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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

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Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 5:52 am

I'm feeling really really frustrated right now and need to vent.

I started having lower right back pain last week and then my abdomen also began having issues last Thursday, along with the urge to urinate. I was tentatively diagnosed with a UTI by my university health center, but both of my urinalysis tests came back clear. The meds obviously didn't work and I continued to have pain/discomfort, so I had to go to the Pelvic Pain Center today to talk to Dr. McQuady. Looks like I have interstitial cystitis (IC). This is one of the worst pieces of news I could get--I'm a huge foodie, study the folklore of food, and I'm having a vestibulectomy on December 17th to help fix the vulvodynia. In March I was tested for IC and scored very high on the "PUF" test, but my potassium test was negative, so I thought I was in the clear. I am just so fed up with all of this. I've been dealing with it for four years and I just spent my 24th birthday on Tuesday in pain.

Anybody else dealing with the same thing? Still had a vestibulectomy even though you had IC and were able to have sex with your significant other?


Fingerscrossed

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 3:32 pm

I had a vestibulectomy and loved it but I dont have ic Sad thats horrible I'm so sorry... happy birthday tho mine was thursday!

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 10:30 pm

Thank you! I'm getting through it--my symptoms seem to be subsiding. I decided to follow the low-oxalate diet until the symptoms completely subside, and then I'll use the Prelief pills whenever I want to eat chocolate and citrus foods or drink tea. I just have no idea how this started now. I've been perfectly fine for months eating whatever I wanted. My stress levels also haven't changed--I'm in graduate school so I am always stressed.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 11:11 pm

Yeah they thought I had that too but I only have symptoms with very specific foods. When are you getting your surgery?

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 12:02 am

December 17. Less than a month now. Also, happy belated birthday to you! I don't know what triggered it--I'm just sticking to a safe diet until the issues go away and then I can add some good stuff in. I really want to eat the leftover chocolate fondue and strawberries in my refrigerator but I know I can't. It really sucks too because I love both of those things.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 1:50 am

Your surgery will be a breeze you'll love it! Where do you live? I'm at melting pot now haha Smile

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 6:58 pm

Bowling Green, KY. I have a two hour drive with an hour time change each trip I take to go to my doctor in Louisville. I'm doing graduate school.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 7:02 pm

Are you at western? I went to transy and uk haha

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Mon Nov 25, 2013 1:10 am

Yep. And of course I'm interested in food and culture. This issue is not turning out to be a good combination for me--I am proud of being a foodie.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Mon Nov 25, 2013 1:51 am

Oh I hear you one hundred percent... omg hows ky I miss it Sad but seriously red wine kills my bladder :/ it sucks

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PFD

Post  denisefeil on Wed May 14, 2014 2:28 am

I am suffering with pelvic floor dissent. I live in the Washington DC area. I would greatly appreciate any help - I am constantly constipated and nauseous - I am at the end of my rope.

Thank you

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Wed May 14, 2014 1:01 pm

are you sure you don't have endometriosis?  I have that and have what you're describing.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

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