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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Nov 14, 2014 12:42 pm

I just feel like they're not being thorough enough. I want the works, biopsies, tests for anything abnormal going on so I can be rid of this!! ive had a million STD and yeast/bacterial checks and urine tests.. but i keep reading about other women who've had these other things checked. I also want a full blood test and vitamin deficiency test in case.. do u know if you can get these things on the NHS?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  sailor_moon on Thu Nov 27, 2014 11:15 am

Have you had a monthly hormone profile blood test?  Testing all your hormone levels every week for a full cycle to see what each hormone is doing week by week..fluctuations, too high 1 week, too low the next ect. And an AMH test, which tests for PCOS. 

I had 2 biopsies done, they don't hurt anywhere near as much as you think. Mine only came back with inflammation. ..non-specific.  But it will rule any dermalogical conditions out. 

I don't know about where you're from, but all that was free here in Australia,  besides the AMH test which I paid $70 for and got a result! 

When I had one-off hormone tests, nothing came up, but doing s monthly one showed my levels were not active, I have very low estrogen that is neither rising or falling. And the AMH test confirmed PCOS,  which was backed-up by a vaginal ultrasound thst showed all the cysts on my ovaries.

Do you have any other symptoms besides vulvodynia?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  elednor on Sat Dec 13, 2014 12:04 am

Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Dec 09, 2016 3:05 pm

elednor wrote:Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth


Sorry for two year late reply - oops! If you still use this site I'd love to chat!
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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