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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Healing with simple changes, reduced my pain in less then a month!!

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Healing with simple changes, reduced my pain in less then a month!!

Post  Sparkle on Thu Oct 23, 2014 10:03 pm

Hey all,

I would like to share aome advice with the girls on here. I'm not claiming to have found a cure but I want to share what has been working for me lately. I've found lots of advice on here so only fair I share my own methods. This may not work for everyone but worth a try? I had bad burning and shooting pains that wudnt go away for a year before I made changes.

Note: I have provoked vestibular vulvadynia. Pain in inyercourse, burning and stabbing pains. Pain on touch. I can also get pain if I wear too tight trousers or have presaure for long periods on my vulva. I was diagnosed a month ago but have had this for over a year

What's working for me;

1) vitamins, calcium citrate, magnesium & fish oil
2) vitamin e oil morning and night on yor bits even inside if it helps. Also apply in day if u feel like it.
3) lidocaine 5% ointment every night after a bath ( I rub this into the vestibules,entrance to vagina)
4) I only wash using aqueous creme or emulsifying ointment. No perfumed stuff in bath or shower.
5) wash hair over bath so no shampoo runs into your bits.
6) wash knickers in non bio powder and NO softener.
7)baking soda in bath a few times a week. I don't have it in every bath just a couple a week.
Cool only wear leggings to work, jeans seem to irritate it and cause flare ups.
9) use yes lube on low pain days if u can tollerate sex, also vitamin e oil afterwards or coconut oil to soothe.
9) frozen ice Lollys to eat with 2 table spoons of coconut oils in Apple and mango juice.

So these are my methods and I can honestly say my pain has decreased around 70% to what it has been at its worst.

I know this won't work for everyone but if even this helps one of u then this post has been worth writing.
We all have to keep up the faith and hope that one day each and everyone of us with find a way to manage this condition so it doesn't take over our lives and take away our hope.

Take care girls! Any questions Fire away xxx

Sparkle

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  Sparkle on Thu Oct 23, 2014 10:04 pm

I don't know why my number 8 has sunglasses lol

Sparkle

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  meelie on Fri Oct 24, 2014 12:28 am

where do you get your vit e oil? Is it organic? what is your recipe for the lollies? Sounds like you are doing something right. I will have to study up and print your advice. Anything else you remember let us know. Oh, how much magnesium and how much calcium? I am going to try Epsom Salts bath. Dr. Oz says it helps sooth inflammation. Have you ever tried it? Soda didn't seem to help me much.

meelie

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  Sparkle on Fri Oct 24, 2014 8:42 am

The vitamin E oil i use is called dr.Organic (Bioactive skin care) It called Organic Vitamin E Pure oil complex and it says on back it has rose oil, rosehip oil and jojoba oil in it. Yes its Organic. I get it from Holland and Barretts and its about 10 quid. Are you from the UK? if not im sure you will be able to find something similar where you are.

The lollys i have only used last few days lol but i needed to try and get coconut oil into my gut/stomach/diet as ive heard good things about eating it. This was my way of getting into my diet in a nice tasty way. You need ice lolly trays, some apple and mango juice (or any fruit juice that low oxalate, could even make coconut lemonade lollys! whatever u fancy) and a tub of coconut oil, again get an organic one.
Melt the coconut oil in microwave and mix together with the juice....try and get two table spoons into each lolly. freeze and eat after your dinner or whenever u fancy! try and have one a day.

Another thing i remember that im doing (might be a bit obvious) is only cotton knickers. Wash your underwear separate to clothes using above advice, and also maybe you could try that with a towel as well, and only use that to dry your bits with. What im trying to do is make sure NO perfumed products get down there to stop irritation.

Vitamins im not actually taking as much as recommended on the bottle (purely becos of the size of these pills lol) the bottle for calcium citrate state 1000mg for 4 pills, i only take 2 a day of those. This also have vitamin D3 In it but i think thats in all calcium citrate tabs. im gong to order stronger ones next time so i can take less tabs for a higher dose i will only take between 500 -1000mg.

Magnesium (im taking magnesium malate) same story, massive tabs, the bot says 425mg for 3 tabs, i take 2. Again i will be looking for stronger ones so can take less tabs.

I dont know if this will work for you as everyone is different but i think these are simple changes that could potentially makes a massive difference.
Please let me know how you get on. Im so surprised how quickly all these things are working for me and I hope that for others this could help them too.
My pain today has gone down to a 1, I had mainly pain free sex this morning (hurt a tiny bit first of all and towards end) and i hadnt used lidocaine since evening before and this is the first time it hasnt burned or bled for well over a year.

what are your symptoms? are u genralized or provoked?

Sparkle

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  Sparkle on Fri Oct 24, 2014 8:44 am

No I haven't tried hose salt baths. I might give them a go too! What are they? Where do u get the salts from?

Sparkle

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  Sparkle on Wed Nov 05, 2014 5:01 pm

Just another update on using these methods I don't have pain at all some days. I'm able to have sex without pain now and only a slight pain at the start of intercourse. I really feel like I have got my life back and my sex life back. I hope that you all find your solutions and hope that my post has helped some of you. I don't no how long this will last for me but even if it comes back with force in a few months or so, the break has been nice.

I want u all the hold on to hope and never lose faith, this condition can be managed you just have to find what's righr for you.
Keep your heads up girls
X

Sparkle

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Re: Healing with simple changes, reduced my pain in less then a month!!

Post  Qu_789 on Mon May 02, 2016 10:43 pm

Hi Sparkle, thanks for your positive messages, much appreciated. I know it's been a while since your posts, but just wanted to know if your methods continued to work and whether you have stayed pain free?
I've had vulvodynia for over 5 years and vaginismus, so any positive stories are helpful and great to know what is working for other people.

Thanks very much

Qu_789

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Re: Healing with simple changes, reduced my pain in less then a month!!

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