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Question about amino acid NAC 600mg. , Vit. C 2,000mg and 3 tablets of spirulina

Wed Apr 22, 2015 9:35 pm by mikan92

Hi all,

I have yet to be diagnosed but I believe I have symptoms of provoked vulvar vestibulitis since 2 months ago after being treated with lots of (redundant) medications for a vaginal thrush which I wouldn't think was a bad one.
Since then my pain remained and recently I've been to a gynae twice who treated me with a potent steroid that took away some inflammation and stinging feeling …

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Treatment Options / Surgery

Mon Jan 26, 2015 10:21 pm by vldicker

I am so happy to have found this forum. I have been suffering with vulvodyina for years…diagnosed when I was 22 and now am 25 but suffered long before the diagnosis. Over the past years it would only flare up for maybe a few days and then wouldn't bother me at all for a long time. My doctor put me on antidepressants and lidocain gel which did nothing to stop the random flare up so I stopped …

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Allergic reaction to silicone lubricant AND polyesoprine condoms

Thu Apr 23, 2015 1:57 pm by Trees_trees

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no …

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Hello again! It's been ages

Wed Apr 22, 2015 10:28 am by naomi

Apologies for being away so long!! I married and changed my email address and didn't receive any alert messages (Surprise surprise!).

I didn't log on as no alert messages (places head in palms!!!) so would visit the forum from time to time but would find it difficult to deal with the lack of relief or cure. So it was easier to try to ignore and get on with my life (after the last consultant …

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New and lost

Sat Apr 18, 2015 6:15 am by Redhead23

Hey ladies.

I'm at a stage in my life where my vulva pain has completely taken over. I'm depressed and even suicidal and after crying a ton today, decided to look for support.

I'm from the UK, I'm 31 and I've suffered with pain, burning and stinging of the vulva, clitoris and vestibule for 12years after a yeast infection and a bladder infection.

I've struggled over the last decade trying to …

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THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY

Sat Mar 21, 2015 2:48 am by mtaylor18

Since 2009 I had suffered with terrible UTI's, kidney infections, cystitis, recurrent thrush and lots of gynecological and urological problems I became very depressed. December 2012 I had chronic pain in my vulva (AGAIN) but this time it felt different, it was there around a month and just didn't go away! I went to hospital and had an ultrasound where they saw two burst ovarian cysts. I thought …

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Diagnosing Vulvodynia

Thu Apr 09, 2015 11:06 am by amh521

Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT …

Comments: 1

Not sure what is wrong with me..

Sun Apr 12, 2015 2:43 am by FallingSlowly

Hello ladies- I am glad to have found this forum. Not that I want anyone else to be suffering like I am, but I do find comfort in knowing that I'm not alone, and even more comfort in the fact that success stories are shared to help others.

I've been suffering for a year and a half now, with no luck whatsoever on coming closer to a diagnosis. None of the 6 doctors (3 gyns, 2 gps, 1 infectious …

Comments: 1

Vulvodynia my whole life & Vestibulectomy results

Sun Apr 05, 2015 3:42 pm by nola218

Greetings from upstate NY...

I feel like an expert on the subject of Vulvodynia. So much so, that I have had doctors admit to me that I know more about it than them. I'm sure a lot of you have seen this. So little is know about this in the medical world that it can become very frustrating to find answers.

I'm 30 years old. Ever since I lost my virginity at the age of 17, I have had vaginal …

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Does anyone know of children who have vulvodynia?

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Does anyone know of children who have vulvodynia?

Post  kharris4283 on Wed Jan 05, 2011 6:13 am

My daughter (7 yrs old) was diagnosed w/ this condition last year and it's extremely hard finding information for children.

If anyone know of other moms in my shoes, please let me know.

Thanks for your help and best wishes to you all.

Kimberly

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Re: Does anyone know of children who have vulvodynia?

