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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 3:50 pm

Please could UK members of this forum sign this petition.  It's a petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students. Most of us in the UK struggle to find good medical care as our GPs and consultants received no education about pelvic pain during training. Please help make it a part of all medical training. Healthcare professionals who suffer from pelvic pain themselves admit that they received no formal training in pelvic pain in their medical education.  You could help change this situation.  Thank you Smile Xx 

https://petition.parliament.uk/petitions/128528

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  PainBlogger on Thu May 05, 2016 4:21 pm

Will do. Training in even general pain management is sorely lacking. The consultant on the pain management programme I went on for my back/neck/hip/everywhere pain said that it wasn't until she was training to be an anaesthetist that she learnt much about pain.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 4:57 pm

Thanks so much painblogger Smile If you can tweet it or share it in some way to reach more people that would grand too. Dr Philip Hammond (off the telly) has just tweeted it...so, who knows, the Government might end up having to respond! It's appalling that our docs know so little about pain, what with so many conditions right across the board involving pain in one way or another. Thanks again Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Thu May 05, 2016 7:29 pm

That's great that there's even a petition! I sure hope it gets enough signatures!

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  fairlight10 on Thu May 05, 2016 7:44 pm

Just signed the petition.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 6:46 am

Thank you Fairlight10 Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 8:23 am

emalita wrote:That's great that there's even a petition! I sure hope it gets enough signatures!

Thanks Emalita Smile I think there may be also some sort of petition or campaign in the USA going on atm. I'll ask on the Facebook Group I belong to and, if I'm right about that, I'll let you the details.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 9:36 am

Hi again, Emalita,

Here's the American petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed" http://www.ataraschimmel.com/petitions.html

The lady behind the campaign/petition it is Atara Schimmel.

This is Atara's FB page https://www.facebook.com/atara.schimmel?fref=ts and this is the group she runs on FB https://www.facebook.com/groups/pudendalneuralgiahope/ (it's a closed group so you'd have to apply to join it).

Hope that this is of some help/interest.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Fri May 06, 2016 1:20 pm

Thank you for the link! It's great that there is a focus here in the US, too.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 1:29 pm

You're welcome, Emalita Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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