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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


G String Knickers

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G String Knickers

Post  nadja on Mon Jan 17, 2011 7:13 pm

Okay I have been thinking anyone worn these knickers before they got this condition? I'm just wondering if maybe it contributed to us getting it???
It could have damaged the nerves and that's how we ended up with it- including stress and infections....

I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!

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Re: G String Knickers

Post  Sebby (Admin) on Mon Jan 17, 2011 10:23 pm


I used to wear em when I was younger..then I just thought oh these are uncomfortable lol and that was before I got Vulvodynia!

I dont think they contributed to it tho..I don't get Vulvodynia pains around the anus but I do get a very tender coccyx (tail bone)when it hurts I cant sit back and when my vulva hurts I cant sit front! I should just float! and guess what its called! coccydynia!! Yes I must be collecting all illnesses ending in dynia lol

I think the tail bone pain comes from my tendency to sit back when I have vulva pain..oh we cant win can we!

My advice is when you can lie down..lie down! Anything to give you some relief its what I do

I hope this flare up calms down soon for you

xx
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Re: G String Knickers

Post  naomi on Mon Jan 17, 2011 11:03 pm

not for me, uti infections and continual yeast infections (both brought on by sex) caused mine. If i hadn't have gone near any evil willies id be fine today!!! should have been a nun!!
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Re: G String Knickers

Post  noni on Tue Jan 18, 2011 1:07 am

Ditto.
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Re: G String Knickers

Post  Sebby (Admin) on Tue Jan 18, 2011 10:16 pm


Evil willies! Lmao! Laughing

Yes indeed they are! With regards to my ex the evilness must have drained from his heart into his willy! bitter? me? loool!
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Re: G String Knickers

Post  noni on Wed Jan 19, 2011 4:33 am

Men. Meh.
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Re: G String Knickers

Post  angelique on Tue Feb 01, 2011 11:21 am

Hi Nadja,
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
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Re: G String Knickers

Post  nadja on Tue Feb 01, 2011 4:55 pm

Genital herpes? no it's not that as this came about since I was diagnosed with Vulvadynia/ Vestibulitis. What happened when you found out it was genital herpes? Is it cured now?

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Re: G String Knickers

Post  angelique on Wed Feb 02, 2011 12:21 am

No I dont have gential herpes in this area, but your symptoms sound more like it rather than vulvodynia.
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Re: G String Knickers

Post  Sebby (Admin) on Wed Feb 02, 2011 12:36 am


Pain around the anus is also part of Vulvodynia..

"The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina) and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels"

This quote is from the Vulval Pain Society website

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Re: G String Knickers

Post  Aussie on Wed Mar 16, 2011 6:54 am

I also have pain around the tailbone and bottom itchy raw feeling some days its in my bottom some days its round the front some days its all over. I suffered from coccdynia when i was about 10 they put it down to a bad fall I had. It went away after about a year of sitting on a hard book in the car or a hard chair. Then 12 years later I get vulvodynia and the tail bone pain comes back....iI also have pain with bowl movments. I am currently using a cream that relaxes the anal sphincter which makes pooing more pleaseant Smile

some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...

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Re: G String Knickers

Post  Sarah001 on Wed Mar 16, 2011 10:24 am

Let's not forget the pelvic floor attaches to the coccyx so a coccyx fall would easily set off the PF which can easily set of V.
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Re: G String Knickers

Post  Aussie on Thu Mar 17, 2011 9:39 am

yeah I get that but the fall was when i was 10 and had no symptoms between that resolving and v starting. I am sure there is a conneciton somewhere but doesn't explain why i was pain free for 12 years

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Re: G String Knickers

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