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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

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Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 5:52 am

I'm feeling really really frustrated right now and need to vent.

I started having lower right back pain last week and then my abdomen also began having issues last Thursday, along with the urge to urinate. I was tentatively diagnosed with a UTI by my university health center, but both of my urinalysis tests came back clear. The meds obviously didn't work and I continued to have pain/discomfort, so I had to go to the Pelvic Pain Center today to talk to Dr. McQuady. Looks like I have interstitial cystitis (IC). This is one of the worst pieces of news I could get--I'm a huge foodie, study the folklore of food, and I'm having a vestibulectomy on December 17th to help fix the vulvodynia. In March I was tested for IC and scored very high on the "PUF" test, but my potassium test was negative, so I thought I was in the clear. I am just so fed up with all of this. I've been dealing with it for four years and I just spent my 24th birthday on Tuesday in pain.

Anybody else dealing with the same thing? Still had a vestibulectomy even though you had IC and were able to have sex with your significant other?


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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 3:32 pm

I had a vestibulectomy and loved it but I dont have ic Sad thats horrible I'm so sorry... happy birthday tho mine was thursday!

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sat Nov 23, 2013 10:30 pm

Thank you! I'm getting through it--my symptoms seem to be subsiding. I decided to follow the low-oxalate diet until the symptoms completely subside, and then I'll use the Prelief pills whenever I want to eat chocolate and citrus foods or drink tea. I just have no idea how this started now. I've been perfectly fine for months eating whatever I wanted. My stress levels also haven't changed--I'm in graduate school so I am always stressed.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sat Nov 23, 2013 11:11 pm

Yeah they thought I had that too but I only have symptoms with very specific foods. When are you getting your surgery?

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 12:02 am

December 17. Less than a month now. Also, happy belated birthday to you! I don't know what triggered it--I'm just sticking to a safe diet until the issues go away and then I can add some good stuff in. I really want to eat the leftover chocolate fondue and strawberries in my refrigerator but I know I can't. It really sucks too because I love both of those things.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 1:50 am

Your surgery will be a breeze you'll love it! Where do you live? I'm at melting pot now haha Smile

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Sun Nov 24, 2013 6:58 pm

Bowling Green, KY. I have a two hour drive with an hour time change each trip I take to go to my doctor in Louisville. I'm doing graduate school.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Sun Nov 24, 2013 7:02 pm

Are you at western? I went to transy and uk haha

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Fingerscrossed on Mon Nov 25, 2013 1:10 am

Yep. And of course I'm interested in food and culture. This issue is not turning out to be a good combination for me--I am proud of being a foodie.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Mon Nov 25, 2013 1:51 am

Oh I hear you one hundred percent... omg hows ky I miss it Sad but seriously red wine kills my bladder :/ it sucks

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PFD

Post  denisefeil on Wed May 14, 2014 2:28 am

I am suffering with pelvic floor dissent. I live in the Washington DC area. I would greatly appreciate any help - I am constantly constipated and nauseous - I am at the end of my rope.

Thank you

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

Post  Alana3 on Wed May 14, 2014 1:01 pm

are you sure you don't have endometriosis?  I have that and have what you're describing.

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Re: Just when I thought I might be getting closer to a solution to my vulvodynia and pelvic floor dysfunction--IC reared its evil head

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