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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Vulvodynia?

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Vulvodynia?

Post  acidfairyy on Mon Jul 11, 2011 5:02 pm

Hi all, I'm Nikki, 23 and from Warwickshire in the UK.

A couple of months ago I got my first ever UTI and ever since then I have had problems with feeling sore 'down there'. At first I thought it was another UTI, but it wasn't. Then I thought it was thrush, but it wasn't.

Three weeks ago I went to my GP who had a look and took some swabs. All the swabs came back normal. She said it looked red down there but she did say I have some small white spots in a line which she seemed quite perplexed about. I have wondered if I might have lichen sclerosus instead of vulvodynia, but my symptoms seem to fit vulvodynia more.

Anyhoo, she gave me some Dermovate and some Epaderm to use as a soap substitute. It seemed to be working, then it stopped. Then it started working again... but currently it is not working.

My symptoms are an almost constant feeling of soreness, and it tends to be triggered by getting hot and sweaty, going for a wee, or sitting on a hard surface (not ideal as my Saturday job has me sitting on a stool; I might take a cushion in). I sometimes got itchiness but that's pretty rare.

I have a follow up appointment with my doctor next Tuesday (19th) and she said if things haven't worked she will send me to a vulvar specialist. She is a brilliant doctor and she said the specialist is great too, so I am hoping I will get a diagnosis, just not looking forward to the inevitable long NHS waiting list!

So, does it sound like vulvodynia? I can't think what else it can be aside from lichen sclerosus, but I will definitely tell her I want this referral. It gets me down sometimes so I'm trying to stay positive, but I've only had it since April and I can't imagine living with this forever. Then again, there are worse things in life!

Nikki x

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Re: Vulvodynia?

Post  Sebby (Admin) on Tue Jul 12, 2011 6:01 am


Hi Nikki and welcome to the forum

Vulvodynia basically means 'vulval pain' and is a description of a set of symptoms rather than a diagnosis.

"Chronic itching, burning & pain that causes physical, sexual and psychological distress" - from The Vulvodynia Survival Guide (Glazer & Rodke)

Causes can vary so even if you do have it you need to research and try different treatments.

It sounds like a good idea to go to a Vulval Clinic, gynea and dermotology if you can. Hopefully the one your GP knows will be great, but here is the link to the list of Vulval Clinic's in the Uk if you need it

http://www.vulvodyniasupportforum.com/t230-list-of-uk-vulval-clinics#1424

The website has changed a bit so you do need to search for your area.

I have constant soreness too and its triggered by anything touching the area, sitting etc. I am trying the Pelvic Floor theory at the moment. Bascially that an unstable and tense pelvic floor prevents the vulvar area from healing and being healthy (by a release of certain chemicals and prevention of proper blood supply to the area)

I do suggest getting yourself a copy of 'The Vulvodynia Survival Guide' as it explains a few theories etc and is a good all round introduction to the condition.

So get yourself to a clinic and dont give up, you are already way ahead than many women who have rubbish GPs! Hopefully a good treatment plan can be drawn up asap!


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