Vulvodynia Support
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» Hope to all my suffering ladies
Some Progress with Duloxetine EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Some Progress with Duloxetine EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Some Progress with Duloxetine EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Some Progress with Duloxetine EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Some Progress with Duloxetine EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Some Progress with Duloxetine EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Some Progress with Duloxetine EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Some Progress with Duloxetine EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Some Progress with Duloxetine EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Some Progress with Duloxetine

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Some Progress with Duloxetine Empty Some Progress with Duloxetine

Post  PainBlogger Mon Nov 02, 2015 11:23 am

Hi everyone,

I've noticed some progress since I've switched from tricyclics to duloxetine and I thought people might be interested to know. I was going to post last week, but was in two minds because I didn't want to tempt fate and have a relapse! Well, as of yesterday, I have had a bit of an increase in pain again Neutral , but I've decided that I still should be optimistic and, whatever happens next, I've had quite a few better days over the last few weeks.

I've been on the duloxetine for about 6 weeks, started on 30mg and now on 60mg for the last 4 weeks or so. In the last three weeks my maximum average daily pain has been a 4/10. Now, I should point out that I think I'm quite conservative in rating my pain. I never rate it above a 6. Why? - Because when the doctors say 10 is 'the worst pain you can imagine', I can imagine a great deal! In my way of thinking, if it was a 9 or 10 I'd be on the verge of unconsciousness. So, 6 is my worst, but 6 is pretty darn bad. Anything above a 1/10 means it's disrupting my mood, though it's between 3 and 6 that really gets me down.

I've had quite a few days where my pain has been as low as a 1/10 in the last three weeks. Last week it was about 1/10 most days - which I'm really glad about. What's more, that's including some days when the external problem area has been slightly provoked by touch (though I've still been very careful about what I'm eating/drinking/wearing/washing with/sitting on). I don't know if my internal pain is any better because I have not investigated.

I don't know what (if anything) has made my pain increase today, but it's back to spiking whenever I empty my bladder Neutral . Hopefully it will calm down again soon. It's about a 3/10 right now.

So, basically, I just wanted to share that I feel more optimistic now than I have in a while. I feel like if I can have a few more weeks like last week then maybe I can make a dent in breaking the pain cycle more permanently. Even if have two steps forward and one back then that is still gradual progress. I think the duloxetine is playing a substantial part in the progress, although it is possible it's just random and I'm still having acupuncture and doing physiotherapy exercises also. But I continue to keep a pain diary, so I can reassess in another month or so.


PainBlogger

Posts : 219
Join date : 2015-07-27

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Some Progress with Duloxetine Empty Re: Some Progress with Duloxetine

Post  WaahwaahUK Mon Nov 02, 2015 8:46 pm

This is fantastic to hear! Hope it continues for you.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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