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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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High acid level's causing vaginal burning

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High acid level's causing vaginal burning

Post  viollette on Fri Sep 06, 2013 4:10 pm

Hi, I was searching the internet and came across this story of a lady who had vaginal burning she described her pain as feeling like acid being on her skin down there as a constant feeling especially after urinating and she said she would get heartburn all the time so she thought that it might be high acid levels.So she went to a dermatologist and the dr. said they should do acid level test and sure enough she had high acid levels .I felt like she was describing my symptom's of feeling like acid is being pored on my skin I feel like I might have high acid to I get heartburn quite often to.If there anyone who has had high acid levels reading this and is now cured or at least your symptoms have let up some please would you let me know what has worked for you .

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Re: High acid level's causing vaginal burning

Post  Sarah001 on Tue Sep 10, 2013 8:56 pm

I have chronic gastritis but it arrived a few years after the V so not sure it's connected with me.
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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Tue Oct 08, 2013 9:56 am

That is what mine feels like! Right now it's hard to cope with. How do you test acid levels? My blood and urine is fine (except a bit iron deficient but I take supplements & Fybogel)
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Re: High acid level's causing vaginal burning

Post  burningturning on Tue Oct 08, 2013 1:07 pm

If you're referring to low-oxalate diet, my gyno strongly opposed the idea when I asked him that I wanted to support my current treatment with low-oxalate diet.
He said that the recent researches stated that the amount of oxalate crystals in urine of women who suffer from V are the same as the healthy women.
As to his opinion, this's a multi-disciplinary condition. It can be caused by sensitive nerve endings or pelvic floor disorder or hormonal imbalance. There's no certain and proved reason for this condition for now so, the treatment's supposed to be combo.

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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Tue Oct 08, 2013 4:24 pm

burningturning wrote:If you're referring to low-oxalate diet, my gyno strongly opposed the idea when I asked him that I wanted to support my current treatment with low-oxalate diet.
He said that the recent researches stated that the amount of oxalate crystals in urine of women who suffer from V are the same as the healthy women.
As to his opinion, this's a multi-disciplinary condition. It can be caused by sensitive nerve endings or pelvic floor disorder or hormonal imbalance. There's no certain and proved reason for this condition for now so, the treatment's supposed to be combo.
That's good as i can't be assed with a diet right now Razz !
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Re: High acid level's causing vaginal burning

Post  cupcake25 on Tue Oct 08, 2013 8:21 pm

I tend to have a lot of issues with acidic stomach pains. Sometimes it feels like my stomach is on fire, or someone dumped battery acid down my throat. I have noticed a connection between these flare ups and my v pain, which is burning at the entrance. Not only do I have these problems, but I notice I have an acidic smell in general (sorry, it's gross), to my sweat. I'm beginning to believe these are connected in some way, but I'm not sure what's causing it or what to do. Sparkling water and Zantac help my stomach but I'm not sure about the v pain. Once it flares it's tough to control
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Re: High acid level's causing vaginal burning

Post  burningturning on Tue Oct 08, 2013 9:13 pm

cupcake25 have you ever tried drinking kefir? If you drink natural kefir every day, it'll definitely sooth and balance your stomach.

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Re: High acid level's causing vaginal burning

Post  cupcake25 on Wed Oct 09, 2013 3:46 am

Hi burning! Thank you for the suggestion. I've never tried kefir. It's a dairy product, right? Unfortunately I am lactose intolerant Sad
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Re: High acid level's causing vaginal burning

Post  burningturning on Wed Oct 09, 2013 7:19 am

Hi cupcake, I'm sorry for you Sad
Kefir is a yoghurt like product and it's very rich in terms of probiotics. It cures candida and it's also recommended for patients suffering from reflux.
Maybe you can find lactose free kefir. I hope you'll get better asap.

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Re: High acid level's causing vaginal burning

Post  yoginimom on Wed Nov 05, 2014 4:46 am

Well it makes sense to me because our mucous membranes are all connected. I found this study very promising, so i am going to try the Sea Buckthorn oil. Can't hurt.

http://www.seabuckthorn.com/files/sea_buckthorn%20women.pdf

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Re: High acid level's causing vaginal burning

Post  sailor_moon on Wed Nov 05, 2014 9:39 am

I suffer from severe indigestion/reflux too. Nowhere near as bad since I got onto a product by a company called Bioceuticals, "Intestamine". It contains Slippery Elm which is great for stomach issues and helping repair the lining of the stomach caused by indigestion issues. That accompanied with Metagenics "Gastro-Aid" capsules, made such a big difference.
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Re: High acid level's causing vaginal burning

Post  tinkerbelle2 on Fri Nov 14, 2014 12:31 pm

I have occasionally had heartburn and an unpleasant sour taste in my mouth, i wonder if this could be acid reflux ?? and if that could connect to the vaginal burning... do you know how i could ask for an acid test at the docs? Im in UK
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Re: High acid level's causing vaginal burning

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