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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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G String Knickers

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G String Knickers

Post  nadja on Mon Jan 17, 2011 7:13 pm

Okay I have been thinking anyone worn these knickers before they got this condition? I'm just wondering if maybe it contributed to us getting it???
It could have damaged the nerves and that's how we ended up with it- including stress and infections....

I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!

nadja

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Re: G String Knickers

Post  Sebby (Admin) on Mon Jan 17, 2011 10:23 pm


I used to wear em when I was younger..then I just thought oh these are uncomfortable lol and that was before I got Vulvodynia!

I dont think they contributed to it tho..I don't get Vulvodynia pains around the anus but I do get a very tender coccyx (tail bone)when it hurts I cant sit back and when my vulva hurts I cant sit front! I should just float! and guess what its called! coccydynia!! Yes I must be collecting all illnesses ending in dynia lol

I think the tail bone pain comes from my tendency to sit back when I have vulva pain..oh we cant win can we!

My advice is when you can lie down..lie down! Anything to give you some relief its what I do

I hope this flare up calms down soon for you

xx
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Re: G String Knickers

Post  naomi on Mon Jan 17, 2011 11:03 pm

not for me, uti infections and continual yeast infections (both brought on by sex) caused mine. If i hadn't have gone near any evil willies id be fine today!!! should have been a nun!!
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Re: G String Knickers

Post  noni on Tue Jan 18, 2011 1:07 am

Ditto.
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Re: G String Knickers

Post  Sebby (Admin) on Tue Jan 18, 2011 10:16 pm


Evil willies! Lmao! Laughing

Yes indeed they are! With regards to my ex the evilness must have drained from his heart into his willy! bitter? me? loool!
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Re: G String Knickers

Post  noni on Wed Jan 19, 2011 4:33 am

Men. Meh.
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Re: G String Knickers

Post  angelique on Tue Feb 01, 2011 11:21 am

Hi Nadja,
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
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Re: G String Knickers

Post  nadja on Tue Feb 01, 2011 4:55 pm

Genital herpes? no it's not that as this came about since I was diagnosed with Vulvadynia/ Vestibulitis. What happened when you found out it was genital herpes? Is it cured now?

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Re: G String Knickers

Post  angelique on Wed Feb 02, 2011 12:21 am

No I dont have gential herpes in this area, but your symptoms sound more like it rather than vulvodynia.
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Re: G String Knickers

Post  Sebby (Admin) on Wed Feb 02, 2011 12:36 am


Pain around the anus is also part of Vulvodynia..

"The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina) and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels"

This quote is from the Vulval Pain Society website

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Re: G String Knickers

Post  Aussie on Wed Mar 16, 2011 6:54 am

I also have pain around the tailbone and bottom itchy raw feeling some days its in my bottom some days its round the front some days its all over. I suffered from coccdynia when i was about 10 they put it down to a bad fall I had. It went away after about a year of sitting on a hard book in the car or a hard chair. Then 12 years later I get vulvodynia and the tail bone pain comes back....iI also have pain with bowl movments. I am currently using a cream that relaxes the anal sphincter which makes pooing more pleaseant Smile

some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...

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Re: G String Knickers

Post  Sarah001 on Wed Mar 16, 2011 10:24 am

Let's not forget the pelvic floor attaches to the coccyx so a coccyx fall would easily set off the PF which can easily set of V.
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Re: G String Knickers

Post  Aussie on Thu Mar 17, 2011 9:39 am

yeah I get that but the fall was when i was 10 and had no symptoms between that resolving and v starting. I am sure there is a conneciton somewhere but doesn't explain why i was pain free for 12 years

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Re: G String Knickers

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