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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Nov 14, 2014 12:42 pm

I just feel like they're not being thorough enough. I want the works, biopsies, tests for anything abnormal going on so I can be rid of this!! ive had a million STD and yeast/bacterial checks and urine tests.. but i keep reading about other women who've had these other things checked. I also want a full blood test and vitamin deficiency test in case.. do u know if you can get these things on the NHS?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  sailor_moon on Thu Nov 27, 2014 11:15 am

Have you had a monthly hormone profile blood test?  Testing all your hormone levels every week for a full cycle to see what each hormone is doing week by week..fluctuations, too high 1 week, too low the next ect. And an AMH test, which tests for PCOS. 

I had 2 biopsies done, they don't hurt anywhere near as much as you think. Mine only came back with inflammation. ..non-specific.  But it will rule any dermalogical conditions out. 

I don't know about where you're from, but all that was free here in Australia,  besides the AMH test which I paid $70 for and got a result! 

When I had one-off hormone tests, nothing came up, but doing s monthly one showed my levels were not active, I have very low estrogen that is neither rising or falling. And the AMH test confirmed PCOS,  which was backed-up by a vaginal ultrasound thst showed all the cysts on my ovaries.

Do you have any other symptoms besides vulvodynia?
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  elednor on Sat Dec 13, 2014 12:04 am

Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth

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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

Post  tinkerbelle2 on Fri Dec 09, 2016 3:05 pm

elednor wrote:Hi! i'm also from the UK, and i've had all the same (urine tests, a million STD tests because apparently they can't just believe the previous ones). In addition to those i had an ultrasound - i can't remember the proper name for it but they basically put a cold proddy thing up your vagina - and that was on the NHS, although they didn't find anything relevant. I've also had loads of different swabs and tests with hormones and acidity and stuff like that, some through my GP and some through the women's hospital in Birmingham which i'd recommend if you can get there easily enough.
Please message me if you have any questions! I hope i was able to help at least a little!
Beth


Sorry for two year late reply - oops! If you still use this site I'd love to chat!
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Re: I'm in UK, anyone know any additional tests I can request e.g. hormone/ acidity ...

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