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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Flare, Flare go away!

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Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 2:31 pm

So i'm currently about 1 month into a flare from hell and i'm so down about it. I was pain free for 3 years with no medication, no creams, NOTHING! and now my V is back with a vengeance. I'm so frustrated and my doctor just prescribed me lidocaine (which i find makes me burn more) JUST GREAT! On top of that I am using valium suppositories which are messy and not too helpful at the moment. She also gave me a referral to start PT but i'm currently finishing up a semester in school and have no time! When can we all be freed from this awful problem? Doctors need to step up their game because so many women are suffering and left with very little successful treatment options. I have generalized V which probably means I am not a candidate for surgery but you better believe I would attempt it to get out of this agony. Well wishes to all my fellow ladies here in the middle of a flare curled up in bed like me.

ringostarr26

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Re: Flare, Flare go away!

Post  Alana3 on Sat Mar 30, 2013 2:58 pm

Mine came back after a little while too but I did have the surgery after it came.back. Be patient it might be ok again too but I hear you this deal sucks Sad

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Re: Flare, Flare go away!

Post  ringostarr26 on Sat Mar 30, 2013 4:42 pm

did you have provoked V or generalized? I think the surgery is more successful in those with provoked which is not my case Crying or Very sad

ringostarr26

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Re: Flare, Flare go away!

Post  Alana3 on Tue Apr 02, 2013 8:13 pm

Sorry I didn't see this until now, yeah, it was provoked thank god.

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Re: Flare, Flare go away!

Post  drcritten on Sat Jul 27, 2013 7:10 pm

I am in same boat. Was pain free for 6 years. I'm into my second month of bad flare. First it was deep vaginal burning. That stopped, but now its clitoral pain and burn. I've been in bed for 2 days with icepack. I'm feeling helpless, sadness and want it all to end. I feel alone, I have no health insurance until 3 more weeks. I just want to cry til I can't cry anymore.

drcritten

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Re: Flare, Flare go away!

Post  drcritten on Mon Jul 29, 2013 2:42 am

Well back from the ER. Pain was too much to handle. Doc put me on topamax. Let's see how this works. I just ask for the strength to make it through my work week.

drcritten

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Re: Flare, Flare go away!

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