Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

View previous topic View next topic Go down

Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 5:52 am

I'm feeling really really frustrated right now and need to vent.

I started having lower right back pain last week and then my abdomen also began having issues last Thursday, along with the urge to urinate. I was tentatively diagnosed with a UTI by my university health center, but both of my urinalysis tests came back clear. The meds obviously didn't work and I continued to have pain/discomfort, so I had to go to the Pelvic Pain Center today to talk to Dr. McQuady. Looks like I have interstitial cystitis (IC). This is one of the worst pieces of news I could get--I'm a huge foodie, study the folklore of food, and I'm having a vestibulectomy on December 17th to help fix the vulvodynia. In March I was tested for IC and scored very high on the "PUF" test, but my potassium test was negative, so I thought I was in the clear. I am just so fed up with all of this. I've been dealing with it for four years and I just spent my 24th birthday on Tuesday in pain.

Anybody else dealing with the same thing? Still had a vestibulectomy even though you had IC and were able to have sex with your significant other?


Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 3:32 pm

I had a vestibulectomy and loved it but I dont have ic Sad thats horrible I'm so sorry... happy birthday tho mine was thursday!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 10:30 pm

Thank you! I'm getting through it--my symptoms seem to be subsiding. I decided to follow the low-oxalate diet until the symptoms completely subside, and then I'll use the Prelief pills whenever I want to eat chocolate and citrus foods or drink tea. I just have no idea how this started now. I've been perfectly fine for months eating whatever I wanted. My stress levels also haven't changed--I'm in graduate school so I am always stressed.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 11:11 pm

Yeah they thought I had that too but I only have symptoms with very specific foods. When are you getting your surgery?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 12:02 am

December 17. Less than a month now. Also, happy belated birthday to you! I don't know what triggered it--I'm just sticking to a safe diet until the issues go away and then I can add some good stuff in. I really want to eat the leftover chocolate fondue and strawberries in my refrigerator but I know I can't. It really sucks too because I love both of those things.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 1:50 am

Your surgery will be a breeze you'll love it! Where do you live? I'm at melting pot now haha Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 6:58 pm

Bowling Green, KY. I have a two hour drive with an hour time change each trip I take to go to my doctor in Louisville. I'm doing graduate school.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 7:02 pm

Are you at western? I went to transy and uk haha

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Mon Nov 25, 2013 1:10 am

Yep. And of course I'm interested in food and culture. This issue is not turning out to be a good combination for me--I am proud of being a foodie.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Mon Nov 25, 2013 1:51 am

Oh I hear you one hundred percent... omg hows ky I miss it Sad but seriously red wine kills my bladder :/ it sucks

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

PFD

Post  denisefeil on Wed May 14, 2014 2:28 am

I am suffering with pelvic floor dissent. I live in the Washington DC area. I would greatly appreciate any help - I am constantly constipated and nauseous - I am at the end of my rope.

Thank you

denisefeil

Posts : 1
Join date : 2014-05-14

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Wed May 14, 2014 1:01 pm

are you sure you don't have endometriosis?  I have that and have what you're describing.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum