Vulvodynia Support
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» Hope to all my suffering ladies
Young in pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Young in pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Young in pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Young in pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Young in pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Young in pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Young in pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Young in pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Young in pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  Future.Gyno Sat Oct 03, 2015 11:09 pm

So I've been dealing with this anxiety about my probpems for a while, and I decided to share with people who will actually understand. I was just diagnosed with vulvodynia this summer. My gynecologist also suspects I have endometriosis. At twenty years old, I sometimes feel hopeless. I've been with my boyfriend for three and a half years, and for about the last two, we've been sexually "active." I've never been able to have sex with him successfully. Although he is patient and understanding, I have so much anxiety about it. How long will he be patient? If i don't find a magic cure, will he give up on me? And will i ever get to know what sex is really supposed to feel like? I talk about it with him sometimes, but he always tells me i should see if using my dilator will help. The thought of even using it makes me uncomfortable, and now that i know what the problem is, i don't even think it would help. But he's convinced, and he doesn't want me in pain so he keeps bringing it up. I feel like no matter what I'm going to always be in pain and always have this anxiety. I feel like I'm too young to be having these kinds of problems with sex. I just want us both to be happy, but i feel like this will always be a problem. Well at least if i do end up alone, I'll have an awesome career as an ob/gyn to focus on.

Future.Gyno

Posts : 1
Join date : 2015-10-03

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Post  WaahwaahUK Sun Oct 04, 2015 7:18 pm

Don't give up on getting better. You're so young, and you never know, gently trying some of the suggestions you may find it helps. The most important thing is to try and relax. And talk to your boyfriend. You've been together a while, so tell him your fears. He doesn't have the chance to show you he's sticking around if you don't give him the opportunity to be there for you when you're feeling like this. Remember how brave you are, having gone to the doctors and sought help. Try and take some small steps. You never know, it could resolve quote quickly with the right approach. Not everyone who has this pain condition has it long term. It varies in each case. Stay strong.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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Post  Maple Mon Nov 30, 2015 4:36 am

To me the thought of using a dilator just sounds like it'll hurt like hell as well. I know it works for some, but if your not comfortable trying it, it's likely going to cause more pain than good due to constricted muscles from anxiety of it.

As a less scary option, I find that sitz baths with epsom salt are extremely helpful, but I always make sure to dry thoroughly afterwards, with a hairdryer even. Self massage down there can also be very helpful, and can have a similar effect as a dilator if done well.

Good luck!

Maple

Posts : 2
Join date : 2015-11-30

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