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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Advice for a friend

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Advice for a friend

Post  Elc88 on Sun Dec 08, 2013 9:14 pm

I thought this might be a good place to ask, to try and draw from a wide pool of knowledge and experience. I feel like I've spent so much of the last 4 years researching problems in that part of the body, that I am sad I can't think to suggest anything to a friend who is also suffering from problems in one of our favourite areas!

My friend suffers from recurring UTI's every time she has intercourse, apparently every single time. Various tests show nothing, and several doctors say there is nothing that can be done. She seems to have accepted their diagnosis, as it's come from several different doctors.

My personal experience with doctors is that they often lack understanding about that part of the body, and I'm not entirely convinced they don't just think it doesn't matter because it's not a part of the body others can see, it's not killing us and it's not like it's stopping us from living our lives...

Anyway, I just wanted to ask. As I say, she gets a UTI every time, I don't know what tests she's had, but I'm scratching my head to think what might cause a UTI. Are there any others who've experienced this?

Elc88

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Re: Advice for a friend

Post  alessandria on Sun Dec 08, 2013 9:53 pm

If nothing has shown up positive on a urine culture, she should probably try to get a referral to a urogynecologist. UTIs tend to make themselves known in a few different ways, such that it'd be pretty hard to get a false negative. To me, I'd be concerned that this is interstitial cystitis rather than UTIs. IC can feel exactly like a UTI, and flares can definitely be provoked by sex (it isn't a condition I have, but I've read a lot about it and there are a few sufferers on this forum). Has she been worked up for IC yet? Best of luck to your friend!

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Re: Advice for a friend

Post  Alana3 on Mon Dec 09, 2013 12:56 am

It's called honeymoon cystitis and can be prevented by taking a low dose antibiotic before sex . Also she may wanna look into IC... tell her to go to a urologist

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Re: Advice for a friend

Post  Leslieg on Mon Dec 09, 2013 3:14 am

My sister has this issue. It started when she started to date her current boyfriend.  She had a workup  done and nothing showed up.  Like Alana said, her doctor gave her a low dose antibiotic and she takes a pill each time she has intercourse.  She's been with him a while now and she thinks her body has adjusted to him and hopes to be able to stop taking them. Is your friend drinking lots of water and peeing right after sex?

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Re: Advice for a friend

Post  Alana3 on Mon Dec 09, 2013 2:13 pm

And you should always pee after sex

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Re: Advice for a friend

Post  Elc88 on Mon Dec 09, 2013 9:12 pm

Thanks for the suggestions guys - I'm afraid I don't know any more than I've said, I'd just like to be able to suggest something to her the next time I see her. I know how frustrating these problems are, and if there's anything I can suggest to stop someone else I know from having to put up with it, I want to investigate it.

I did wonder about cycstitis, but couldn't remember its name to ask if she'd been checked. She said she takes some over the counter antibiotic/product soon after, but sometimes doesn't get it in time, so it sounds like taking a pill before will help her. I will definitely suggest that one!

Thanks again!

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Re: Advice for a friend

Post  aspaceodyssey on Mon Dec 09, 2013 9:24 pm

I had this problem when I was regularly having sex. for me, drinking carbonated beverages (particularly soda) in the same time frame as sex would cause a UTI, so once I was careful about cutting back on soda the problem improved greatly. d-mannose powder is a good natural remedy and preventative for them, but that's assuming she's getting an actual infection. if it's something like interstitial cystitis I don't know if it would still help...hopefully she can find a way to avoid taking antibiotics constantly, because that really does a number on you.  Neutral 

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Re: Advice for a friend

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