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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


If this will help anyone...My triggers

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If this will help anyone...My triggers

Post  Rainy Day on Mon May 06, 2013 9:00 pm

I developed vulvodynia in Feb 2012 after 1) a massive kidney infection 2) Then, I got a bacterial/yeast infection from the antiobiotics, 3) I fell on my pelvis the same month. After a year of this garbage, I finally figured out what my trigger is. It's totally STRESS related. Anytime I have an anxiety attack, or if I get extremely angry, I flare. For some reason, sadness doesn't flare me though. When it first started, I had a flare that lasted 6 straight months- hardly considered a flare since it was constant 24 hrs a day. My symptoms caused me not to be able to wear undies or pants AT ALL. Only skirts. When it started, I had just lost my dad to cancer and mom got diagnosed with cancer shortly after he died. They were 59, so it was all unexpected and happened fast. I was so bad that I even couldn't sit over a few minutes. My legs were the worst symtom. The backs of the legs just burned and burned. My vagina area was very sensitive too, but the legs bothered me more.

I tried Gabapentin for a while...and it worked great until my mom was diagnosed with cancer. I didn't completely understand it was triggered by stress at that point. Upped my Rx of Gaba, and it didn't help...mom was going through surgery, radiation, etc...was still VERY stressed. Changed my Rx to Desapramine 75 mg and 300 mg of Gaba too. Slowly I started to improve, but my biggest improvement was when I took a leave of absense from work for about 4 months. My mom helped me/hubby during those 4 months by holding my daycare spot (paying for it) and paying for Pelvic Floor Therapy (not covered insurance--out of network). Slowly got better. I still have flares, but they are only caused by stress. Am now taking anxiety meds to prevent anxiety. Works pretty good, but my life is still pretty stressful with other stuff.

I have got to the point where I can gradually lower my dosages and still not flare. I am down to 75 mg of Desapramine only. Will try going down a dose in a month.

Other things that help my symptoms:

Yoga

Meditation

Counselling (I went through counselling on my dad's death for about 5 months)

Anxiety Medications

Moisturizer for vagina (Slippery Stuff) when I feel dry (I get dry at the start of a flare)

When I feel like ants are crawling around my vagina or butt--Rub the area with a rag to desensitize, then, ice cubes on area for 1 minute, I rub with a rag for 1 minute, then do ice cubes on area, then hot rag on area. I read this in Amy Stein's pelvic book...and my phsyio recommended it too. It helps a LOT when you feel the ant crawling thing.

When I have the symptom around 'butt' area, that is totally related to a muscle on top of my sit bones. Physio can fix that in about 24 hours by massaging it...then I do the rub with rag, then ice, then hot rag. Also, I do a lot of stretches to help this.

Tens unit- This is helpful with the 'ant crawling' feeling. Not as helpful for the burning feeling.

RIght when I start flaring, stop wearing undies/pants.

I don't put 'anything' down there...besides moisturizer. Everything else makes me worst.

I am still not recovered, but I am much closer to figuring out this beast. I have times where I feel perfect. I think I could wear jeans sometime in the future if I could control my stress.

I hope this helps someone....





Rainy Day

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Ice/Heat

Post  Rainy Day on Mon May 06, 2013 9:02 pm

Realized I wrote that wrong. I use rag for a minute on area. Then, ice cube on area for a minute, then hot rag on area for a minute. This helps desensitize areas for me.

Rainy Day

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Forgot Physical Therapy too!

Post  Rainy Day on Mon May 06, 2013 9:12 pm

Physio was a must for me! I still go once every 3 weeks to maintain my healing. I get sacro-iliac joint dysfunction during a flare, and therapy helps TONS with that. When I first started going, all my muscles were in a state of constant spasm. I would think most people with V would have that problem...since one problem causes many other problems with the pelvic area.

Rainy Day

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Ants crawling

Post  noelle2530 on Mon Jul 14, 2014 1:46 pm

Hi I am new to this site and everything else and I get that feeling like bugs are crawling around down there too... Is this a common symptom?

noelle2530

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Re: If this will help anyone...My triggers

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