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    » Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
    Yesterday at 8:15 pm by WVR00

    » What helped (and practically cured) my Vulvodynia
    Yesterday at 4:43 pm by Katiej

    » How I cured my Vulvodynia!
    Yesterday at 8:24 am by Katiej

    » Amitriptyline given for vulvodyina pain
    Sat Nov 18, 2017 11:33 pm by WVR00

    » Needing some reassurance
    Sat Nov 18, 2017 12:28 pm by Katiej

    » Amitriptyline Success and new-found love
    Sat Nov 18, 2017 12:24 pm by Katiej

    » New diagnosis, any advice whilst I wait for a specialist
    Sat Nov 18, 2017 3:57 am by jungleclover

    » Vestibulectomy today and no pain
    Fri Nov 17, 2017 3:28 pm by Dsrt16

    » vestibulectomy success
    Thu Nov 16, 2017 12:41 am by Hopeitworks

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 0

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules


    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    I'm terrified.

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    I'm terrified.

    Post  aaj12345 on Sun Nov 22, 2015 12:10 pm

    I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live like this forever. I cannot handle somebody telling me it's all in my head. It's only been three weeks and this is already having major impacts on my relationships. Panic attack after panic attack. I have an appointment with an OBGYN but they cannot see me until December. Even then, I have a feeling they will not believe me. I don't know what to do. I don't know anybody that has been through this before. My mom thinks I'm insane. Please help me.


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    Re: I'm terrified.

    Post  WaahwaahUK on Sun Nov 22, 2015 3:30 pm

    I know how scary this can be. The most important thing to do is try and stay calm and look at what could be contributing to the pain for you. Have you tried wearing only cotton underwear, baking soda baths to ease some of the irritation at all? It's not something anyone here can tell you for sure what's causing your pain in particular but these things are worth trying and won't harm you. Do you have any back problems, past or present? Or aches in your legs? Some of us have nerve pain which can cause the skin to feel like its burning, or aching. Can you look at maybe seeing a physiotherapist, a chiropractor, or osteopath to explore this? Your skin may be reacting to thrush treatment maybe, that's another possibility, which is why baking soda baths, cotton underwear and no soap on that area may help. Three weeks isn't long if its an irritation, so it may calm itself down if you take some steps to soothe it. Try not to panic.

    Last edited by WaahwaahUK on Sun Nov 22, 2015 3:31 pm; edited 1 time in total (Reason for editing : Spelling whoops)


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    Re: I'm terrified.

    Post  PainBlogger on Sun Nov 22, 2015 9:11 pm

    I don't think any pain would be considered indicative of a chronic condition until it's been present for at least three months, maybe six. So, as Waahwaah says, don't panic. Stress will only make things worse. Easier said than done, but it's important to stay as calm as possible.
    Removing all irritants is a good idea. So fragrance free washing detergent on any clothes in contact with the area is advisable. Loose clothing in that area, making sure urine is dilute and not too acidic by drinking plenty of water (not fruit juice, fizzy drinks, caffeine, alcohol) and you could try rinsing with water after passing urine. Make sure you are using unscented sanitary products and toilet paper. If you do still have a yeast infection, oral treatment with fluconazole capsules would avoid the possibility of excipients in the topical treatment causing irritation.

    Yes, there are a lot of women on here who have been in pain for months/years, but it's important to remember that a lot of people do get completely better - they just get on with their lives and don't use this forum once they're better, which skews the stories on here towards the chronic sufferers. I've had problems for seventeen months, BUT, I am much better than I was last year. Some days my pain is down to a 1/10 and I am reasonably confident I can continue to improve.


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    Hope this helps!

    Post  teresa6115 on Tue Dec 01, 2015 7:19 am

    Hi I have suffered for 3 years now, buy a tub of Thirty 30 from the chemist I have washed my privates with this and it has no perfume in it - this has really helped. Stay away from tight clothing as someone has said and perfumed washes.

    You will need to ask your Doctor to refer you to a Women's hospital that specialize, so that you see the correct people who understand this condition. There are many ways to help to control the pain. Good luck I hope this helps a little.

    I cannot believe how many women suffer with this so you are not alone! Take care x


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 6:59 am

    Please read my post in 'vulvodynia info' titled 'cured from vulvodynia...' I struggled with it for 15 years+ and I've been pain free now for the past few years. Personally my pain had nothing to do with cotton underwear or whatever. It' was much more serious and complicated. It was like a chemical burn in my vagina and urethra. FML. Anyway... I'm pain free now! So there is hope! Please read my post and let me know if you have any questions. We need to find you a legit 'woo woo' doctor!


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 7:13 am

    Oh yeah... If people tell you it's in your head just to tell them to fuck off. Unless it's your mother or someone much larger than you... Then just say it to them in your head


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    Re: I'm terrified.

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