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    » What's next?
    Yesterday at 4:01 pm by jennyk2

    » Pain management - what works for me
    Yesterday at 3:41 pm by Jo44

    » Share your Vulvodynia Story and become a member of the Global Anthology!
    Mon Apr 23, 2018 10:44 pm by smyerskelley

    » If it helps anyone else
    Mon Apr 23, 2018 6:36 pm by VH7797

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    » HELP!! Topical cream?
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    » The pain CAN get better - What's worked for me
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    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3

    I'm terrified.

    Go down

    I'm terrified.

    Post  aaj12345 on Sun Nov 22, 2015 12:10 pm

    I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live like this forever. I cannot handle somebody telling me it's all in my head. It's only been three weeks and this is already having major impacts on my relationships. Panic attack after panic attack. I have an appointment with an OBGYN but they cannot see me until December. Even then, I have a feeling they will not believe me. I don't know what to do. I don't know anybody that has been through this before. My mom thinks I'm insane. Please help me.


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    Re: I'm terrified.

    Post  WaahwaahUK on Sun Nov 22, 2015 3:30 pm

    I know how scary this can be. The most important thing to do is try and stay calm and look at what could be contributing to the pain for you. Have you tried wearing only cotton underwear, baking soda baths to ease some of the irritation at all? It's not something anyone here can tell you for sure what's causing your pain in particular but these things are worth trying and won't harm you. Do you have any back problems, past or present? Or aches in your legs? Some of us have nerve pain which can cause the skin to feel like its burning, or aching. Can you look at maybe seeing a physiotherapist, a chiropractor, or osteopath to explore this? Your skin may be reacting to thrush treatment maybe, that's another possibility, which is why baking soda baths, cotton underwear and no soap on that area may help. Three weeks isn't long if its an irritation, so it may calm itself down if you take some steps to soothe it. Try not to panic.

    Last edited by WaahwaahUK on Sun Nov 22, 2015 3:31 pm; edited 1 time in total (Reason for editing : Spelling whoops)


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    Re: I'm terrified.

    Post  PainBlogger on Sun Nov 22, 2015 9:11 pm

    I don't think any pain would be considered indicative of a chronic condition until it's been present for at least three months, maybe six. So, as Waahwaah says, don't panic. Stress will only make things worse. Easier said than done, but it's important to stay as calm as possible.
    Removing all irritants is a good idea. So fragrance free washing detergent on any clothes in contact with the area is advisable. Loose clothing in that area, making sure urine is dilute and not too acidic by drinking plenty of water (not fruit juice, fizzy drinks, caffeine, alcohol) and you could try rinsing with water after passing urine. Make sure you are using unscented sanitary products and toilet paper. If you do still have a yeast infection, oral treatment with fluconazole capsules would avoid the possibility of excipients in the topical treatment causing irritation.

    Yes, there are a lot of women on here who have been in pain for months/years, but it's important to remember that a lot of people do get completely better - they just get on with their lives and don't use this forum once they're better, which skews the stories on here towards the chronic sufferers. I've had problems for seventeen months, BUT, I am much better than I was last year. Some days my pain is down to a 1/10 and I am reasonably confident I can continue to improve.


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    Hope this helps!

    Post  teresa6115 on Tue Dec 01, 2015 7:19 am

    Hi I have suffered for 3 years now, buy a tub of Thirty 30 from the chemist I have washed my privates with this and it has no perfume in it - this has really helped. Stay away from tight clothing as someone has said and perfumed washes.

    You will need to ask your Doctor to refer you to a Women's hospital that specialize, so that you see the correct people who understand this condition. There are many ways to help to control the pain. Good luck I hope this helps a little.

    I cannot believe how many women suffer with this so you are not alone! Take care x


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 6:59 am

    Please read my post in 'vulvodynia info' titled 'cured from vulvodynia...' I struggled with it for 15 years+ and I've been pain free now for the past few years. Personally my pain had nothing to do with cotton underwear or whatever. It' was much more serious and complicated. It was like a chemical burn in my vagina and urethra. FML. Anyway... I'm pain free now! So there is hope! Please read my post and let me know if you have any questions. We need to find you a legit 'woo woo' doctor!


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 7:13 am

    Oh yeah... If people tell you it's in your head just to tell them to fuck off. Unless it's your mother or someone much larger than you... Then just say it to them in your head


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    Re: I'm terrified.

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