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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Nov 14, 2014 12:42 pm

I just feel like they're not being thorough enough. I want the works, biopsies, tests for anything abnormal going on so I can be rid of this!! ive had a million STD and yeast/bacterial checks and urine tests.. but i keep reading about other women who've had these other things checked. I also want a full blood test and vitamin deficiency test in case.. do u know if you can get these things on the NHS?
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tinkerbelle2

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  sailor_moon on Thu Nov 27, 2014 11:15 am

Have you had a monthly hormone profile blood test?  Testing all your hormone levels every week for a full cycle to see what each hormone is doing week by week..fluctuations, too high 1 week, too low the next ect. And an AMH test, which tests for PCOS. 

I had 2 biopsies done, they don't hurt anywhere near as much as you think. Mine only came back with inflammation. ..non-specific.  But it will rule any dermalogical conditions out. 

I don't know about where you're from, but all that was free here in Australia,  besides the AMH test which I paid $70 for and got a result! 

When I had one-off hormone tests, nothing came up, but doing s monthly one showed my levels were not active, I have very low estrogen that is neither rising or falling. And the AMH test confirmed PCOS,  which was backed-up by a vaginal ultrasound thst showed all the cysts on my ovaries.

Do you have any other symptoms besides vulvodynia?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  elednor on Sat Dec 13, 2014 12:04 am

Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Dec 09, 2016 3:05 pm

elednor wrote:Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth


Sorry for two year late reply - oops! If you still use this site I'd love to chat!
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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