what worked for a fellow sufferer

I found a blog with a vulvodynia sufferer whom, like me, has nerve pain due to the bartholin gland (recurring cysts, etc).
She is apparently getting alchohol injections to kill the vulva nerves. Now I know this does not work for everyone, but it's an idea.
I also read something about a study where procaine/lidocaine injections were used for general vulvodynia.
crap, right now I'd accept any injection down there to quiet the stupid vibrating pain

here's the link
http://rantingsofamother.blogspot.co.uk/2011/02/recurring-bartholin-cyst.html

and this

http://rantingsofamother.blogspot.co.uk/2011/08/nerve-endings-updated.html

Do your research first obviously but it sounds like it could work I didnt have those problems so I have no idea but its an interesting concept...

also this article here.
http://www.cytolab.de/uploads/media/Successful_Therapy_of_Vulvodynia_with_Local_Anesthetics.pdf

I was offered botox, but for vaginismus, I'm not sure if that's the same idea or what. Just make sure if you do go that route, get someone who knows what they are doing that area is very easy to mess up worse with someone who doesn't know what theyre doing. I'd consult a few people just to make sure it's the right idea and then choose who you're most comfortable with. I know with botox they can inject in the wrong area and make it so you pee and poo involuntarily. That freaked me out haha

@ alana I have vaginismus as well, I had 7 attempts at losing my v, it was THAT BAD! I would love some botox down there, it's used for vulvodynia as well.
with these procaine/lidocaine injections I don't think they go for the vagina though, more like trigger points in the vulva.

I remember having lidocaine injections long ago for one of my bartholin abcesses (before they lanced it), they were so painful, nothing compares to that pain. There are no words....but I am DESPERATE

@ Alana did you ever have issues with inflammation of the vestibular glands?

It's never been mentioned so I don't think I do. I'm not saying don't do it, I'm just saying make sure you find someone who is familiar with it. Trust me, I get the desperation factor. Do what you need to do to get better, but keep educated and with the right doctor first and foremost.

Hi ladies, I wanted to tell you what has helped my 22 year old daughter. My daughter has been battling vulvodynia, yeast infections, BV, and even strep B vaginal infections for almost 3 years now.  She's been on the neverending revolving door of antibiotics, vaginal creams, lidocaine, hydrogen peroxide douches, etc., etc.  She was very VERY close to having surgery. However, FINALLY I SAID ENOUGH IS ENOUGH AND TOOK OVER!!  There's nothing worst than seeing your child in so much pain and agony, and it was so heartbreaking watching this "animal" take my daughter's womanhood away from her.  SUPER SAD!!   

Here's what I did and, shockingly, it has helped her tremendously.  Even to the point where she and her fiance' are actually having sexual intercourse with very little to no pain.

1.  Get off all HORMONAL birth control.
2.  Get on a daily regiment of:

Morning:

Garlic pill - 1
Vitamin C (500mg) - 1
Femdophilus - 1
Cranberry pill - 1
Biotin - (she takes this because her hair has been thinning)
* Barlean's, The Essential Woman Supplement, Swirl, Chocolate Mint - 1 TBSP
* Flaxseed Oil - 1 .... once the Barlean's, The Essential Woman Supplement, Swirl, Chocolate Mint drink once it's gone.  The two main ingredient's in this drink is Flaxseed Oil and Primrose Oil.


Evening:

Folic Acid - 1
Jarrow IBS 299V Probiotic - 1
Femdophilus - 1
Cranberry pill - 1
Biotin - (again, she takes this because her hair has been thinning)
* Primrose Oil - 1 .... once the Barlean's, The Essential Woman Supplement, Swirl, Chocolate Mint drink once it's gone.  The two main ingredient's in this drink is *Flaxseed Oil and *Primrose Oil.

She also uses a spray bottle to spray that area with a mixture of vinegar and water while taking her daily shower.

About 2 weeks after starting this regiment, I'm telling you, it's been like night and day for her.  She is so happy right now.  Almost makes me want to cry.  And btw, she had a copper IUD with NO HORMONES inserted for birth control.

Also, we will be adding Zinc (and copper ... needed with zinc supplementals) to her daily regiment.  I found some very interesting articles that say that low zinc levels are often found in people who have acne and hair loss/thinning due to their hormones being out of whack, "PARTICULARLY IN LOW PROGESTERONE LEVELS," which, voila', is often noted in women with vulvodynia.

Anyway, I just wanted share what has dramatically helped my daughter with this awful, AWFUL thing.  I don't know if her daily regiment will help all, but even if it helps 1 or 2 people, that's a couple women less to have to live with this evil problem.

GOOD LUCK TO YOU ALL!!

it's great to hear your daughter has been cured !!!

what kind of pain did she have? any stabbing, vibrating/buzzing???? or just burning?