Vulvodynia Support
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» Hope to all my suffering ladies
Capsaicin treatment?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Capsaicin treatment?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Capsaicin treatment?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Capsaicin treatment?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Capsaicin treatment?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Capsaicin treatment?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Capsaicin treatment?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Capsaicin treatment?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Capsaicin treatment?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Capsaicin treatment?

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Post  bridget234 Sat Mar 22, 2014 5:18 pm

Hi all! I'm a newbie here. Been having problems for 3 years, diagnosed with VV 2 years ago. I've tried tons of different treatments but my doctor suggested a new one and I was wondering if anyone has ever tried it before?

He suggested using Capsaicin cream on the affected area twice a day to desensitize the nerves. Apparently it is supposed to hurt so bad that your nerves stop feeling pain. If anyone doesn't know what it is, its basically chili powder in cream form (mixed with a few other things, of course).

I tried it for the first time this morning and it hurt soooo bad! I'm not lying when I say that was probably the worst pain I've ever felt. However, it only lasted about 20 minutes.

So, I'm torn. Do I keep doing it and put myself through the pain if I'm not even sure if it will work? Or do I just stop and go to my last option... surgery  Sad 

Have any of you ladies tried the capsaicin before? How did it work out?

bridget234

Posts : 13
Join date : 2014-03-22

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Post  nanmark3 Mon Mar 24, 2014 11:25 pm

I tried Active On which is a capsaicin cream that gives me really for other chronic pain. It actually gives me a lot of relief! The downside though and this is going to sound real gross, but after 2 weeks of using it I started majorly peeling down there. It was if I had a major sunburn. It didn't cause me more pain, but thick sheet of skin peeled off twice from everywhere down there that I had put it. I had used it on my vulva lips and into my groin. So I learned a big lesson we have very sensitive skin down there I wouldn't use capsaicin cream even once again!

nanmark3

Posts : 6
Join date : 2014-03-24

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Post  Georgia H Wed Mar 26, 2014 12:37 pm

Interesting... I've just got this from my GP to try as I wanted amitriptyline/ketamine in a compound cream but she can't prescribe it. I've read about some good results on capsaicin so keen to try it - I've not really tried anything topical as yet (only amitriptyline). Research suggests it works well with neuralgia type pain ... Not looking forward to the first few applications though! Interested to know if anyone else has tried it?

My pain isn't VV though, is generalized all over the pubic hair area.

Georgia H

Posts : 18
Join date : 2014-01-27
Location : LONDON

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Post  bridget234 Wed Mar 26, 2014 10:20 pm

I'm only a few days into the treatment but here is what's happened so far:

The first time hurt REALLLLLLY bad! But after that it wasn't as bad, but still pretty painful! The pain doesn't last more than 20-30 mins though.

But I have noticed less burning pain throughout the day! I used to constantly feel it, and now I still do but not as much. My affected area still hurts to touch but I think it may be helping. I am supposed to keep at it for a month before I can actually tell if its working or not.

Let me know how it goes for you!!

bridget234

Posts : 13
Join date : 2014-03-22

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