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    » Just Diagnosed with Vulvadynia
    Today at 1:57 am by angelique2016

    » Vulvadynia
    Yesterday at 7:45 am by mary jane

    » Constant pain, I want to die.
    Sat Jul 22, 2017 9:41 pm by Meggiemay

    » What is Vulvodynia?
    Sat Jul 22, 2017 9:21 pm by mary jane

    » Will I ever be able to wear jeans?
    Wed Jul 19, 2017 11:02 pm by jungleclover

    » Looking for a friend IRL; LA/OC
    Wed Jul 19, 2017 10:58 pm by jungleclover

    » Anyone else get this from yeast infections? (new member)
    Wed Jul 19, 2017 10:37 pm by jungleclover

    » Owner of vulvodyniSuppoet.com
    Wed Jul 19, 2017 10:28 pm by LaurenVV

    » anyone from southern california in here?
    Tue Jul 18, 2017 2:38 am by crypticcalico

    Just Diagnosed with Vulvadynia

    Tue Aug 02, 2016 9:11 pm by CherryTree23

    Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

    Comments: 7


    Fri Jul 21, 2017 11:53 pm by Linda Williams

    I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

    Comments: 3

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 21

    Looking for a friend IRL; LA/OC

    Tue Jul 18, 2017 2:51 am by crypticcalico


    I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

    Comments: 1

    Owner of vulvodyniSuppoet.com

    Wed Jul 19, 2017 10:28 pm by LaurenVV

    Hi, I started vulvodyniasupport.com at the age of 28.
    I was a leader when there was no help, no forums etc.

    As I went on my path, I found acupuncture, herbs and time helped me recover.
    Most never do.

    I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

    I have moved on from the support world and found a career that allowed
    Me to bring my …

    Comments: 0

    anyone from southern california in here?

    Tue Jul 12, 2011 6:43 pm by Melissa777

    Hi Im just wondering if anyone here is from so cal- USA
    I am in san diego- but from LA!!!

    Comments: 6

    Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

    Tue Jul 04, 2017 9:01 am by Tired89

    Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

    Comments: 2

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12

    I'm terrified.

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    I'm terrified.

    Post  aaj12345 on Sun Nov 22, 2015 12:10 pm

    I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live like this forever. I cannot handle somebody telling me it's all in my head. It's only been three weeks and this is already having major impacts on my relationships. Panic attack after panic attack. I have an appointment with an OBGYN but they cannot see me until December. Even then, I have a feeling they will not believe me. I don't know what to do. I don't know anybody that has been through this before. My mom thinks I'm insane. Please help me.


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    Re: I'm terrified.

    Post  WaahwaahUK on Sun Nov 22, 2015 3:30 pm

    I know how scary this can be. The most important thing to do is try and stay calm and look at what could be contributing to the pain for you. Have you tried wearing only cotton underwear, baking soda baths to ease some of the irritation at all? It's not something anyone here can tell you for sure what's causing your pain in particular but these things are worth trying and won't harm you. Do you have any back problems, past or present? Or aches in your legs? Some of us have nerve pain which can cause the skin to feel like its burning, or aching. Can you look at maybe seeing a physiotherapist, a chiropractor, or osteopath to explore this? Your skin may be reacting to thrush treatment maybe, that's another possibility, which is why baking soda baths, cotton underwear and no soap on that area may help. Three weeks isn't long if its an irritation, so it may calm itself down if you take some steps to soothe it. Try not to panic.

    Last edited by WaahwaahUK on Sun Nov 22, 2015 3:31 pm; edited 1 time in total (Reason for editing : Spelling whoops)


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    Re: I'm terrified.

    Post  PainBlogger on Sun Nov 22, 2015 9:11 pm

    I don't think any pain would be considered indicative of a chronic condition until it's been present for at least three months, maybe six. So, as Waahwaah says, don't panic. Stress will only make things worse. Easier said than done, but it's important to stay as calm as possible.
    Removing all irritants is a good idea. So fragrance free washing detergent on any clothes in contact with the area is advisable. Loose clothing in that area, making sure urine is dilute and not too acidic by drinking plenty of water (not fruit juice, fizzy drinks, caffeine, alcohol) and you could try rinsing with water after passing urine. Make sure you are using unscented sanitary products and toilet paper. If you do still have a yeast infection, oral treatment with fluconazole capsules would avoid the possibility of excipients in the topical treatment causing irritation.

    Yes, there are a lot of women on here who have been in pain for months/years, but it's important to remember that a lot of people do get completely better - they just get on with their lives and don't use this forum once they're better, which skews the stories on here towards the chronic sufferers. I've had problems for seventeen months, BUT, I am much better than I was last year. Some days my pain is down to a 1/10 and I am reasonably confident I can continue to improve.


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    Hope this helps!

    Post  teresa6115 on Tue Dec 01, 2015 7:19 am

    Hi I have suffered for 3 years now, buy a tub of Thirty 30 from the chemist I have washed my privates with this and it has no perfume in it - this has really helped. Stay away from tight clothing as someone has said and perfumed washes.

    You will need to ask your Doctor to refer you to a Women's hospital that specialize, so that you see the correct people who understand this condition. There are many ways to help to control the pain. Good luck I hope this helps a little.

    I cannot believe how many women suffer with this so you are not alone! Take care x


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 6:59 am

    Please read my post in 'vulvodynia info' titled 'cured from vulvodynia...' I struggled with it for 15 years+ and I've been pain free now for the past few years. Personally my pain had nothing to do with cotton underwear or whatever. It' was much more serious and complicated. It was like a chemical burn in my vagina and urethra. FML. Anyway... I'm pain free now! So there is hope! Please read my post and let me know if you have any questions. We need to find you a legit 'woo woo' doctor!


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    Re: I'm terrified.

    Post  sarisbaris on Thu Dec 31, 2015 7:13 am

    Oh yeah... If people tell you it's in your head just to tell them to fuck off. Unless it's your mother or someone much larger than you... Then just say it to them in your head


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    Re: I'm terrified.

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