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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Some Progress with Duloxetine

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Some Progress with Duloxetine

Post  PainBlogger on Mon Nov 02, 2015 11:23 am

Hi everyone,

I've noticed some progress since I've switched from tricyclics to duloxetine and I thought people might be interested to know. I was going to post last week, but was in two minds because I didn't want to tempt fate and have a relapse! Well, as of yesterday, I have had a bit of an increase in pain again Neutral , but I've decided that I still should be optimistic and, whatever happens next, I've had quite a few better days over the last few weeks.

I've been on the duloxetine for about 6 weeks, started on 30mg and now on 60mg for the last 4 weeks or so. In the last three weeks my maximum average daily pain has been a 4/10. Now, I should point out that I think I'm quite conservative in rating my pain. I never rate it above a 6. Why? - Because when the doctors say 10 is 'the worst pain you can imagine', I can imagine a great deal! In my way of thinking, if it was a 9 or 10 I'd be on the verge of unconsciousness. So, 6 is my worst, but 6 is pretty darn bad. Anything above a 1/10 means it's disrupting my mood, though it's between 3 and 6 that really gets me down.

I've had quite a few days where my pain has been as low as a 1/10 in the last three weeks. Last week it was about 1/10 most days - which I'm really glad about. What's more, that's including some days when the external problem area has been slightly provoked by touch (though I've still been very careful about what I'm eating/drinking/wearing/washing with/sitting on). I don't know if my internal pain is any better because I have not investigated.

I don't know what (if anything) has made my pain increase today, but it's back to spiking whenever I empty my bladder Neutral . Hopefully it will calm down again soon. It's about a 3/10 right now.

So, basically, I just wanted to share that I feel more optimistic now than I have in a while. I feel like if I can have a few more weeks like last week then maybe I can make a dent in breaking the pain cycle more permanently. Even if have two steps forward and one back then that is still gradual progress. I think the duloxetine is playing a substantial part in the progress, although it is possible it's just random and I'm still having acupuncture and doing physiotherapy exercises also. But I continue to keep a pain diary, so I can reassess in another month or so.


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Re: Some Progress with Duloxetine

Post  WaahwaahUK on Mon Nov 02, 2015 8:46 pm

This is fantastic to hear! Hope it continues for you.


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