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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 3:50 pm

Please could UK members of this forum sign this petition.  It's a petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students. Most of us in the UK struggle to find good medical care as our GPs and consultants received no education about pelvic pain during training. Please help make it a part of all medical training. Healthcare professionals who suffer from pelvic pain themselves admit that they received no formal training in pelvic pain in their medical education.  You could help change this situation.  Thank you Smile Xx 

https://petition.parliament.uk/petitions/128528

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  PainBlogger on Thu May 05, 2016 4:21 pm

Will do. Training in even general pain management is sorely lacking. The consultant on the pain management programme I went on for my back/neck/hip/everywhere pain said that it wasn't until she was training to be an anaesthetist that she learnt much about pain.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Thu May 05, 2016 4:57 pm

Thanks so much painblogger Smile If you can tweet it or share it in some way to reach more people that would grand too. Dr Philip Hammond (off the telly) has just tweeted it...so, who knows, the Government might end up having to respond! It's appalling that our docs know so little about pain, what with so many conditions right across the board involving pain in one way or another. Thanks again Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Thu May 05, 2016 7:29 pm

That's great that there's even a petition! I sure hope it gets enough signatures!

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  fairlight10 on Thu May 05, 2016 7:44 pm

Just signed the petition.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 6:46 am

Thank you Fairlight10 Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 8:23 am

emalita wrote:That's great that there's even a petition! I sure hope it gets enough signatures!

Thanks Emalita Smile I think there may be also some sort of petition or campaign in the USA going on atm. I'll ask on the Facebook Group I belong to and, if I'm right about that, I'll let you the details.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 9:36 am

Hi again, Emalita,

Here's the American petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed" http://www.ataraschimmel.com/petitions.html

The lady behind the campaign/petition it is Atara Schimmel.

This is Atara's FB page https://www.facebook.com/atara.schimmel?fref=ts and this is the group she runs on FB https://www.facebook.com/groups/pudendalneuralgiahope/ (it's a closed group so you'd have to apply to join it).

Hope that this is of some help/interest.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  emalita on Fri May 06, 2016 1:20 pm

Thank you for the link! It's great that there is a focus here in the US, too.

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

Post  Fielder on Fri May 06, 2016 1:29 pm

You're welcome, Emalita Smile

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Re: UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students

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