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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 3:50 pm

Please could UK members of this forum sign this petition.  It's a petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students. Most of us in the UK struggle to find good medical care as our GPs and consultants received no education about pelvic pain during training. Please help make it a part of all medical training. Healthcare professionals who suffer from pelvic pain themselves admit that they received no formal training in pelvic pain in their medical education.  You could help change this situation.  Thank you Smile Xx 

https://petition.parliament.uk/petitions/128528

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  PainBlogger on Thu May 05, 2016 4:21 pm

Will do. Training in even general pain management is sorely lacking. The consultant on the pain management programme I went on for my back/neck/hip/everywhere pain said that it wasn't until she was training to be an anaesthetist that she learnt much about pain.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 4:57 pm

Thanks so much painblogger Smile If you can tweet it or share it in some way to reach more people that would grand too. Dr Philip Hammond (off the telly) has just tweeted it...so, who knows, the Government might end up having to respond! It's appalling that our docs know so little about pain, what with so many conditions right across the board involving pain in one way or another. Thanks again Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Thu May 05, 2016 7:29 pm

That's great that there's even a petition! I sure hope it gets enough signatures!

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  fairlight10 on Thu May 05, 2016 7:44 pm

Just signed the petition.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 6:46 am

Thank you Fairlight10 Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 8:23 am

emalita wrote:That's great that there's even a petition! I sure hope it gets enough signatures!

Thanks Emalita Smile I think there may be also some sort of petition or campaign in the USA going on atm. I'll ask on the Facebook Group I belong to and, if I'm right about that, I'll let you the details.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 9:36 am

Hi again, Emalita,

Here's the American petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed" http://www.ataraschimmel.com/petitions.html

The lady behind the campaign/petition it is Atara Schimmel.

This is Atara's FB page https://www.facebook.com/atara.schimmel?fref=ts and this is the group she runs on FB https://www.facebook.com/groups/pudendalneuralgiahope/ (it's a closed group so you'd have to apply to join it).

Hope that this is of some help/interest.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Fri May 06, 2016 1:20 pm

Thank you for the link! It's great that there is a focus here in the US, too.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 1:29 pm

You're welcome, Emalita Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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