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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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High acid level's causing vaginal burning

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High acid level's causing vaginal burning

Post  viollette on Fri Sep 06, 2013 4:10 pm

Hi, I was searching the internet and came across this story of a lady who had vaginal burning she described her pain as feeling like acid being on her skin down there as a constant feeling especially after urinating and she said she would get heartburn all the time so she thought that it might be high acid levels.So she went to a dermatologist and the dr. said they should do acid level test and sure enough she had high acid levels .I felt like she was describing my symptom's of feeling like acid is being pored on my skin I feel like I might have high acid to I get heartburn quite often to.If there anyone who has had high acid levels reading this and is now cured or at least your symptoms have let up some please would you let me know what has worked for you .

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Re: High acid level's causing vaginal burning

Post  Sarah001 on Tue Sep 10, 2013 8:56 pm

I have chronic gastritis but it arrived a few years after the V so not sure it's connected with me.
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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Tue Oct 08, 2013 9:56 am

That is what mine feels like! Right now it's hard to cope with. How do you test acid levels? My blood and urine is fine (except a bit iron deficient but I take supplements & Fybogel)
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Re: High acid level's causing vaginal burning

Post  burningturning on Tue Oct 08, 2013 1:07 pm

If you're referring to low-oxalate diet, my gyno strongly opposed the idea when I asked him that I wanted to support my current treatment with low-oxalate diet.
He said that the recent researches stated that the amount of oxalate crystals in urine of women who suffer from V are the same as the healthy women.
As to his opinion, this's a multi-disciplinary condition. It can be caused by sensitive nerve endings or pelvic floor disorder or hormonal imbalance. There's no certain and proved reason for this condition for now so, the treatment's supposed to be combo.

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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Tue Oct 08, 2013 4:24 pm

burningturning wrote:If you're referring to low-oxalate diet, my gyno strongly opposed the idea when I asked him that I wanted to support my current treatment with low-oxalate diet.
He said that the recent researches stated that the amount of oxalate crystals in urine of women who suffer from V are the same as the healthy women.
As to his opinion, this's a multi-disciplinary condition. It can be caused by sensitive nerve endings or pelvic floor disorder or hormonal imbalance. There's no certain and proved reason for this condition for now so, the treatment's supposed to be combo.
That's good as i can't be assed with a diet right now Razz !
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Re: High acid level's causing vaginal burning

Post  cupcake25 on Tue Oct 08, 2013 8:21 pm

I tend to have a lot of issues with acidic stomach pains. Sometimes it feels like my stomach is on fire, or someone dumped battery acid down my throat. I have noticed a connection between these flare ups and my v pain, which is burning at the entrance. Not only do I have these problems, but I notice I have an acidic smell in general (sorry, it's gross), to my sweat. I'm beginning to believe these are connected in some way, but I'm not sure what's causing it or what to do. Sparkling water and Zantac help my stomach but I'm not sure about the v pain. Once it flares it's tough to control
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Re: High acid level's causing vaginal burning

Post  burningturning on Tue Oct 08, 2013 9:13 pm

cupcake25 have you ever tried drinking kefir? If you drink natural kefir every day, it'll definitely sooth and balance your stomach.

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Re: High acid level's causing vaginal burning

Post  cupcake25 on Wed Oct 09, 2013 3:46 am

Hi burning! Thank you for the suggestion. I've never tried kefir. It's a dairy product, right? Unfortunately I am lactose intolerant Sad
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Re: High acid level's causing vaginal burning

Post  burningturning on Wed Oct 09, 2013 7:19 am

Hi cupcake, I'm sorry for you Sad
Kefir is a yoghurt like product and it's very rich in terms of probiotics. It cures candida and it's also recommended for patients suffering from reflux.
Maybe you can find lactose free kefir. I hope you'll get better asap.

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Re: High acid level's causing vaginal burning

Post  yoginimom on Wed Nov 05, 2014 4:46 am

Well it makes sense to me because our mucous membranes are all connected. I found this study very promising, so i am going to try the Sea Buckthorn oil. Can't hurt.

http://www.seabuckthorn.com/files/sea_buckthorn%20women.pdf

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Re: High acid level's causing vaginal burning

Post  sailor_moon on Wed Nov 05, 2014 9:39 am

I suffer from severe indigestion/reflux too. Nowhere near as bad since I got onto a product by a company called Bioceuticals, "Intestamine". It contains Slippery Elm which is great for stomach issues and helping repair the lining of the stomach caused by indigestion issues. That accompanied with Metagenics "Gastro-Aid" capsules, made such a big difference.
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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Fri Nov 14, 2014 12:31 pm

I have occasionally had heartburn and an unpleasant sour taste in my mouth, i wonder if this could be acid reflux ?? and if that could connect to the vaginal burning... do you know how i could ask for an acid test at the docs? Im in UK
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Re: High acid level's causing vaginal burning

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