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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Burning bum

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Burning bum

Post  Zbrown on Tue Apr 22, 2014 8:02 pm

Does anyone else get this lately the burning has spread to inbetween my bum ans underneath bum cheeks almost feels bruised and sore :/ ... Anyone any tips for relief currently no acupuncture last two weeks she's on holiday feeling very very raw , I sometimes do wonder is it an allergy kind of thing tbh hmmm x

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Re: Burning bum

Post  Alana3 on Tue Apr 22, 2014 8:18 pm

You can get yeast infections there too.. may be that.

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Re: Burning bum

Post  Zbrown on Tue Apr 22, 2014 9:20 pm

Could well be been so uncomfortable , is it any use Alana have u ever went to like a natural healer a woman here does hair analyzing ect finds out deficiencies ect ? Xx

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 1:05 pm

Not really my thing to be honest. I tried acupuncture and massage and it doesn't really do anything. Acupuncture made me feel good that day but than I would cramp to the point I couldn't stand up and bleed like crazy. So I stopped going. The only thing that helped me really was my surgery. As for yeast, try AZO over the counter it helps I hadn't had a yeast infection since 4 months until now. Worth a shot.

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 4:59 pm

Yeah I noticed that with acupuncture on the day felt great but next day woul be back to the same more or less , if only there was a surgery for me but mine seems to be unprovoked and generalised inner thighs and stuff how unfortunate x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 6:36 pm

Yeah, honestly the whole natural approach seems hocus pocus to me. None of it helped me. But than you never know I guess. I wish I had a better answer for you Sad

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:00 pm

Aww don't worry , find one eventually an answer lol that is !!!! I hope I just need to get a good doctor who knows there stuff we have the nhs here so it's all wait if I could afford to go private I would but with this and working less not the best option. It's just such a draining illness xo

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:12 pm

It is! I recommend a private doctor, but I understand if you cant- even with a private doctor it took me years to find the right one. They were diagnosing me from herpes to dryness. My doctor now finally said I see your problem here it is and here is what I can do. Thank god! But it took from the time I was 20 or 21 to when I finally got the surgery at 27. So years. Be patient, someone will eventually help you. But my advice with some of these girls on here are like OMG IM GONNA TRY THIS and than THIS and than they have a mess and are overwhelmed of too much stuff that they are trying not knowing what any of it really does. Yeah, you can ingest coconut oil, but really that's not going to do anything for you except cause you to break out. Yes you can rub crap on your vag but again is that really doing anything for you? Probably not. BREATHE and realize that someone can help you but don't go crazy with the natural stuff. And remember anyone can claim a cure and take your money, so be careful!!!!!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:38 pm

Yeah like iv read majority of all the posts on here and some are crazy ! Like tbh I can't even manage pants ever mind half of the treatments down there lol, no I honestly did pay to go private and she examined me red the notes my gp gave to take with me and asked a lot of questions , I did say visually I can't see anything wrong except a bit of redness but I explained the pain was burning so bad felt raw burning sensation. I told her what most of the other doctors said there's nothing visually wrong and kept telling me I had thrush bv ect but all where negative ! She said just because there's nothing visually wrong doesn't mean there isn't a problem which kind of reassured me I finally have someone listening to me but wether she can help me is another thing I do hope so currently waiting on my appointment to see her and she can give me something for relief idk have to be hopeful Smile x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:55 pm

I don't know where you live by I googled something like "vulvodynia specialsts and where I lived" and found my doctor that way. Sometimes you do need the specialist!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 8:39 pm

Thanks for the advice Alana means a lot Smile good to know there are people here who understand x

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Re: Burning bum

Post  Alana3 on Thu Apr 24, 2014 1:43 pm

For sure! Good luck and be patient!!!

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Re: Burning bum

Post  Zbrown on Thu Apr 24, 2014 9:02 pm

Will do thanks Smile today was one of the better days x

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Re: Burning bum

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