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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Steroid Ointments and Creams

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Steroid Ointments and Creams

Post  Maple on Mon Nov 30, 2015 5:32 am

I've had two cases of vulvodynia. They've been very different in terms of symptoms and types of pain, I figure I'll share how I rid myself of the first one (4 months). The second one, I still have but it has been getting significantly better (at 4.5 months presently)

The first:
-Cause: most likely by monostat 7 suppositories
-Symptoms: started with a typical yeast infection, but after treatment, vulva remained dry and stinging pretty much 24/7, peeled like a sunburn due to how dry it was.
-Doctor: Had tests for yeast, BV, and trichomoniasis (I wasn't sexually active at that age) and came back negative for all. Proceeded to be stuck in a ridiculous cycle of doctors.The 5th doctor I saw, the one who prescribed the ointment, told me that this was an "itch scratch cycle", and I swear I was not scratching it, apparently normal movement/underwear/anything can effectively "scratch" already weak skin.
-Showering: She also had me use Cetaphil non-soap cleanser. Normally I avoided soap in that region, but she said in order to remove any shampoo/conditioner residue this would be necessary.
-Laundry: I began double washing underwear in hypoallergenic detergent, though I don't believe it was the cause (because I went back to the regular stuff a few months after), it helps to eliminate all possible irritants down there.
-Cured: The ending cure for this was a steroid ointment (0.1% betaderm), I had tried a few steroid creams before this was tried, but for some reason the creams didn't work. The ointment was used twice daily and felt better within a week, but I continued to use it for the prescribed two weeks. In the first month or so after that I would occasionally have flare-ups and have to use the ointment 2-3 times but after 2 months I was rid of all symptoms for 2 full years.

The second:
-Cause: occurred after yet another yeast infection, treated with terazol cream. (Also occurred 4 months after starting birth control pill, but I believe that wasn't a large factor/cause, and will restart pill if/when I get everything cleared up).
-Symptoms: Vulva swelling, sometimes very red, periodic greyish discharge that stings on contact with skin. Stinging and burning pain.
-Doctors: I've seen 7 of them. Been STD tested twice, and vaginal cultures 3 times, everything is negative. Most credible doctor: infectious disease specialist.
-Tried (failed): Cetaphil + betaderm + new detergent = not cured, caused another yeast with the steroid ointment (betaderm). Probiotic suppositories = Resulted in yeast. Lactic acid tubes = soothing, but effectively did nothing. 7-diflucans over 7 days, this was a dumb idea by an idiot doctor. Improved the problem for about a 10 day period, then got worse.
-Tried (successes): Epsom salt sit-bath. Blowdrying down there after showering, swimming, or sit-bathing. Taking a Benadryl every night To relieve itching, therefore prevent unconcious scratching (whatever it is isn't an allergy because I tried going days without pants and with sink showers to wash my hair, and no gain). Hydrocortisone (0.5%) cream on the outer lips only (even though most of the pain is on the inner lips). Deep massage of groin region surrounding vulva trying to loosen muscles in the area.

Few things about me:

I'm a frequent swimmer. Presently I only swim about 4-5 times a week, but was at 11 times a week at my highest. Leading up to the first one I spent a full summer with biking as my only method of transportation and was swimming in a saltwater pool 6days/week. Thankfully, the problems set in after I was back at home and able to ditch the bike.

The second bout set in midway through a summer of biking as a primary transport.

I personally would much rather blame biking than swimming, but gynocologists disagree. I've tried quitting swimming but have never had any improvement from quitting, and have often gotten worse in my time off.


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Re: Steroid Ointments and Creams

Post  WaahwaahUK on Tue Dec 08, 2015 5:16 pm

Thank you for this post. I'm going to try Epsom baths actually, and this has encouraged me more so.


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