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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Have been prescribed the famous amitryptline to try
4 posters
Page 1 of 1
Have been prescribed the famous amitryptline to try
MY GP is hopeful that it will really reduce the pain... i had little luck with the gabapentin. But I really hope this helps and maybe even makes everything back to normal! Did any of you have much luck with ami ?
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Have been prescribed the famous amitryptline to try
Tried it did nothing for me, but I used it as a topical I refused to take antidepressants. But that's me
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Have been prescribed the famous amitryptline to try
Hey Tinks
YES YES it worked for me for 4 years....I went off it too quickly and my pain came back. It didn't work when the pain came back so they swapped me to nortriptyline which is in the same family. The dose is too low for an antidepressant...I started on 10 mg slowly increasing to 35mg (which is low). That worked but I had no improvement until I had reached 35mg, which is the normal they tell me. The main problem of this med for me was weight gain and constipation but compared to having pain it never bothered me. The tiredness wears off so don't panic it could make you really sleepy but please know it does go away on the most part. I take meds about 2 hours before bed and then you feel better in the morning.
Good Luck....If it works for you let me know and I can tell you what my specialist said I should have done when trying to get off them. I know we are all different but the most info you can get is always helpful.
xx Z
YES YES it worked for me for 4 years....I went off it too quickly and my pain came back. It didn't work when the pain came back so they swapped me to nortriptyline which is in the same family. The dose is too low for an antidepressant...I started on 10 mg slowly increasing to 35mg (which is low). That worked but I had no improvement until I had reached 35mg, which is the normal they tell me. The main problem of this med for me was weight gain and constipation but compared to having pain it never bothered me. The tiredness wears off so don't panic it could make you really sleepy but please know it does go away on the most part. I take meds about 2 hours before bed and then you feel better in the morning.
Good Luck....If it works for you let me know and I can tell you what my specialist said I should have done when trying to get off them. I know we are all different but the most info you can get is always helpful.
xx Z
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Have been prescribed the famous amitryptline to try
really hope it works for you as it does for me, tinkerbelle. It has finally finally calmed down my nerve pain. It took 2 months to work for me, so please be patient and give it a try just so you can cross it off your list. The only side effects I get from it are anger and hostility mixed with some craziness the tiredness feeling should (at least should) go away after the first few weeks
however, after scavenging the dark depths of the internet for this disease, most women seem to react very well to lyrica (including on other forums for similar painful conditions like IC, etc)
however, after scavenging the dark depths of the internet for this disease, most women seem to react very well to lyrica (including on other forums for similar painful conditions like IC, etc)
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Have been prescribed the famous amitryptline to try
Thanks girls. I have a sneaky suspicion it won't help but it might:), I have only been taking it a week and am already constipated!!! Grrr really annoying because I already have a little hemoroid that I've been trying to heal and this won't help
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
Re: Have been prescribed the famous amitryptline to try
magnesium works for constipation AND nerve pain (it calms down the CNS)...fybogel is also quite good!
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Have been prescribed the famous amitryptline to try
Magnesium? ooh that's interesting. Yep on the fybogel now, and laxido. Yummy yum ! :/
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer