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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


My cure......

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My cure......

Post  Ema222 on Tue Feb 04, 2014 12:37 pm

Ladies - this is the first time I have joined a chat- I had vulvodynia for 3
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.

I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!

I hope it works for you too!!!! Xxxx

Ema222

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Re: My cure......

Post  mary jane on Tue Feb 04, 2014 8:08 pm

wow, your doctor was a complete idiot to have put you on amitriptyline, which is for NERVE PAIN, when you had a hormonal trigger for your type of pain.
glad you found relief!
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My Cure

Post  jackie333 on Wed Feb 05, 2014 2:15 pm

I read that the Sudacream helped--and just to think there is something out there gave me a bit of comfort! I looked it up on Google and I came up with SUDOCREAM as an English product for  diaper rash--and that does sound like it might help. It's spelled differently.
Did you buy it over the counter in America?
Thanks so much!

Jackie333

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Re: My cure......

Post  Ema222 on Wed Feb 05, 2014 7:07 pm

Yeah that's it! It's a cream used for forming a barrier against irritants - zinc oxide is one of the main ingredients- used on wounds/ nappy rash that kind of thing- not sure what it goes under in America ( I'm from uk) honestly the best thing I ever discovered!!!

Ema222

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Re: My cure......

Post  jackie333 on Wed Feb 05, 2014 8:39 pm

Thank you so much for replying.
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333

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Re: My cure......

Post  zarli on Thu Feb 06, 2014 10:21 am

Im from AUS and I find bepantham cream (also a nappy rash cream) not sure if I spelt it quite right, is wonderful also acts as a barrier.

zarli

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 2:02 pm

Thank you so much! Another lady from the UK suggested a cream as well (Sudocream?)
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.

jackie333

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Re: My cure......

Post  Delilah1 on Thu Feb 06, 2014 3:11 pm

Hello Ema222! I looked it up on Amazon and found Sudocrem Antiseptic Cream. Is this what you used? Says it's used for napkin rash, eczema and bed sores? I would like to order it and try it if this is what you used. Thank you

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Re: My cure......

Post  jackie333 on Thu Feb 06, 2014 3:35 pm

I'm so glad I just rechecked with Amazon!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered Very Happy  a jar--Thank you!

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Re: My cure......

Post  tinkerbelle2 on Tue Feb 11, 2014 8:40 pm

Ema, this is great!!! Very Happy Congratulations on the pregnancy too Very Happy
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope Very Happy x
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Re: My cure......

Post  Rose86 on Tue Feb 18, 2014 7:09 pm

That's amazing that it worked for you! Can I ask what your symptoms were though?

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Re: My cure......

Post  Sebby (Admin) on Thu May 08, 2014 1:42 pm

Welcome to the forum, so pleased you found something that helped!  Smile 
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Re: My cure......

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