Post  Sebby (Admin) on Thu Jan 06, 2011 8:44 am


Hi Kimberly

Our other member who's daughter has Vulvodynia has given me permission to give you her email address

I have sent it to you in private message

Sebby xx

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Contacting other mom with daughter who has vulvodynia

Post  kharris4283 on Fri Jan 07, 2011 1:10 am

good morning, sebby

I never rec'd the private message containing the email address for the other mom whose daughter also has vulvodynia. If you could please send it to kmbrlyharr@aol.com I'd appreciate it.

Thanks for your help!!

Kimberly

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Re: Does anyone know of children who have vulvodynia?

Post  Sebby (Admin) on Fri Jan 07, 2011 9:10 am


Have emailed you the email address..hope it goes through let me know

x

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child with vulvo problems

Post  Vickie22 on Thu Mar 01, 2012 2:08 pm

I'm also interested in connecting with mothers who have children. Can you send me their e-mails? My little girl was diagnosed by a pediatric gynecologist with vulvovaginitis. She gave me an ointment Clobetasol .05%. Saw improvement the next day. Hopefully this will work. She is still itching and burning after 2 days, but is suppose to get use to it.

Any luck with your daughter?
Vickie

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Re: Does anyone know of children who have vulvodynia?

Post  Shamilton on Fri Apr 12, 2013 12:27 am

Hi Ladies

My 9 year old daughter has been suffering with vulvic pain for 2 or 3 years now... very distressing. I finally came across this condition in one of my 3am google searches for something/ anything that would give her relief from the horrendous pain she was suffering (it nearly always happens during the night)

We have still not had a confirmed diagnosis from the NHS, they seem somewhat reluctant to agree she has Vulvodunia but I have now demanded she be referred to paediactric Gynaecology (I can't believe this has not yet been done!)

I would love to connect with other Mums who's daughters have this condition as I feel like I am banging my head against a brick wall trying to get some answers!

Many thanks
Shirley

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Re: Does anyone know of children who have vulvodynia?

Post  Alana3 on Fri Apr 12, 2013 12:58 am

I have no advice to offer, but omg I feel so bad for your kids. No one should ever know what this is like, but for a kid, that's even worse. Sad sorry and hope you girls find answers soon!

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Re: Does anyone know of children who have vulvodynia?

Post  Shamilton on Fri Apr 12, 2013 2:46 am

thanks for taking the time to reply Alana. I have an appt with a Herbalist tomorrow, and am waiting on an appt to see a friend, who does Cranio Sacral and Visceral therapy, to see if there is anything she can do. The NHS so far have been Useless!!

You're right it's awful but I'm just so relieved that I think I know what it is now.. she's been treated for everything from worms to fungal infections, even though I have never thought it was those. Been referred to dermatology, who were so dismissive, and I've even had GP's saying it could be in her head!

I guess its harder to diagnose in children as its so rare in kids, and its also hard for them to describe symptoms. I am convinced she does have vulvodynia though, as it is the only thing I have come across that ticks every box for her symptoms. Thankfully she only seems to get 'attacks' of it.. mostly at night and for a few days at a time and then she can have weeks when she is clear.

The only thing that seems to give her any relief is sitting for an hour or two in the bath until it passes and she can get back to sleep (great fun at 3am!) She did mention during last nights attack that squeezing her pelvic floor while she's in the bath helps her?

Sorry I've rambled on a little bit, we've had a few sleepless nights so not functioning properly, I'm so glad to have found this forum where others understand! I see the other lady left her email address I may email her directly as it was a while ago she posted. It would be good to see if she got any help

Thanks again for your reply xxx

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Re: Does anyone know of children who have vulvodynia?

