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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Burning bum

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Burning bum

Post  Zbrown on Tue Apr 22, 2014 8:02 pm

Does anyone else get this lately the burning has spread to inbetween my bum ans underneath bum cheeks almost feels bruised and sore :/ ... Anyone any tips for relief currently no acupuncture last two weeks she's on holiday feeling very very raw , I sometimes do wonder is it an allergy kind of thing tbh hmmm x

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Re: Burning bum

Post  Alana3 on Tue Apr 22, 2014 8:18 pm

You can get yeast infections there too.. may be that.

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Re: Burning bum

Post  Zbrown on Tue Apr 22, 2014 9:20 pm

Could well be been so uncomfortable , is it any use Alana have u ever went to like a natural healer a woman here does hair analyzing ect finds out deficiencies ect ? Xx

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 1:05 pm

Not really my thing to be honest. I tried acupuncture and massage and it doesn't really do anything. Acupuncture made me feel good that day but than I would cramp to the point I couldn't stand up and bleed like crazy. So I stopped going. The only thing that helped me really was my surgery. As for yeast, try AZO over the counter it helps I hadn't had a yeast infection since 4 months until now. Worth a shot.

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 4:59 pm

Yeah I noticed that with acupuncture on the day felt great but next day woul be back to the same more or less , if only there was a surgery for me but mine seems to be unprovoked and generalised inner thighs and stuff how unfortunate x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 6:36 pm

Yeah, honestly the whole natural approach seems hocus pocus to me. None of it helped me. But than you never know I guess. I wish I had a better answer for you Sad

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:00 pm

Aww don't worry , find one eventually an answer lol that is !!!! I hope I just need to get a good doctor who knows there stuff we have the nhs here so it's all wait if I could afford to go private I would but with this and working less not the best option. It's just such a draining illness xo

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:12 pm

It is! I recommend a private doctor, but I understand if you cant- even with a private doctor it took me years to find the right one. They were diagnosing me from herpes to dryness. My doctor now finally said I see your problem here it is and here is what I can do. Thank god! But it took from the time I was 20 or 21 to when I finally got the surgery at 27. So years. Be patient, someone will eventually help you. But my advice with some of these girls on here are like OMG IM GONNA TRY THIS and than THIS and than they have a mess and are overwhelmed of too much stuff that they are trying not knowing what any of it really does. Yeah, you can ingest coconut oil, but really that's not going to do anything for you except cause you to break out. Yes you can rub crap on your vag but again is that really doing anything for you? Probably not. BREATHE and realize that someone can help you but don't go crazy with the natural stuff. And remember anyone can claim a cure and take your money, so be careful!!!!!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 7:38 pm

Yeah like iv read majority of all the posts on here and some are crazy ! Like tbh I can't even manage pants ever mind half of the treatments down there lol, no I honestly did pay to go private and she examined me red the notes my gp gave to take with me and asked a lot of questions , I did say visually I can't see anything wrong except a bit of redness but I explained the pain was burning so bad felt raw burning sensation. I told her what most of the other doctors said there's nothing visually wrong and kept telling me I had thrush bv ect but all where negative ! She said just because there's nothing visually wrong doesn't mean there isn't a problem which kind of reassured me I finally have someone listening to me but wether she can help me is another thing I do hope so currently waiting on my appointment to see her and she can give me something for relief idk have to be hopeful Smile x

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Re: Burning bum

Post  Alana3 on Wed Apr 23, 2014 7:55 pm

I don't know where you live by I googled something like "vulvodynia specialsts and where I lived" and found my doctor that way. Sometimes you do need the specialist!

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Re: Burning bum

Post  Zbrown on Wed Apr 23, 2014 8:39 pm

Thanks for the advice Alana means a lot Smile good to know there are people here who understand x

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Re: Burning bum

Post  Alana3 on Thu Apr 24, 2014 1:43 pm

For sure! Good luck and be patient!!!

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Re: Burning bum

Post  Zbrown on Thu Apr 24, 2014 9:02 pm

Will do thanks Smile today was one of the better days x

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Re: Burning bum

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