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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


My cure......

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My cure......

Post  Ema222 on Tue Feb 04, 2014 12:37 pm

Ladies - this is the first time I have joined a chat- I had vulvodynia for 3
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.

I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!

I hope it works for you too!!!! Xxxx

Ema222

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Re: My cure......

Post  mary jane on Tue Feb 04, 2014 8:08 pm

wow, your doctor was a complete idiot to have put you on amitriptyline, which is for NERVE PAIN, when you had a hormonal trigger for your type of pain.
glad you found relief!
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My Cure

Post  jackie333 on Wed Feb 05, 2014 2:15 pm

I read that the Sudacream helped--and just to think there is something out there gave me a bit of comfort! I looked it up on Google and I came up with SUDOCREAM as an English product for  diaper rash--and that does sound like it might help. It's spelled differently.
Did you buy it over the counter in America?
Thanks so much!

Jackie333

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Re: My cure......

Post  Ema222 on Wed Feb 05, 2014 7:07 pm

Yeah that's it! It's a cream used for forming a barrier against irritants - zinc oxide is one of the main ingredients- used on wounds/ nappy rash that kind of thing- not sure what it goes under in America ( I'm from uk) honestly the best thing I ever discovered!!!

Ema222

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Re: My cure......

Post  jackie333 on Wed Feb 05, 2014 8:39 pm

Thank you so much for replying.
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333

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Re: My cure......

Post  zarli on Thu Feb 06, 2014 10:21 am

Im from AUS and I find bepantham cream (also a nappy rash cream) not sure if I spelt it quite right, is wonderful also acts as a barrier.

zarli

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 2:02 pm

Thank you so much! Another lady from the UK suggested a cream as well (Sudocream?)
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.

jackie333

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Re: My cure......

Post  Delilah1 on Thu Feb 06, 2014 3:11 pm

Hello Ema222! I looked it up on Amazon and found Sudocrem Antiseptic Cream. Is this what you used? Says it's used for napkin rash, eczema and bed sores? I would like to order it and try it if this is what you used. Thank you

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 3:35 pm

I'm so glad I just rechecked with Amazon!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered Very Happy  a jar--Thank you!

jackie333

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Re: My cure......

Post  tinkerbelle2 on Tue Feb 11, 2014 8:40 pm

Ema, this is great!!! Very Happy Congratulations on the pregnancy too Very Happy
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope Very Happy x
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Re: My cure......

Post  Rose86 on Tue Feb 18, 2014 7:09 pm

That's amazing that it worked for you! Can I ask what your symptoms were though?

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Re: My cure......

Post  Sebby (Admin) on Thu May 08, 2014 1:42 pm

Welcome to the forum, so pleased you found something that helped!  Smile 
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Re: My cure......

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