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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Steroid Ointments and Creams

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Steroid Ointments and Creams

Post  Maple on Mon Nov 30, 2015 5:32 am

I've had two cases of vulvodynia. They've been very different in terms of symptoms and types of pain, I figure I'll share how I rid myself of the first one (4 months). The second one, I still have but it has been getting significantly better (at 4.5 months presently)

The first:
-Cause: most likely by monostat 7 suppositories
-Symptoms: started with a typical yeast infection, but after treatment, vulva remained dry and stinging pretty much 24/7, peeled like a sunburn due to how dry it was.
-Doctor: Had tests for yeast, BV, and trichomoniasis (I wasn't sexually active at that age) and came back negative for all. Proceeded to be stuck in a ridiculous cycle of doctors.The 5th doctor I saw, the one who prescribed the ointment, told me that this was an "itch scratch cycle", and I swear I was not scratching it, apparently normal movement/underwear/anything can effectively "scratch" already weak skin.
-Showering: She also had me use Cetaphil non-soap cleanser. Normally I avoided soap in that region, but she said in order to remove any shampoo/conditioner residue this would be necessary.
-Laundry: I began double washing underwear in hypoallergenic detergent, though I don't believe it was the cause (because I went back to the regular stuff a few months after), it helps to eliminate all possible irritants down there.
-Cured: The ending cure for this was a steroid ointment (0.1% betaderm), I had tried a few steroid creams before this was tried, but for some reason the creams didn't work. The ointment was used twice daily and felt better within a week, but I continued to use it for the prescribed two weeks. In the first month or so after that I would occasionally have flare-ups and have to use the ointment 2-3 times but after 2 months I was rid of all symptoms for 2 full years.

The second:
-Cause: occurred after yet another yeast infection, treated with terazol cream. (Also occurred 4 months after starting birth control pill, but I believe that wasn't a large factor/cause, and will restart pill if/when I get everything cleared up).
-Symptoms: Vulva swelling, sometimes very red, periodic greyish discharge that stings on contact with skin. Stinging and burning pain.
-Doctors: I've seen 7 of them. Been STD tested twice, and vaginal cultures 3 times, everything is negative. Most credible doctor: infectious disease specialist.
-Tried (failed): Cetaphil + betaderm + new detergent = not cured, caused another yeast with the steroid ointment (betaderm). Probiotic suppositories = Resulted in yeast. Lactic acid tubes = soothing, but effectively did nothing. 7-diflucans over 7 days, this was a dumb idea by an idiot doctor. Improved the problem for about a 10 day period, then got worse.
-Tried (successes): Epsom salt sit-bath. Blowdrying down there after showering, swimming, or sit-bathing. Taking a Benadryl every night To relieve itching, therefore prevent unconcious scratching (whatever it is isn't an allergy because I tried going days without pants and with sink showers to wash my hair, and no gain). Hydrocortisone (0.5%) cream on the outer lips only (even though most of the pain is on the inner lips). Deep massage of groin region surrounding vulva trying to loosen muscles in the area.

Few things about me:

I'm a frequent swimmer. Presently I only swim about 4-5 times a week, but was at 11 times a week at my highest. Leading up to the first one I spent a full summer with biking as my only method of transportation and was swimming in a saltwater pool 6days/week. Thankfully, the problems set in after I was back at home and able to ditch the bike.

The second bout set in midway through a summer of biking as a primary transport.

I personally would much rather blame biking than swimming, but gynocologists disagree. I've tried quitting swimming but have never had any improvement from quitting, and have often gotten worse in my time off.


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Re: Steroid Ointments and Creams

Post  WaahwaahUK on Tue Dec 08, 2015 5:16 pm

Thank you for this post. I'm going to try Epsom baths actually, and this has encouraged me more so.


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