Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
Shiney red raw area ? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Shiney red raw area ? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Shiney red raw area ? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Shiney red raw area ? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Shiney red raw area ? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Shiney red raw area ? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Shiney red raw area ? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Shiney red raw area ? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Shiney red raw area ? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Shiney red raw area ?

4 posters

Vulvodynia Support :: Support and Advice

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Shiney red raw area ? Empty Shiney red raw area ?

Post  Zbrown Sat Nov 29, 2014 12:13 am

Today I have noticed on my labia minora on one side a really bright red shiney raw area which is sore and looks very irritated :/ I haven't shaved or used any products down there except water. My caginal area is usually quite dry these days but this one area is very red any ideas ??? On gapapentin only ATM ??? Could it be herpes :s my boyfriend has always had coldsores on lip ??? I hope not :/ xxx

Zbrown

Posts : 131
Join date : 2014-02-26

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Post  meelie Sat Nov 29, 2014 1:45 am

Don't know, but I do know for sure that the cold sores on his lip can easily be transferred to the vaginal area. Herpes Simplex is a virus does infect others in oral and vaginal and penile areas.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  sailor_moon Sat Nov 29, 2014 11:22 am

I have red shiny raw irritation 24/7...it has been biopsied twice and both have come back with no result other than non-specific inflammation.

BUT,  There are lots of different things your issue could be, it could be a fungal, herpes...slthough herpes forms blisters usually, allergic reaction ect...the list goes on. Is it sore? Itchy?

Is it an open wound? Is it raised?
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  Zbrown Sat Nov 29, 2014 6:08 pm

No jut really red and sore bit shiney and uncomfortable inflamed but no blisters I can see :/ like just swollen ect really Uncomfy came about maybe two nights ago but really sore last night :/ .... There also is some white discgarge so idk if that's siding the irritation xx

Zbrown

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Post  Zbrown Sat Nov 29, 2014 6:08 pm

Causing*

Zbrown

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Post  sailor_moon Sat Nov 29, 2014 8:57 pm

Thrush can be accompanied by a white "milky" discharge. Are you irritated inside as well? Is your discharge normal for you or not?
sailor_moon
sailor_moon

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Join date : 2014-07-06
Location : Australia

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Post  Sparkle Sun Nov 30, 2014 3:23 am

I have had this, mine turns into blisters then sores and I get them for a few weeks. I have never had herpes but it looks like it Ive been tested tho and negative.
Try and think what u was doing two night ago to bring this on? I tried toe work out wot being mine on. I'm not sure atm. Cud be sex or maybe stress. I've had it so many time it's starting to look like a scar down Ther as alway in same place. I put dead sea salt on it and that stings lik a fucker but seems to give it relief once stinging does down. It also Drys it up. Is this first time it happend?

Sparkle

Posts : 84
Join date : 2014-10-03

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Post  Zbrown Sun Nov 30, 2014 10:59 pm

Could be stress works been crazy and I did wear shorts one day as I was feeling better , haven't had sex since my boyfriend lives far away ATM. I guess it was similar to lAst year once I first got it.yeah I also get the burning pain tops of back legs under bum cheeks ect this is a nearly ongoing symptom xx

Zbrown

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