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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Quick question
4 posters
Page 1 of 1
Re: Quick question
It's calms my burning down. I just wants to see if any other ladies had the same effect. I've been givin cream but they just make it worst!
Lms911- Posts : 30
Join date : 2013-11-07
Re: Quick question
If Benadryl helps your perhaps you're allergic to something you're using? Try switching detergents and soaps...
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Quick question
Alana I have. And to be honest I don't even put much of anything down there. I always thought it was from sweating or something. It's the weirdest thing. As of late it hasn't been to bad. When it is at its worst I notice my pee feels HOT! Not like an Uti but just a really warm feeling. Lol this forum is a godsend. I talk to you girls about stuff I would never tell my close friends! I seriously love you all.
Lms911- Posts : 30
Join date : 2013-11-07
Re: Quick question
I have no idea, but if Benadryl works good. Maybe try a gluten-free diet or go vegan. My boyfriends sister and myself both have endo and I have endo and the foods we eat have a huge outcome on how our days go. Now I am def not too serious about it because I love food- she's a vegan tho, and says that her diet saved her. But I know certain foods to stay far away from that make my pain worse. So maybe keep that in mind too!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Quick question
Along that line of thinking.......
I'm a bit addicted to Internet research about this which can be overwhelming. This past week I've decided to limit my searches to vulvodynia success stories only to try to stay positive. I've read so many!!
One woman suffered for 12 years w/ provoked V
mostly noted w/ sex. She tried all the tupical treatment through the years w/ no success. Her story goes...during one of her attempts to have intercourse w/ her husband they got pregnant, had baby, sadly no change in V following. For the health of their baby they slowly switched all of their health and beauty products to all organic products......after a few months of this she noted zero V pain w/ sex. She's been pain feed since. She switched laundry products to organic too. She said even sensitive skin formulations have offending chemicals. Shes wondered if she may have been sensitive to sulfates. She doesn't know which product was culprit or all combined. Her provoked V was her only symptom. She says she'll never buy commercial products again. (12 years of pain gone). Just food for thought. I am slowly switching things as well. She mentioned vitacost.com as reference for less expensive options. Amazon has laundry soap....I think it was "nellies laundry soda".....or something like that. I ordered some. . Google success....gives hope! xo
I'm a bit addicted to Internet research about this which can be overwhelming. This past week I've decided to limit my searches to vulvodynia success stories only to try to stay positive. I've read so many!!
One woman suffered for 12 years w/ provoked V
mostly noted w/ sex. She tried all the tupical treatment through the years w/ no success. Her story goes...during one of her attempts to have intercourse w/ her husband they got pregnant, had baby, sadly no change in V following. For the health of their baby they slowly switched all of their health and beauty products to all organic products......after a few months of this she noted zero V pain w/ sex. She's been pain feed since. She switched laundry products to organic too. She said even sensitive skin formulations have offending chemicals. Shes wondered if she may have been sensitive to sulfates. She doesn't know which product was culprit or all combined. Her provoked V was her only symptom. She says she'll never buy commercial products again. (12 years of pain gone). Just food for thought. I am slowly switching things as well. She mentioned vitacost.com as reference for less expensive options. Amazon has laundry soap....I think it was "nellies laundry soda".....or something like that. I ordered some. . Google success....gives hope! xo
Leslieg- Posts : 86
Join date : 2013-08-09
Re: Quick question
Thank you ladies for all the info! I wonder if I have endo. I get crazy back pain sometimes before my period and get this deep chest pain when i eat sometimes.I also just miscarried in aug but I do have 2 other children. I have super sensitive skin! If i wear certain pants ill get this horrible rash that weeps itches and burns aroun my waist! I haven't gotten it in awhile but I used to have problems really bad with it years ago. I take alot of 5 hour engery drinks ( I have stopped because i was wondering if that was hurting me) I'm just always so tired. most of these problems started this year.I'm at 80 year old women stuck in a 28 year old body lol
Lms911- Posts : 30
Join date : 2013-11-07
Re: Quick question
Oh yeah, organic is the way to go... And avoiding sugar (which is hard it's in everything)
Alana3- Posts : 1093
Join date : 2012-09-25
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer