together. So, that sent me running for the hills.

excuse the french, but what the fuck?! omg I'd freak the hell out!!!
Can that happen with a vestibulectomy too?! OMG OMG OMG OMG!!!! now you have my freaking out!

Alana hun, I'm so sorry. I didn't mean to freak you out. I'm sure that its very rare for that to happen. So if I were you I wouldn't worry too much about that happening. Its prob. best if you talk to your Dr. about all the side effects and their percentages of them actually happening. Then also talk to him about the percentages of the surgery working. I'm sure the percentage of the surgery working is very high. Other wise they wouldn't even attempt it. hugs

haha no you're fine that just sounds horrible! and i actually didn't realize I was talking to you in the other forum (I'm in so many chats I forget who's where sorry!!!). yeah, I know, right now I'm on my period, cant of course use a tampon, the f'ing pad is rubbing me wrong and I just want to rip my vagina off and grow a penis. Why can't men suffer AT ALL! Yeah, if there's a chance my vagina can close up f that, how does that even work? OMG! ughhhh stupid doctors