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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


G String Knickers

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G String Knickers

Post  nadja on Mon Jan 17, 2011 7:13 pm

Okay I have been thinking anyone worn these knickers before they got this condition? I'm just wondering if maybe it contributed to us getting it???
It could have damaged the nerves and that's how we ended up with it- including stress and infections....

I have been SOOOOO Bad the last few weeks I can bearly sit. It's in both the anus and vulva and it's giving me stichy pains all around front and dull pains bottom base of spine!!! I thought I would brave it and go for a run but it didn't help much. I just always want to lie on my bed and rub the discomfort away.... I am so SICK of it!!!!

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Re: G String Knickers

Post  Sebby (Admin) on Mon Jan 17, 2011 10:23 pm


I used to wear em when I was younger..then I just thought oh these are uncomfortable lol and that was before I got Vulvodynia!

I dont think they contributed to it tho..I don't get Vulvodynia pains around the anus but I do get a very tender coccyx (tail bone)when it hurts I cant sit back and when my vulva hurts I cant sit front! I should just float! and guess what its called! coccydynia!! Yes I must be collecting all illnesses ending in dynia lol

I think the tail bone pain comes from my tendency to sit back when I have vulva pain..oh we cant win can we!

My advice is when you can lie down..lie down! Anything to give you some relief its what I do

I hope this flare up calms down soon for you

xx
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Re: G String Knickers

Post  naomi on Mon Jan 17, 2011 11:03 pm

not for me, uti infections and continual yeast infections (both brought on by sex) caused mine. If i hadn't have gone near any evil willies id be fine today!!! should have been a nun!!
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Re: G String Knickers

Post  noni on Tue Jan 18, 2011 1:07 am

Ditto.
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Re: G String Knickers

Post  Sebby (Admin) on Tue Jan 18, 2011 10:16 pm


Evil willies! Lmao! Laughing

Yes indeed they are! With regards to my ex the evilness must have drained from his heart into his willy! bitter? me? loool!
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Re: G String Knickers

Post  noni on Wed Jan 19, 2011 4:33 am

Men. Meh.
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Re: G String Knickers

Post  angelique on Tue Feb 01, 2011 11:21 am

Hi Nadja,
Have you been tested for genital herpes, if your bottom and tail bone is very sore also then you may have this disease and not vulvodynia, been there done all that, sorry lovely, get the tests done for it, hope you get better soon.
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Re: G String Knickers

Post  nadja on Tue Feb 01, 2011 4:55 pm

Genital herpes? no it's not that as this came about since I was diagnosed with Vulvadynia/ Vestibulitis. What happened when you found out it was genital herpes? Is it cured now?

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Re: G String Knickers

Post  angelique on Wed Feb 02, 2011 12:21 am

No I dont have gential herpes in this area, but your symptoms sound more like it rather than vulvodynia.
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Re: G String Knickers

Post  Sebby (Admin) on Wed Feb 02, 2011 12:36 am


Pain around the anus is also part of Vulvodynia..

"The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina) and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels"

This quote is from the Vulval Pain Society website

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Re: G String Knickers

Post  Aussie on Wed Mar 16, 2011 6:54 am

I also have pain around the tailbone and bottom itchy raw feeling some days its in my bottom some days its round the front some days its all over. I suffered from coccdynia when i was about 10 they put it down to a bad fall I had. It went away after about a year of sitting on a hard book in the car or a hard chair. Then 12 years later I get vulvodynia and the tail bone pain comes back....iI also have pain with bowl movments. I am currently using a cream that relaxes the anal sphincter which makes pooing more pleaseant Smile

some times I think doctors just like to name things so it sounds like they know whats going on. I am so over this pain today...

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Re: G String Knickers

Post  Sarah001 on Wed Mar 16, 2011 10:24 am

Let's not forget the pelvic floor attaches to the coccyx so a coccyx fall would easily set off the PF which can easily set of V.
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Re: G String Knickers

Post  Aussie on Thu Mar 17, 2011 9:39 am

yeah I get that but the fall was when i was 10 and had no symptoms between that resolving and v starting. I am sure there is a conneciton somewhere but doesn't explain why i was pain free for 12 years

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Re: G String Knickers

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