Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


young daughter with vulvodynia

View previous topic View next topic Go down

young daughter with vulvodynia

Post  Drv on Sun Jun 03, 2012 5:29 pm

Hi there

I have found this forum and I wonder if any of the members are mums with daughters with vulvodynia. My daughter, age 12, was diagnosed with it last October and since then her flare ups have been progressively worse. She has hardly been at school this year and the pain she experiences is so severe that she can hardly move, sit down, not to mention going to the toilet. Not being a vulvodynia sufferer myself I cannot relate to what she is going through. Any suggestions, info that could help me understand this condition better from a sufferer's point of view would be very appreciated.

Thanks in advance for your time.

Debbie

Drv

Posts : 1
Join date : 2012-06-03

View user profile

Back to top Go down

Child with vulvodynia

Post  Debbie627 on Mon Jul 30, 2012 11:44 pm

What types of topical meds are you using? What detergent do you use? And does she use cottonelle wipes thinking they are soothing?

I've said this in many of my other posts...avoid all products with propylene glycol. That means most steroids, lidocaine, soaps, detergents etc. read your labels. Propylene glycol is like lemons on a paper cut, but somehow it has found its way into products that we are applying to very sensitive areas and it burning us!


Last edited by Debbie627 on Tue Jul 31, 2012 12:11 am; edited 1 time in total (Reason for editing : More info)

Debbie627

Posts : 12
Join date : 2012-07-10
Location : Dallas TX

View user profile

Back to top Go down

Lots of things to look into

Post  Rainy Day on Tue Jul 31, 2012 12:02 am

I am still trying to get to the source of my problem, but I am think I am getting a little closer (I broke my tailbone in 2 spots). With that said, here are my suggestions:

Get an xray. See if her pelvic alignment is off...and see if there are any other issues
Test the ph of her urine. See if it seems acidic
See a natural doctor. The real doctors aren't helping me at all. Get allergy testing. See if they will test for bacteria, yeast, etc. I am looking into a yeast dna test as well
Try some food cleansing (raw foods or some other type of colon cleansing). Just because a doctor doesn't think its yeast/bacteria, doesn't mean they are right. See a natural doctor for help on doing it the right way. Keep a calendar of all the things you try.
Try a probiotic...maybe her flora is off down there
Maybe its hormonal (my cousins was due to hormones)
Try rubbing something like coconut oil on it at night. Most other things maybe worsening the condition

That's all for now. It could be so many things. I feel her pain. I am at teh end of my rope all the time with this...and still tryign to put the puzzle together. Just don't rely on the doctors too much. They just try to push pills usually.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

Best advice I can give

Post  Mandadity on Wed Aug 01, 2012 10:47 pm

As not being a sufferer yourself its hard to imagine just how much this hurts. The best thing I can tell you is its real, and dont for a second think shes faking it...this really hurts...I have had a child myself and let me tell you, contractions hurt but this hurts waaaayyyy more.

Get her a counselor or her best friend(that she talks to about this problem) to come over as MUCH as possible...you may be her mom but believe me, I(got it at 17) REFUSED to even mention it to my mom.

This is so much easier talking to someone about it even if they have no advice(because doctors are who gives her advice). Don't get me wrong, if you and your daughter are really close then give her more attention then anything else in the world...because, just because you give her attention about her pain and talking to her about it, doesn't mean she wouldn't like/need a day out being with her mom and being a normal girl.

I am 22, with a 1yr old daughter and I still cant be a normal girl... I have noticed over the many years of having this that I have become very distant with any and everyone and mostly shelter myself in because im afraid to let anyone in and afraid to be out and have my pain. I got VERY VERY little comfort, support and understanding from anyone in my life about this. I was a VERY talkative and social girl before I got this. I was also very confident.

I am in NO MEANS trying to scare you, I am just giving you a way to see in her head...she may be a little different because shes had it less but just know, attention, understanding, support and treating her like a normal girl in every other aspect she will enjoy, like I said earlier...even a mommy/daughter day out every now and then JUST to bond and be normal will be gold to her and knowing she was never alone will really help her mentally. This has a huge toll on her emotions and mentality also which is why its SO important to have at least ONE person she can always turn to, to vent, talk about it, whatever she needs.

Just be open to ideas and listen to what shes saying, she may not directly come out and say "I need someone to talk to about this"(for example) but if she starts to talk to you and open up to you and you want to be close to her, then dont judge, lecture or anything else except try to understand her pain, ask her questions...be her best friend in this and trust me she will look back and always love you for this.

I wish I had this with my mom.

Good luck debbie...if you want to know anything more about how its affected me so you can prevent your daughter from going through this the way I did, I am more then okay to share.

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

View user profile

Back to top Go down

Re: young daughter with vulvodynia

Post  kellybeth on Sat Aug 11, 2012 10:40 pm

Hi Debbie. My daughter is 8 years old and has been suffering from vulvodynia since she was 3. I can relate to your story so much. My daughter also is up in pain nearly every nite and has missed lots of school. She is currently going through pain management and has been put on amitriptyline which does not help one bit. Seems like an never ending battle and its heartbreaking. Please feel free to messege me if u need support or a chat your the first mum with a child suffering I have found. Take care,Kelly.
avatar
kellybeth

Posts : 6
Join date : 2012-08-08

View user profile

Back to top Go down

Re: young daughter with vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum