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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
My cure......
+4
zarli
jackie333
mary jane
Ema222
8 posters
Page 1 of 1
My cure......
Ladies - this is the first time I have joined a chat- I had vulvodynia for 3
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.
I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!
I hope it works for you too!!!! Xxxx
horrendous years- went through everything , seen different specialists, had biopsy, put on every kind of med - and nothing worked! I cried all the time , my stomach felt anxious all the time and I feared it would never go away- it all came on after
coming off the pill dianette which I had been on for 10years, 4 weeks later the pain began... Although docs didn't believe there was a link. They put me on amitriptyline indefinitely- but this made me drowsy and yucky and the reason I came of the pill was to try for baby so after being on it for about a yr I slowly came off it and found it had made no diff at all! ........
After trying everything ( washing myself with water down there everyday ) I decided to stop trying - I read a post somewhere about just using sudacream- so that's what I started to do- I slopped it on everytime it got sore .... For the first few weeks there wasn't much diff and then it began to work!!!!!!!!! ..... It's really messy I wanted to wash down there so bad- but I resisted and it worked!!!!!!!! ..... 1 1/2 years later it's still working...... Only now I only have to put it on randomly - maybe once a week when it starts to feel a little uncomfortable and whatever it does if seems to protect down there And stop the pain!!!!!!!! I never try to rub it off in the shower I just use a little water and that's it- I used to get lots reaccuring thrush etc but since I stopped washing down there not once have I go it! The best part sudacream is safe long term- the steriod creams they used to have me on helped a little but can lead to worse problems with continued use.
I am now pregnant and pain free - can wear underwear nd enjoy life again- and ll for something so simple!!!!!!!! ..... My doc couldn't believ that's what worked on the end!
I hope it works for you too!!!! Xxxx
Ema222- Posts : 2
Join date : 2014-02-04
Re: My cure......
wow, your doctor was a complete idiot to have put you on amitriptyline, which is for NERVE PAIN, when you had a hormonal trigger for your type of pain.
glad you found relief!
glad you found relief!
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
My Cure
I read that the Sudacream helped--and just to think there is something out there gave me a bit of comfort! I looked it up on Google and I came up with SUDOCREAM as an English product for diaper rash--and that does sound like it might help. It's spelled differently.
Did you buy it over the counter in America?
Thanks so much!
Jackie333
Did you buy it over the counter in America?
Thanks so much!
Jackie333
jackie333- Posts : 20
Join date : 2014-02-05
Age : 78
Location : Southern California
Re: My cure......
Yeah that's it! It's a cream used for forming a barrier against irritants - zinc oxide is one of the main ingredients- used on wounds/ nappy rash that kind of thing- not sure what it goes under in America ( I'm from uk) honestly the best thing I ever discovered!!!
Ema222- Posts : 2
Join date : 2014-02-04
Re: My cure......
Thank you so much for replying.
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333
I went to our druggist today but it doesn't appear that the cream is for sale in America : (
There are several Zinc Oxide diaper rash creams but not that one.
I am going to see another specialist on the 11th and am so hoping I get some relief. We are taking a two week trip in about 2 1/2 weeks and it's so awful to travel when the pain is acute.
Thank you again-
Jackie333
jackie333- Posts : 20
Join date : 2014-02-05
Age : 78
Location : Southern California
Re: My cure......
Im from AUS and I find bepantham cream (also a nappy rash cream) not sure if I spelt it quite right, is wonderful also acts as a barrier.
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: My cure......
Thank you so much! Another lady from the UK suggested a cream as well (Sudocream?)
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.
I went to the store yesterday and it doesn't appear that we have that cream in the USA. They had a lot of nappie creams with Zinc Oxide---I'm hoping that the doctor on Tuesday will offer a suggestion that will give me some peace of mind before our trip.
I would love to email you, but I received a message that I will have to be a member for 7 days before they will allow it. That's understandable since I am new.
jackie333- Posts : 20
Join date : 2014-02-05
Age : 78
Location : Southern California
Re: My cure......
Hello Ema222! I looked it up on Amazon and found Sudocrem Antiseptic Cream. Is this what you used? Says it's used for napkin rash, eczema and bed sores? I would like to order it and try it if this is what you used. Thank you
Delilah1- Posts : 55
Join date : 2013-04-24
Re: My cure......
I'm so glad I just rechecked with Amazon!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered a jar--Thank you!
Yesterday I went to two stores (I live in California, USA,) to see if they had the cream, and it appears that it's not carried locally or even in this country. I also tried Amazon and the suppliers all seemed to be in the UK. Today I did find a supplier on Amazon that is in the USA and I ordered a jar--Thank you!
jackie333- Posts : 20
Join date : 2014-02-05
Age : 78
Location : Southern California
Re: My cure......
Ema, this is great!!! Congratulations on the pregnancy too
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope x
, I often use Sudocrem down there and although it hasn't cured me it does definitely soothe. But posts like this give us all hope x
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: My cure......
That's amazing that it worked for you! Can I ask what your symptoms were though?
Rose86- Posts : 51
Join date : 2011-06-23
Similar topics
» POSSIBLE CURE 4 EVERYONE
» From a concerned husband
» 13 years of vulvar pain, just starting to address it
» From a concerned husband
» 13 years of vulvar pain, just starting to address it
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer