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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Flare, Flare go away!

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Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 2:31 pm

So i'm currently about 1 month into a flare from hell and i'm so down about it. I was pain free for 3 years with no medication, no creams, NOTHING! and now my V is back with a vengeance. I'm so frustrated and my doctor just prescribed me lidocaine (which i find makes me burn more) JUST GREAT! On top of that I am using valium suppositories which are messy and not too helpful at the moment. She also gave me a referral to start PT but i'm currently finishing up a semester in school and have no time! When can we all be freed from this awful problem? Doctors need to step up their game because so many women are suffering and left with very little successful treatment options. I have generalized V which probably means I am not a candidate for surgery but you better believe I would attempt it to get out of this agony. Well wishes to all my fellow ladies here in the middle of a flare curled up in bed like me.

ringostarr26

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Re: Flare, Flare go away!

Post  Alana3 on Sat Mar 30, 2013 2:58 pm

Mine came back after a little while too but I did have the surgery after it came.back. Be patient it might be ok again too but I hear you this deal sucks Sad

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Re: Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 4:42 pm

did you have provoked V or generalized? I think the surgery is more successful in those with provoked which is not my case Crying or Very sad

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Re: Flare, Flare go away!

Post  Alana3 on Tue Apr 02, 2013 8:13 pm

Sorry I didn't see this until now, yeah, it was provoked thank god.

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Re: Flare, Flare go away!

Post  drcritten on Sat Jul 27, 2013 7:10 pm

I am in same boat. Was pain free for 6 years. I'm into my second month of bad flare. First it was deep vaginal burning. That stopped, but now its clitoral pain and burn. I've been in bed for 2 days with icepack. I'm feeling helpless, sadness and want it all to end. I feel alone, I have no health insurance until 3 more weeks. I just want to cry til I can't cry anymore.

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Re: Flare, Flare go away!

Post  drcritten on Mon Jul 29, 2013 2:42 am

Well back from the ER. Pain was too much to handle. Doc put me on topamax. Let's see how this works. I just ask for the strength to make it through my work week.

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Re: Flare, Flare go away!

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