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    » Acupuncture advice please
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    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    » Lichen Sclerosus
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    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
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    » Sore after using dilator for first time in a year
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    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 1


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0


    Sat Feb 10, 2018 12:18 am by rockylife


    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    I'm terrified.

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    I'm terrified.

    Post  aaj12345 on Sun Nov 22, 2015 12:10 pm

    I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live like this forever. I cannot handle somebody telling me it's all in my head. It's only been three weeks and this is already having major impacts on my relationships. Panic attack after panic attack. I have an appointment with an OBGYN but they cannot see me until December. Even then, I have a feeling they will not believe me. I don't know what to do. I don't know anybody that has been through this before. My mom thinks I'm insane. Please help me.


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    Re: I'm terrified.

    Post  WaahwaahUK on Sun Nov 22, 2015 3:30 pm

    I know how scary this can be. The most important thing to do is try and stay calm and look at what could be contributing to the pain for you. Have you tried wearing only cotton underwear, baking soda baths to ease some of the irritation at all? It's not something anyone here can tell you for sure what's causing your pain in particular but these things are worth trying and won't harm you. Do you have any back problems, past or present? Or aches in your legs? Some of us have nerve pain which can cause the skin to feel like its burning, or aching. Can you look at maybe seeing a physiotherapist, a chiropractor, or osteopath to explore this? Your skin may be reacting to thrush treatment maybe, that's another possibility, which is why baking soda baths, cotton underwear and no soap on that area may help. Three weeks isn't long if its an irritation, so it may calm itself down if you take some steps to soothe it. Try not to panic.

    Last edited by WaahwaahUK on Sun Nov 22, 2015 3:31 pm; edited 1 time in total (Reason for editing : Spelling whoops)


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    Re: I'm terrified.

    Post  PainBlogger on Sun Nov 22, 2015 9:11 pm

    I don't think any pain would be considered indicative of a chronic condition until it's been present for at least three months, maybe six. So, as Waahwaah says, don't panic. Stress will only make things worse. Easier said than done, but it's important to stay as calm as possible.
    Removing all irritants is a good idea. So fragrance free washing detergent on any clothes in contact with the area is advisable. Loose clothing in that area, making sure urine is dilute and not too acidic by drinking plenty of water (not fruit juice, fizzy drinks, caffeine, alcohol) and you could try rinsing with water after passing urine. Make sure you are using unscented sanitary products and toilet paper. If you do still have a yeast infection, oral treatment with fluconazole capsules would avoid the possibility of excipients in the topical treatment causing irritation.

    Yes, there are a lot of women on here who have been in pain for months/years, but it's important to remember that a lot of people do get completely better - they just get on with their lives and don't use this forum once they're better, which skews the stories on here towards the chronic sufferers. I've had problems for seventeen months, BUT, I am much better than I was last year. Some days my pain is down to a 1/10 and I am reasonably confident I can continue to improve.


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    Hope this helps!

    Post  teresa6115 on Tue Dec 01, 2015 7:19 am

    Hi I have suffered for 3 years now, buy a tub of Thirty 30 from the chemist I have washed my privates with this and it has no perfume in it - this has really helped. Stay away from tight clothing as someone has said and perfumed washes.

    You will need to ask your Doctor to refer you to a Women's hospital that specialize, so that you see the correct people who understand this condition. There are many ways to help to control the pain. Good luck I hope this helps a little.

    I cannot believe how many women suffer with this so you are not alone! Take care x


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 6:59 am

    Please read my post in 'vulvodynia info' titled 'cured from vulvodynia...' I struggled with it for 15 years+ and I've been pain free now for the past few years. Personally my pain had nothing to do with cotton underwear or whatever. It' was much more serious and complicated. It was like a chemical burn in my vagina and urethra. FML. Anyway... I'm pain free now! So there is hope! Please read my post and let me know if you have any questions. We need to find you a legit 'woo woo' doctor!


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 7:13 am

    Oh yeah... If people tell you it's in your head just to tell them to fuck off. Unless it's your mother or someone much larger than you... Then just say it to them in your head


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    Re: I'm terrified.

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