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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Advice for a friend

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Advice for a friend

Post  Elc88 on Sun Dec 08, 2013 9:14 pm

I thought this might be a good place to ask, to try and draw from a wide pool of knowledge and experience. I feel like I've spent so much of the last 4 years researching problems in that part of the body, that I am sad I can't think to suggest anything to a friend who is also suffering from problems in one of our favourite areas!

My friend suffers from recurring UTI's every time she has intercourse, apparently every single time. Various tests show nothing, and several doctors say there is nothing that can be done. She seems to have accepted their diagnosis, as it's come from several different doctors.

My personal experience with doctors is that they often lack understanding about that part of the body, and I'm not entirely convinced they don't just think it doesn't matter because it's not a part of the body others can see, it's not killing us and it's not like it's stopping us from living our lives...

Anyway, I just wanted to ask. As I say, she gets a UTI every time, I don't know what tests she's had, but I'm scratching my head to think what might cause a UTI. Are there any others who've experienced this?

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Re: Advice for a friend

Post  alessandria on Sun Dec 08, 2013 9:53 pm

If nothing has shown up positive on a urine culture, she should probably try to get a referral to a urogynecologist. UTIs tend to make themselves known in a few different ways, such that it'd be pretty hard to get a false negative. To me, I'd be concerned that this is interstitial cystitis rather than UTIs. IC can feel exactly like a UTI, and flares can definitely be provoked by sex (it isn't a condition I have, but I've read a lot about it and there are a few sufferers on this forum). Has she been worked up for IC yet? Best of luck to your friend!

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Re: Advice for a friend

Post  Alana3 on Mon Dec 09, 2013 12:56 am

It's called honeymoon cystitis and can be prevented by taking a low dose antibiotic before sex . Also she may wanna look into IC... tell her to go to a urologist

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Re: Advice for a friend

Post  Leslieg on Mon Dec 09, 2013 3:14 am

My sister has this issue. It started when she started to date her current boyfriend.  She had a workup  done and nothing showed up.  Like Alana said, her doctor gave her a low dose antibiotic and she takes a pill each time she has intercourse.  She's been with him a while now and she thinks her body has adjusted to him and hopes to be able to stop taking them. Is your friend drinking lots of water and peeing right after sex?

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Re: Advice for a friend

Post  Alana3 on Mon Dec 09, 2013 2:13 pm

And you should always pee after sex

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Re: Advice for a friend

Post  Elc88 on Mon Dec 09, 2013 9:12 pm

Thanks for the suggestions guys - I'm afraid I don't know any more than I've said, I'd just like to be able to suggest something to her the next time I see her. I know how frustrating these problems are, and if there's anything I can suggest to stop someone else I know from having to put up with it, I want to investigate it.

I did wonder about cycstitis, but couldn't remember its name to ask if she'd been checked. She said she takes some over the counter antibiotic/product soon after, but sometimes doesn't get it in time, so it sounds like taking a pill before will help her. I will definitely suggest that one!

Thanks again!

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Re: Advice for a friend

Post  aspaceodyssey on Mon Dec 09, 2013 9:24 pm

I had this problem when I was regularly having sex. for me, drinking carbonated beverages (particularly soda) in the same time frame as sex would cause a UTI, so once I was careful about cutting back on soda the problem improved greatly. d-mannose powder is a good natural remedy and preventative for them, but that's assuming she's getting an actual infection. if it's something like interstitial cystitis I don't know if it would still help...hopefully she can find a way to avoid taking antibiotics constantly, because that really does a number on you.  Neutral 

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