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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

If this will help anyone...My triggers

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If this will help anyone...My triggers

Post  Rainy Day on Mon May 06, 2013 9:00 pm

I developed vulvodynia in Feb 2012 after 1) a massive kidney infection 2) Then, I got a bacterial/yeast infection from the antiobiotics, 3) I fell on my pelvis the same month. After a year of this garbage, I finally figured out what my trigger is. It's totally STRESS related. Anytime I have an anxiety attack, or if I get extremely angry, I flare. For some reason, sadness doesn't flare me though. When it first started, I had a flare that lasted 6 straight months- hardly considered a flare since it was constant 24 hrs a day. My symptoms caused me not to be able to wear undies or pants AT ALL. Only skirts. When it started, I had just lost my dad to cancer and mom got diagnosed with cancer shortly after he died. They were 59, so it was all unexpected and happened fast. I was so bad that I even couldn't sit over a few minutes. My legs were the worst symtom. The backs of the legs just burned and burned. My vagina area was very sensitive too, but the legs bothered me more.

I tried Gabapentin for a while...and it worked great until my mom was diagnosed with cancer. I didn't completely understand it was triggered by stress at that point. Upped my Rx of Gaba, and it didn't help...mom was going through surgery, radiation, etc...was still VERY stressed. Changed my Rx to Desapramine 75 mg and 300 mg of Gaba too. Slowly I started to improve, but my biggest improvement was when I took a leave of absense from work for about 4 months. My mom helped me/hubby during those 4 months by holding my daycare spot (paying for it) and paying for Pelvic Floor Therapy (not covered insurance--out of network). Slowly got better. I still have flares, but they are only caused by stress. Am now taking anxiety meds to prevent anxiety. Works pretty good, but my life is still pretty stressful with other stuff.

I have got to the point where I can gradually lower my dosages and still not flare. I am down to 75 mg of Desapramine only. Will try going down a dose in a month.

Other things that help my symptoms:



Counselling (I went through counselling on my dad's death for about 5 months)

Anxiety Medications

Moisturizer for vagina (Slippery Stuff) when I feel dry (I get dry at the start of a flare)

When I feel like ants are crawling around my vagina or butt--Rub the area with a rag to desensitize, then, ice cubes on area for 1 minute, I rub with a rag for 1 minute, then do ice cubes on area, then hot rag on area. I read this in Amy Stein's pelvic book...and my phsyio recommended it too. It helps a LOT when you feel the ant crawling thing.

When I have the symptom around 'butt' area, that is totally related to a muscle on top of my sit bones. Physio can fix that in about 24 hours by massaging it...then I do the rub with rag, then ice, then hot rag. Also, I do a lot of stretches to help this.

Tens unit- This is helpful with the 'ant crawling' feeling. Not as helpful for the burning feeling.

RIght when I start flaring, stop wearing undies/pants.

I don't put 'anything' down there...besides moisturizer. Everything else makes me worst.

I am still not recovered, but I am much closer to figuring out this beast. I have times where I feel perfect. I think I could wear jeans sometime in the future if I could control my stress.

I hope this helps someone....

Rainy Day

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Join date : 2012-07-19
Location : US

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Post  Rainy Day on Mon May 06, 2013 9:02 pm

Realized I wrote that wrong. I use rag for a minute on area. Then, ice cube on area for a minute, then hot rag on area for a minute. This helps desensitize areas for me.

Rainy Day

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Forgot Physical Therapy too!

Post  Rainy Day on Mon May 06, 2013 9:12 pm

Physio was a must for me! I still go once every 3 weeks to maintain my healing. I get sacro-iliac joint dysfunction during a flare, and therapy helps TONS with that. When I first started going, all my muscles were in a state of constant spasm. I would think most people with V would have that problem...since one problem causes many other problems with the pelvic area.

Rainy Day

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Ants crawling

Post  noelle2530 on Mon Jul 14, 2014 1:46 pm

Hi I am new to this site and everything else and I get that feeling like bugs are crawling around down there too... Is this a common symptom?


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Join date : 2014-07-09
Age : 34
Location : MISSOURI

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Re: If this will help anyone...My triggers

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