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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Flare, Flare go away!

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Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 2:31 pm

So i'm currently about 1 month into a flare from hell and i'm so down about it. I was pain free for 3 years with no medication, no creams, NOTHING! and now my V is back with a vengeance. I'm so frustrated and my doctor just prescribed me lidocaine (which i find makes me burn more) JUST GREAT! On top of that I am using valium suppositories which are messy and not too helpful at the moment. She also gave me a referral to start PT but i'm currently finishing up a semester in school and have no time! When can we all be freed from this awful problem? Doctors need to step up their game because so many women are suffering and left with very little successful treatment options. I have generalized V which probably means I am not a candidate for surgery but you better believe I would attempt it to get out of this agony. Well wishes to all my fellow ladies here in the middle of a flare curled up in bed like me.

ringostarr26

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Re: Flare, Flare go away!

Post  Alana3 on Sat Mar 30, 2013 2:58 pm

Mine came back after a little while too but I did have the surgery after it came.back. Be patient it might be ok again too but I hear you this deal sucks Sad

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Re: Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 4:42 pm

did you have provoked V or generalized? I think the surgery is more successful in those with provoked which is not my case Crying or Very sad

ringostarr26

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Re: Flare, Flare go away!

Post  Alana3 on Tue Apr 02, 2013 8:13 pm

Sorry I didn't see this until now, yeah, it was provoked thank god.

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Re: Flare, Flare go away!

Post  drcritten on Sat Jul 27, 2013 7:10 pm

I am in same boat. Was pain free for 6 years. I'm into my second month of bad flare. First it was deep vaginal burning. That stopped, but now its clitoral pain and burn. I've been in bed for 2 days with icepack. I'm feeling helpless, sadness and want it all to end. I feel alone, I have no health insurance until 3 more weeks. I just want to cry til I can't cry anymore.

drcritten

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Re: Flare, Flare go away!

Post  drcritten on Mon Jul 29, 2013 2:42 am

Well back from the ER. Pain was too much to handle. Doc put me on topamax. Let's see how this works. I just ask for the strength to make it through my work week.

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Re: Flare, Flare go away!

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