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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Some Progress with Duloxetine

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Some Progress with Duloxetine

Post  PainBlogger on Mon Nov 02, 2015 11:23 am

Hi everyone,

I've noticed some progress since I've switched from tricyclics to duloxetine and I thought people might be interested to know. I was going to post last week, but was in two minds because I didn't want to tempt fate and have a relapse! Well, as of yesterday, I have had a bit of an increase in pain again Neutral , but I've decided that I still should be optimistic and, whatever happens next, I've had quite a few better days over the last few weeks.

I've been on the duloxetine for about 6 weeks, started on 30mg and now on 60mg for the last 4 weeks or so. In the last three weeks my maximum average daily pain has been a 4/10. Now, I should point out that I think I'm quite conservative in rating my pain. I never rate it above a 6. Why? - Because when the doctors say 10 is 'the worst pain you can imagine', I can imagine a great deal! In my way of thinking, if it was a 9 or 10 I'd be on the verge of unconsciousness. So, 6 is my worst, but 6 is pretty darn bad. Anything above a 1/10 means it's disrupting my mood, though it's between 3 and 6 that really gets me down.

I've had quite a few days where my pain has been as low as a 1/10 in the last three weeks. Last week it was about 1/10 most days - which I'm really glad about. What's more, that's including some days when the external problem area has been slightly provoked by touch (though I've still been very careful about what I'm eating/drinking/wearing/washing with/sitting on). I don't know if my internal pain is any better because I have not investigated.

I don't know what (if anything) has made my pain increase today, but it's back to spiking whenever I empty my bladder Neutral . Hopefully it will calm down again soon. It's about a 3/10 right now.

So, basically, I just wanted to share that I feel more optimistic now than I have in a while. I feel like if I can have a few more weeks like last week then maybe I can make a dent in breaking the pain cycle more permanently. Even if have two steps forward and one back then that is still gradual progress. I think the duloxetine is playing a substantial part in the progress, although it is possible it's just random and I'm still having acupuncture and doing physiotherapy exercises also. But I continue to keep a pain diary, so I can reassess in another month or so.


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Re: Some Progress with Duloxetine

Post  WaahwaahUK on Mon Nov 02, 2015 8:46 pm

This is fantastic to hear! Hope it continues for you.

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