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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Burning bum

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Burning bum

Post  Zbrown on Tue Apr 22, 2014 8:02 pm

Does anyone else get this lately the burning has spread to inbetween my bum ans underneath bum cheeks almost feels bruised and sore :/ ... Anyone any tips for relief currently no acupuncture last two weeks she's on holiday feeling very very raw , I sometimes do wonder is it an allergy kind of thing tbh hmmm x

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Re: Burning bum

Post  Alana3 on Tue Apr 22, 2014 8:18 pm

You can get yeast infections there too.. may be that.

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Re: Burning bum

Post  Zbrown on Tue Apr 22, 2014 9:20 pm

Could well be been so uncomfortable , is it any use Alana have u ever went to like a natural healer a woman here does hair analyzing ect finds out deficiencies ect ? Xx

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 1:05 pm

Not really my thing to be honest. I tried acupuncture and massage and it doesn't really do anything. Acupuncture made me feel good that day but than I would cramp to the point I couldn't stand up and bleed like crazy. So I stopped going. The only thing that helped me really was my surgery. As for yeast, try AZO over the counter it helps I hadn't had a yeast infection since 4 months until now. Worth a shot.

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 4:59 pm

Yeah I noticed that with acupuncture on the day felt great but next day woul be back to the same more or less , if only there was a surgery for me but mine seems to be unprovoked and generalised inner thighs and stuff how unfortunate x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 6:36 pm

Yeah, honestly the whole natural approach seems hocus pocus to me. None of it helped me. But than you never know I guess. I wish I had a better answer for you Sad

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:00 pm

Aww don't worry , find one eventually an answer lol that is !!!! I hope I just need to get a good doctor who knows there stuff we have the nhs here so it's all wait if I could afford to go private I would but with this and working less not the best option. It's just such a draining illness xo

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:12 pm

It is! I recommend a private doctor, but I understand if you cant- even with a private doctor it took me years to find the right one. They were diagnosing me from herpes to dryness. My doctor now finally said I see your problem here it is and here is what I can do. Thank god! But it took from the time I was 20 or 21 to when I finally got the surgery at 27. So years. Be patient, someone will eventually help you. But my advice with some of these girls on here are like OMG IM GONNA TRY THIS and than THIS and than they have a mess and are overwhelmed of too much stuff that they are trying not knowing what any of it really does. Yeah, you can ingest coconut oil, but really that's not going to do anything for you except cause you to break out. Yes you can rub crap on your vag but again is that really doing anything for you? Probably not. BREATHE and realize that someone can help you but don't go crazy with the natural stuff. And remember anyone can claim a cure and take your money, so be careful!!!!!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:38 pm

Yeah like iv read majority of all the posts on here and some are crazy ! Like tbh I can't even manage pants ever mind half of the treatments down there lol, no I honestly did pay to go private and she examined me red the notes my gp gave to take with me and asked a lot of questions , I did say visually I can't see anything wrong except a bit of redness but I explained the pain was burning so bad felt raw burning sensation. I told her what most of the other doctors said there's nothing visually wrong and kept telling me I had thrush bv ect but all where negative ! She said just because there's nothing visually wrong doesn't mean there isn't a problem which kind of reassured me I finally have someone listening to me but wether she can help me is another thing I do hope so currently waiting on my appointment to see her and she can give me something for relief idk have to be hopeful Smile x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:55 pm

I don't know where you live by I googled something like "vulvodynia specialsts and where I lived" and found my doctor that way. Sometimes you do need the specialist!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 8:39 pm

Thanks for the advice Alana means a lot Smile good to know there are people here who understand x

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Re: Burning bum

Post  Alana3 on Thu Apr 24, 2014 1:43 pm

For sure! Good luck and be patient!!!

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Re: Burning bum

Post  Zbrown on Thu Apr 24, 2014 9:02 pm

Will do thanks Smile today was one of the better days x

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Re: Burning bum

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