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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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G String Knickers

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G String Knickers

Post  nadja on Mon Jan 17, 2011 7:13 pm

Okay I have been thinking anyone worn these knickers before they got this condition? I'm just wondering if maybe it contributed to us getting it???
It could have damaged the nerves and that's how we ended up with it- including stress and infections....

I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!

nadja

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Re: G String Knickers

Post  Sebby (Admin) on Mon Jan 17, 2011 10:23 pm


I used to wear em when I was younger..then I just thought oh these are uncomfortable lol and that was before I got Vulvodynia!

I dont think they contributed to it tho..I don't get Vulvodynia pains around the anus but I do get a very tender coccyx (tail bone)when it hurts I cant sit back and when my vulva hurts I cant sit front! I should just float! and guess what its called! coccydynia!! Yes I must be collecting all illnesses ending in dynia lol

I think the tail bone pain comes from my tendency to sit back when I have vulva pain..oh we cant win can we!

My advice is when you can lie down..lie down! Anything to give you some relief its what I do

I hope this flare up calms down soon for you

xx
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Re: G String Knickers

Post  naomi on Mon Jan 17, 2011 11:03 pm

not for me, uti infections and continual yeast infections (both brought on by sex) caused mine. If i hadn't have gone near any evil willies id be fine today!!! should have been a nun!!
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Re: G String Knickers

Post  noni on Tue Jan 18, 2011 1:07 am

Ditto.
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Re: G String Knickers

Post  Sebby (Admin) on Tue Jan 18, 2011 10:16 pm


Evil willies! Lmao! Laughing

Yes indeed they are! With regards to my ex the evilness must have drained from his heart into his willy! bitter? me? loool!
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Re: G String Knickers

Post  noni on Wed Jan 19, 2011 4:33 am

Men. Meh.
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Re: G String Knickers

Post  angelique on Tue Feb 01, 2011 11:21 am

Hi Nadja,
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
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Re: G String Knickers

Post  nadja on Tue Feb 01, 2011 4:55 pm

Genital herpes? no it's not that as this came about since I was diagnosed with Vulvadynia/ Vestibulitis. What happened when you found out it was genital herpes? Is it cured now?

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Re: G String Knickers

Post  angelique on Wed Feb 02, 2011 12:21 am

No I dont have gential herpes in this area, but your symptoms sound more like it rather than vulvodynia.
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Re: G String Knickers

Post  Sebby (Admin) on Wed Feb 02, 2011 12:36 am


Pain around the anus is also part of Vulvodynia..

"The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina) and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels"

This quote is from the Vulval Pain Society website

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Re: G String Knickers

Post  Aussie on Wed Mar 16, 2011 6:54 am

I also have pain around the tailbone and bottom itchy raw feeling some days its in my bottom some days its round the front some days its all over. I suffered from coccdynia when i was about 10 they put it down to a bad fall I had. It went away after about a year of sitting on a hard book in the car or a hard chair. Then 12 years later I get vulvodynia and the tail bone pain comes back....iI also have pain with bowl movments. I am currently using a cream that relaxes the anal sphincter which makes pooing more pleaseant Smile

some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...

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Re: G String Knickers

Post  Sarah001 on Wed Mar 16, 2011 10:24 am

Let's not forget the pelvic floor attaches to the coccyx so a coccyx fall would easily set off the PF which can easily set of V.
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Re: G String Knickers

Post  Aussie on Thu Mar 17, 2011 9:39 am

yeah I get that but the fall was when i was 10 and had no symptoms between that resolving and v starting. I am sure there is a conneciton somewhere but doesn't explain why i was pain free for 12 years

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Re: G String Knickers

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