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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Does anyone get relief at night after going to bed?
5 posters
Page 1 of 1
Does anyone get relief at night after going to bed?
I take my shower, since well down there with warm water, no soap. Take a Xanax and go to bed. Most of the time during the night my pain/burning goes away but starts back up within about an hour after being up.
Does anyone else experience this? I started neurontin last Friday but no relief as of now. The burning gets worse during the day and it feels like it swells and my labia start hanging down and I can feel it and it's disgusting.
So glad I found this site, so I can vent to people who know what I'm talking about.
I'm sick sick sick of this.
Does anyone else experience this? I started neurontin last Friday but no relief as of now. The burning gets worse during the day and it feels like it swells and my labia start hanging down and I can feel it and it's disgusting.
So glad I found this site, so I can vent to people who know what I'm talking about.
I'm sick sick sick of this.
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: Does anyone get relief at night after going to bed?
Its on and off for me, Sometimes its milder but not as bad as during the day and YES, an hour after getting up its THERE, or if I go to the bathroom it starts up right after. I have just started Amiltripline Orally, low dose, havent seen any improvement yet.
KRISTIMEZYK- Posts : 3
Join date : 2013-01-08
Re: Does anyone get relief at night after going to bed?
Well yeah you're sleeping with very little movement of course it would feel better. You're resting it not moving around nothings rubbing or putting pressure on it. And if you're taking Xanax it's relaxing you so more than likely relaxing it as well...
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Does anyone get relief at night after going to bed?
Laying down helps me immensely, it gives my muscles a chance to let go for a while and I have minimal pain first thing in the morning but as soon as I haul my dysfunctional body out of bed all hell breaks loose!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Does anyone get relief at night after going to bed?
Yes! I get a huge relief after bedtime from my symptoms. And like you, about after an hour after getting up and moving around, symptoms rear their ugly heads again. I was just diagnosed this month after starting symptoms in Sept.2012. Vulvodynia is a miserable thing to have that I wouldn't wish on my worst enemy. It's starting to play on my mental health and affects my family as well, as I am unable to do a lot of things that I used to do...things that are a normal part of life....things like walking the dog, playing outside with my kids, and grocery shopping....all make my symptoms go nuts. I hate this and pray the physical therapy my doctor has set up for me works. We'll see. From the countless comments on this site, it looks pretty helpless.
cayire- Posts : 6
Join date : 2013-01-15
Re: Does anyone get relief at night after going to bed?
Well part of a cure is to have a good outlook you can't say something is helpless if you haven't tried. I was able to have sex after my therapy and it worked wonders for me. But I absolutely refuse to let it get the upper hand. That doesn't mean I don't get upset because I do but you really need to try being positive because everyone responds differently. I loved my therapist you don't realize how knotted you are and they get them to relax and you feel good just make sure to keep up with your exercises and do what they tell you. Good luck hope you feel better!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Does anyone get relief at night after going to bed?
You are right about the postive thinking. It's something I definitely have to work at with this every day. I guess for me, I'm just fed up with my symptoms keeping me from living my life and when I posted yesterday, it was a particularly rough day. I know I can't let it get the best of me though. I am learning that with this, there are so many ups and downs. I had my first physical therapy session today and felt hope for the first time in months. Thank you for your positive words. Good luck to you as well!
cayire- Posts : 6
Join date : 2013-01-15
Re: Does anyone get relief at night after going to bed?
Keep up with your physical therapy and do EVERYTHING they tell you to do, I think you will be strangely surprised- I was able to have sex with my therapist, and that was before my surgery! So I think you will have positive results as well! Just don't be so hard on yourself, one day at a time, do you workout at all? I found that going to the gym, horseback riding (I have a horse), yoga and such really do help you with a more positive outlook- check with your physical therapist before you do it, but mine was like the best thing for you is to keep active (but I say check because I know everyone is different). And on top of relaxing my mind, it puts me in a way better mindset throughout my day. I go to the gym in the morning 3 days a week and over the weekend and ride 3 days a week and seriously it helps, even with just a better outlook I think you'll be strangely surprised at what the v can't touch (and with a better outlook I think you're able to do more because than you have a "yes, I can" attitude instead of a blah no, I can't). Let me know if any of this helps you!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Does anyone get relief at night after going to bed?
Ok I did NOT have sex with my therapist, but sex under her care with my boyfriend I just realized how bad that sounded lol
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Does anyone get relief at night after going to bed?
Hey Alana, I will definitely keep up with the physical therapy. I really like the PT lady I've been assigned to. She is very positive about this and says it is very treatable, which was music to my ears. I was thinking of trying some yoga, and in the meantime I have some stretches to work on at home that the physical therapist showed me. As of right now, I wish I could do more physically, but even walking my dog makes the vulvodynia flare up BAD...like having to sit on the couch for the rest of the day with an icepack in between my legs=( . I look forward to the day that I can get back to doing more without flare ups.
Thank you so much for your tips and words of encouragement. This forum is my only outlet for this, since no one I know has ever experienced this or even heard of it.
Take care! Thanks!
Thank you so much for your tips and words of encouragement. This forum is my only outlet for this, since no one I know has ever experienced this or even heard of it.
Take care! Thanks!
cayire- Posts : 6
Join date : 2013-01-15
Re: Does anyone get relief at night after going to bed?
I'm burning....................................... The neurontin started giving me some relief and then my face turned beet red and rough. So I finally found something on the net that it could be the neurontin so I quit taking it two nights ago and I'm ready to eat a bullet. why does life have to suck so?
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer