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    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 6

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 1

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22


    I'm terrified.

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    I'm terrified.

    Post  aaj12345 on Sun Nov 22, 2015 12:10 pm

    I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live like this forever. I cannot handle somebody telling me it's all in my head. It's only been three weeks and this is already having major impacts on my relationships. Panic attack after panic attack. I have an appointment with an OBGYN but they cannot see me until December. Even then, I have a feeling they will not believe me. I don't know what to do. I don't know anybody that has been through this before. My mom thinks I'm insane. Please help me.

    aaj12345

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    Re: I'm terrified.

    Post  WaahwaahUK on Sun Nov 22, 2015 3:30 pm

    I know how scary this can be. The most important thing to do is try and stay calm and look at what could be contributing to the pain for you. Have you tried wearing only cotton underwear, baking soda baths to ease some of the irritation at all? It's not something anyone here can tell you for sure what's causing your pain in particular but these things are worth trying and won't harm you. Do you have any back problems, past or present? Or aches in your legs? Some of us have nerve pain which can cause the skin to feel like its burning, or aching. Can you look at maybe seeing a physiotherapist, a chiropractor, or osteopath to explore this? Your skin may be reacting to thrush treatment maybe, that's another possibility, which is why baking soda baths, cotton underwear and no soap on that area may help. Three weeks isn't long if its an irritation, so it may calm itself down if you take some steps to soothe it. Try not to panic.


    Last edited by WaahwaahUK on Sun Nov 22, 2015 3:31 pm; edited 1 time in total (Reason for editing : Spelling whoops)

    WaahwaahUK

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    Re: I'm terrified.

    Post  PainBlogger on Sun Nov 22, 2015 9:11 pm

    I don't think any pain would be considered indicative of a chronic condition until it's been present for at least three months, maybe six. So, as Waahwaah says, don't panic. Stress will only make things worse. Easier said than done, but it's important to stay as calm as possible.
    Removing all irritants is a good idea. So fragrance free washing detergent on any clothes in contact with the area is advisable. Loose clothing in that area, making sure urine is dilute and not too acidic by drinking plenty of water (not fruit juice, fizzy drinks, caffeine, alcohol) and you could try rinsing with water after passing urine. Make sure you are using unscented sanitary products and toilet paper. If you do still have a yeast infection, oral treatment with fluconazole capsules would avoid the possibility of excipients in the topical treatment causing irritation.

    Yes, there are a lot of women on here who have been in pain for months/years, but it's important to remember that a lot of people do get completely better - they just get on with their lives and don't use this forum once they're better, which skews the stories on here towards the chronic sufferers. I've had problems for seventeen months, BUT, I am much better than I was last year. Some days my pain is down to a 1/10 and I am reasonably confident I can continue to improve.

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    Hope this helps!

    Post  teresa6115 on Tue Dec 01, 2015 7:19 am

    Hi I have suffered for 3 years now, buy a tub of Thirty 30 from the chemist I have washed my privates with this and it has no perfume in it - this has really helped. Stay away from tight clothing as someone has said and perfumed washes.

    You will need to ask your Doctor to refer you to a Women's hospital that specialize, so that you see the correct people who understand this condition. There are many ways to help to control the pain. Good luck I hope this helps a little.

    I cannot believe how many women suffer with this so you are not alone! Take care x

    teresa6115

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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 6:59 am

    Please read my post in 'vulvodynia info' titled 'cured from vulvodynia...' I struggled with it for 15 years+ and I've been pain free now for the past few years. Personally my pain had nothing to do with cotton underwear or whatever. It' was much more serious and complicated. It was like a chemical burn in my vagina and urethra. FML. Anyway... I'm pain free now! So there is hope! Please read my post and let me know if you have any questions. We need to find you a legit 'woo woo' doctor!

    sarisbaris

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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 7:13 am

    Oh yeah... If people tell you it's in your head just to tell them to fuck off. Unless it's your mother or someone much larger than you... Then just say it to them in your head

    sarisbaris

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    Re: I'm terrified.

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