Post  Sarah001 on Fri Apr 12, 2013 3:37 am

Hi Shamilton, I blither on alot about pelvic floor dysfunction but it does sound like there's a link there. It may be that she gets spasms every so often and the squeezing she does to help actually relaxes the pelvic floor off, muscles relax better after a contraction (look up contract relax techniques to see a more detailed explanation of why). I know kids can have pelvic floor dysfunction (PFD) from holding urine too long, straining if constipated etc and i used to talk to one of the other mums on here and her daughter had a similar problem to me and was very hypermobile which if the pelvic joints are affected can set off the pelvic floor to try and stabilise the area. I don't know if your daughter is particularly bendy but things to look out for would be sitting in a W position with no problems, legs that bend back like bananas and elbows that do the same, being able to touch the floor with palms with no warm up when doing a forward bend and the pelvis gives a lateral tilt during walking that looks extreme when the pelvis is too loose. I would definitely pursue the pelvic floor angle though given what your daughter said about that, it is possible for it not to be constantly tight but to spasm on and off, does your daughter ever seem to have to push urine out in small sections as opposed to just relax and get a constant stream? That's another classic sign. Also with it happening at night has she been a bedwetter who now goes for extra pees to make sure she's empty and ends up forcing bits out that don't need to come out yet and irritates the pelvic floor before bedtime so it flares up during the night?

The reason they thought maybe worms is pinworms can cause symptoms if they get to the vulva from the anus from scratching and of course fungal infections can too. I would buy a copy of Heal Pelvic Pain by Amy Stein and read all about it, she mentions children can be affected and the book is readily available from Amazon at a low price and has lots of bits you could get started with like the visualising relaxing the pelvic floor bit plus stretches for the muscles that attach to the pelvis if that's relevant.

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Re: Does anyone know of children who have vulvodynia?

Post  Shamilton on Fri Apr 12, 2013 9:54 pm

Hi Sarah

Thankyou for your reply.. I do wonder now if it could be pelvic floor related. My daughter isn't hypermobile and has always had great bladder control from a very young age, never been a bed wetter etc. However she does have 'giggle' incontinence where she has little accidents if she laughs. I wonder if it could be related in some way. I will certainly buy the book you mentioned to see if we can get any help from it. I am just off the phone to our GP who wanted to put her on a low dose of amitriptyline. I am really reluctant to go down that route at the moment, and have demanded she be referred to the ped gyn 1st and will explore other options.

Thanks again for the reply!

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Re: Does anyone know of children who have vulvodynia?

Post  Alana3 on Sat Apr 13, 2013 4:35 am

Where do you live

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Re: Does anyone know of children who have vulvodynia?

Post  Shamilton on Sat Apr 13, 2013 5:22 am

I'm in Scotland Alana

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Re: Does anyone know of children who have vulvodynia?

Post  Alana3 on Sat Apr 13, 2013 8:39 am

Oh I loved Scotland when I visited! I was going to recommend my doc but he's in Florida so I guess that wouldn't Work Sad

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Re: Does anyone know of children who have vulvodynia?

Post  jen007 on Sat Apr 13, 2013 11:20 am

Hi ladies,

I don't have children, but my mother has told me that I used to complain about pain "down there" when I was a kid. I remember having issues with my area and going to the doctors to get it checked, but nothing ever came of it. This was back in the 90's so I'm not sure how familiar doctors were with vulvodynia back then. I didn't start looking for treatment until I was about 15 years old. I have PVD (provoked vestibuldynia) so maybe thats why it didn't bother me too bad while I was growing up, but it really became a problem when I was in high school. I used to get uti's when I was a kid so my doctor told me to stop taking bubble baths. It seems that throughout my life baths were always a problem. As I got older I stopped taking baths, but eventually after getting older and more stressed out I started getting back into taking baths to relax. I'd always get a yeast infect a day or two after and get a flare up of pain. Maybe this is all connected to bubble baths? Who knows... If your children do take bubble baths I do suggest having them take showers from now on. See if theres an improvement after a week or so. Also try unscented soaps and detergents, the perfumes from the soaps may be irritating them. I'm sorry that some of you have children going through this. It's hard going through this as an adult let alone a child. I'll keep you and you're children in my thoughts and prayers! Hope this helps!

-Jen

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Re: Does anyone know of children who have vulvodynia?

Post  Loulou on Sun Apr 14, 2013 7:01 am

Hi Shamiton

I'm so sorry that you're daughter is suffering - hopefully advice and info you get here and through your docs will find a cause and treatment for her. From what you say it certainly sounds like pelvic floor dysfunction. I don't know how clued up ped gynes are about that??? but if you have no joy with that route try a womens health physio as they will definitely know about pelvic floor.

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