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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Nov 14, 2014 12:42 pm

I just feel like they're not being thorough enough. I want the works, biopsies, tests for anything abnormal going on so I can be rid of this!! ive had a million STD and yeast/bacterial checks and urine tests.. but i keep reading about other women who've had these other things checked. I also want a full blood test and vitamin deficiency test in case.. do u know if you can get these things on the NHS?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  sailor_moon on Thu Nov 27, 2014 11:15 am

Have you had a monthly hormone profile blood test?  Testing all your hormone levels every week for a full cycle to see what each hormone is doing week by week..fluctuations, too high 1 week, too low the next ect. And an AMH test, which tests for PCOS. 

I had 2 biopsies done, they don't hurt anywhere near as much as you think. Mine only came back with inflammation. ..non-specific.  But it will rule any dermalogical conditions out. 

I don't know about where you're from, but all that was free here in Australia,  besides the AMH test which I paid $70 for and got a result! 

When I had one-off hormone tests, nothing came up, but doing s monthly one showed my levels were not active, I have very low estrogen that is neither rising or falling. And the AMH test confirmed PCOS,  which was backed-up by a vaginal ultrasound thst showed all the cysts on my ovaries.

Do you have any other symptoms besides vulvodynia?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  elednor on Sat Dec 13, 2014 12:04 am

Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Dec 09, 2016 3:05 pm

elednor wrote:Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth


Sorry for two year late reply - oops! If you still use this site I'd love to chat!
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