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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


My cure......

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My cure......

Post  Ema222 on Tue Feb 04, 2014 12:37 pm

Ladies - this is the first time I have joined a chat- I had vulvodynia for 3
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.

I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!

I hope it works for you too!!!! Xxxx

Ema222

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Re: My cure......

Post  mary jane on Tue Feb 04, 2014 8:08 pm

wow, your doctor was a complete idiot to have put you on amitriptyline, which is for NERVE PAIN, when you had a hormonal trigger for your type of pain.
glad you found relief!
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mary jane

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My Cure

Post  jackie333 on Wed Feb 05, 2014 2:15 pm

I read that the Sudacream helped--and just to think there is something out there gave me a bit of comfort! I looked it up on Google and I came up with SUDOCREAM as an English product for  diaper rash--and that does sound like it might help. It's spelled differently.
Did you buy it over the counter in America?
Thanks so much!

Jackie333

jackie333

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Re: My cure......

Post  Ema222 on Wed Feb 05, 2014 7:07 pm

Yeah that's it! It's a cream used for forming a barrier against irritants - zinc oxide is one of the main ingredients- used on wounds/ nappy rash that kind of thing- not sure what it goes under in America ( I'm from uk) honestly the best thing I ever discovered!!!

Ema222

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Re: My cure......

Post  jackie333 on Wed Feb 05, 2014 8:39 pm

Thank you so much for replying.
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333

jackie333

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Re: My cure......

Post  zarli on Thu Feb 06, 2014 10:21 am

Im from AUS and I find bepantham cream (also a nappy rash cream) not sure if I spelt it quite right, is wonderful also acts as a barrier.

zarli

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 2:02 pm

Thank you so much! Another lady from the UK suggested a cream as well (Sudocream?)
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.

jackie333

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Re: My cure......

Post  Delilah1 on Thu Feb 06, 2014 3:11 pm

Hello Ema222! I looked it up on Amazon and found Sudocrem Antiseptic Cream. Is this what you used? Says it's used for napkin rash, eczema and bed sores? I would like to order it and try it if this is what you used. Thank you

Delilah1

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 3:35 pm

I'm so glad I just rechecked with Amazon!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered Very Happy  a jar--Thank you!

jackie333

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Re: My cure......

Post  tinkerbelle2 on Tue Feb 11, 2014 8:40 pm

Ema, this is great!!! Very Happy Congratulations on the pregnancy too Very Happy
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope Very Happy x
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Re: My cure......

Post  Rose86 on Tue Feb 18, 2014 7:09 pm

That's amazing that it worked for you! Can I ask what your symptoms were though?

Rose86

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Re: My cure......

Post  Sebby (Admin) on Thu May 08, 2014 1:42 pm

Welcome to the forum, so pleased you found something that helped!  Smile 
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Re: My cure......

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