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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Nov 14, 2014 12:42 pm

I just feel like they're not being thorough enough. I want the works, biopsies, tests for anything abnormal going on so I can be rid of this!! ive had a million STD and yeast/bacterial checks and urine tests.. but i keep reading about other women who've had these other things checked. I also want a full blood test and vitamin deficiency test in case.. do u know if you can get these things on the NHS?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  sailor_moon on Thu Nov 27, 2014 11:15 am

Have you had a monthly hormone profile blood test?  Testing all your hormone levels every week for a full cycle to see what each hormone is doing week by week..fluctuations, too high 1 week, too low the next ect. And an AMH test, which tests for PCOS. 

I had 2 biopsies done, they don't hurt anywhere near as much as you think. Mine only came back with inflammation. ..non-specific.  But it will rule any dermalogical conditions out. 

I don't know about where you're from, but all that was free here in Australia,  besides the AMH test which I paid $70 for and got a result! 

When I had one-off hormone tests, nothing came up, but doing s monthly one showed my levels were not active, I have very low estrogen that is neither rising or falling. And the AMH test confirmed PCOS,  which was backed-up by a vaginal ultrasound thst showed all the cysts on my ovaries.

Do you have any other symptoms besides vulvodynia?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  elednor on Sat Dec 13, 2014 12:04 am

Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Dec 09, 2016 3:05 pm

elednor wrote:Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth


Sorry for two year late reply - oops! If you still use this site I'd love to chat!
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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