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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


If this will help anyone...My triggers

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If this will help anyone...My triggers

Post  Rainy Day on Mon May 06, 2013 9:00 pm

I developed vulvodynia in Feb 2012 after 1) a massive kidney infection 2) Then, I got a bacterial/yeast infection from the antiobiotics, 3) I fell on my pelvis the same month. After a year of this garbage, I finally figured out what my trigger is. It's totally STRESS related. Anytime I have an anxiety attack, or if I get extremely angry, I flare. For some reason, sadness doesn't flare me though. When it first started, I had a flare that lasted 6 straight months- hardly considered a flare since it was constant 24 hrs a day. My symptoms caused me not to be able to wear undies or pants AT ALL. Only skirts. When it started, I had just lost my dad to cancer and mom got diagnosed with cancer shortly after he died. They were 59, so it was all unexpected and happened fast. I was so bad that I even couldn't sit over a few minutes. My legs were the worst symtom. The backs of the legs just burned and burned. My vagina area was very sensitive too, but the legs bothered me more.

I tried Gabapentin for a while...and it worked great until my mom was diagnosed with cancer. I didn't completely understand it was triggered by stress at that point. Upped my Rx of Gaba, and it didn't help...mom was going through surgery, radiation, etc...was still VERY stressed. Changed my Rx to Desapramine 75 mg and 300 mg of Gaba too. Slowly I started to improve, but my biggest improvement was when I took a leave of absense from work for about 4 months. My mom helped me/hubby during those 4 months by holding my daycare spot (paying for it) and paying for Pelvic Floor Therapy (not covered insurance--out of network). Slowly got better. I still have flares, but they are only caused by stress. Am now taking anxiety meds to prevent anxiety. Works pretty good, but my life is still pretty stressful with other stuff.

I have got to the point where I can gradually lower my dosages and still not flare. I am down to 75 mg of Desapramine only. Will try going down a dose in a month.

Other things that help my symptoms:

Yoga

Meditation

Counselling (I went through counselling on my dad's death for about 5 months)

Anxiety Medications

Moisturizer for vagina (Slippery Stuff) when I feel dry (I get dry at the start of a flare)

When I feel like ants are crawling around my vagina or butt--Rub the area with a rag to desensitize, then, ice cubes on area for 1 minute, I rub with a rag for 1 minute, then do ice cubes on area, then hot rag on area. I read this in Amy Stein's pelvic book...and my phsyio recommended it too. It helps a LOT when you feel the ant crawling thing.

When I have the symptom around 'butt' area, that is totally related to a muscle on top of my sit bones. Physio can fix that in about 24 hours by massaging it...then I do the rub with rag, then ice, then hot rag. Also, I do a lot of stretches to help this.

Tens unit- This is helpful with the 'ant crawling' feeling. Not as helpful for the burning feeling.

RIght when I start flaring, stop wearing undies/pants.

I don't put 'anything' down there...besides moisturizer. Everything else makes me worst.

I am still not recovered, but I am much closer to figuring out this beast. I have times where I feel perfect. I think I could wear jeans sometime in the future if I could control my stress.

I hope this helps someone....





Rainy Day

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Ice/Heat

Post  Rainy Day on Mon May 06, 2013 9:02 pm

Realized I wrote that wrong. I use rag for a minute on area. Then, ice cube on area for a minute, then hot rag on area for a minute. This helps desensitize areas for me.

Rainy Day

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Forgot Physical Therapy too!

Post  Rainy Day on Mon May 06, 2013 9:12 pm

Physio was a must for me! I still go once every 3 weeks to maintain my healing. I get sacro-iliac joint dysfunction during a flare, and therapy helps TONS with that. When I first started going, all my muscles were in a state of constant spasm. I would think most people with V would have that problem...since one problem causes many other problems with the pelvic area.

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Ants crawling

Post  noelle2530 on Mon Jul 14, 2014 1:46 pm

Hi I am new to this site and everything else and I get that feeling like bugs are crawling around down there too... Is this a common symptom?

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Re: If this will help anyone...My triggers

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