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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


My cure......

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My cure......

Post  Ema222 on Tue Feb 04, 2014 12:37 pm

Ladies - this is the first time I have joined a chat- I had vulvodynia for 3
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.

I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!

I hope it works for you too!!!! Xxxx

Ema222

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Re: My cure......

Post  mary jane on Tue Feb 04, 2014 8:08 pm

wow, your doctor was a complete idiot to have put you on amitriptyline, which is for NERVE PAIN, when you had a hormonal trigger for your type of pain.
glad you found relief!
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My Cure

Post  jackie333 on Wed Feb 05, 2014 2:15 pm

I read that the Sudacream helped--and just to think there is something out there gave me a bit of comfort! I looked it up on Google and I came up with SUDOCREAM as an English product for  diaper rash--and that does sound like it might help. It's spelled differently.
Did you buy it over the counter in America?
Thanks so much!

Jackie333

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Re: My cure......

Post  Ema222 on Wed Feb 05, 2014 7:07 pm

Yeah that's it! It's a cream used for forming a barrier against irritants - zinc oxide is one of the main ingredients- used on wounds/ nappy rash that kind of thing- not sure what it goes under in America ( I'm from uk) honestly the best thing I ever discovered!!!

Ema222

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Re: My cure......

Post  jackie333 on Wed Feb 05, 2014 8:39 pm

Thank you so much for replying.
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333

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Re: My cure......

Post  zarli on Thu Feb 06, 2014 10:21 am

Im from AUS and I find bepantham cream (also a nappy rash cream) not sure if I spelt it quite right, is wonderful also acts as a barrier.

zarli

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 2:02 pm

Thank you so much! Another lady from the UK suggested a cream as well (Sudocream?)
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.

jackie333

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Re: My cure......

Post  Delilah1 on Thu Feb 06, 2014 3:11 pm

Hello Ema222! I looked it up on Amazon and found Sudocrem Antiseptic Cream. Is this what you used? Says it's used for napkin rash, eczema and bed sores? I would like to order it and try it if this is what you used. Thank you

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 3:35 pm

I'm so glad I just rechecked with Amazon!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered Very Happy  a jar--Thank you!

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Re: My cure......

Post  tinkerbelle2 on Tue Feb 11, 2014 8:40 pm

Ema, this is great!!! Very Happy Congratulations on the pregnancy too Very Happy
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope Very Happy x
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Re: My cure......

Post  Rose86 on Tue Feb 18, 2014 7:09 pm

That's amazing that it worked for you! Can I ask what your symptoms were though?

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Re: My cure......

Post  Sebby (Admin) on Thu May 08, 2014 1:42 pm

Welcome to the forum, so pleased you found something that helped!  Smile 
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Re: My cure......

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