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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
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» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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List of uk Vulval clinics....

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List of uk Vulval clinics....

Post  Sebby (Admin) on Wed Jan 26, 2011 12:03 am



Last edited by Sebby (Admin) on Tue Jul 12, 2011 5:44 am; edited 1 time in total

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Re: List of uk Vulval clinics....

Post  gem123 on Wed Jan 26, 2011 9:48 am

how w ould i go about getting to see someone in liverpool do you think a letter would work? or would you need to go through a g.p and there is no choose and book option available? thanks gem xxx

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Re: List of uk Vulval clinics....

Post  Sebby (Admin) on Wed Jan 26, 2011 10:48 am


You need your GP to refer you

It should be possible to ask for a specific referal to a specific clinic and or person

Insist with your GP that you need a specialist Vulval Clinc and that that Clinic/Dr has been recommended to you

I have found that I have been told a few times that the Clinic was a Vulval clinic when in fact it was general Gynae and the Dr's knew sod all about Vulvodyia...its why Im pleased to have found this list Smile
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Re: List of uk Vulval clinics....

Post  Guest on Fri Feb 18, 2011 11:08 am

I am seeing a vulval specialist at the wolverton centre which is attached to Kingston hospital, They are a GUM clinic and they refer you to her, Dr mccarthy. Had to wait a good few months for the appoinment but saw her breifly in the clinic and she sounds amazing. So if anyone lives in Surrey/London they might be worth a try. There telephone number is 02089749331. Your gp can also refer you to her.

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Re: List of uk Vulval clinics....

Post  Mouse on Sat Feb 19, 2011 12:51 am

I found my new improved specialist at a vulval clinic. It makes sense that they would have specific knowledge. She is amazing but is very selfishly about to give birth!


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Re: List of uk Vulval clinics....

Post  lolainslacks on Wed Apr 20, 2011 12:53 pm

Does this mean that the doctors on this list as specialists when it comes to vulvodynia and ther pelvic pain disorders? Because I was surprised to see my city listed there, and I had no idea we had any specialists.

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Re: List of uk Vulval clinics....

Post  Sebby (Admin) on Thu Apr 21, 2011 7:06 pm


I have got my refereal to my vulval clinic in London. Im guessing these guys are specialists in anything vulval related as I got it from the vulval society there are so many conditions including vulvodynia. Keeping my fingers crossed.

I was told the last clinic I went to was a vulval clinic but it was just general gynea..its like the drs dont even know what a vulval clinic is! which is why I decided to trust this list instead lol

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Re: List of uk Vulval clinics....

Post  JemimaSurrender on Sun Dec 04, 2011 12:10 am

I just checked this out... I'm desperate to speak to someone who knows what they're doing. The closest I've got so far is a gynaecologist at Solihull Hospital who diagnosed me, but I still feel like I need to talk to someone who deals with it every week, and knows all about the surgery side of it, and what other options I have as I've apparently ran out of medication options!

I had a look through the list and it suggested Burton Hospital. Just a heads up... I spent two years in and out of that place seeing several different "specialists", gynaecologists and surgeons, and not one of them could tell me what was wrong, and kept discharging me. One even brushed me off and gave me an estrogen pessary, when in my notes it said I couldn't have any estrogen and it made my symptoms so much worse! Obviously not too interested in their patients at all. (Apart from Dr. Artley... He's a lovely man!)

If anyone's from a similar area, Dr Hutcheon at Solihull was the best so far. I was told she was a dermatologist and gynaecologist, but she ended up just being the latter. Still, at least I got diagnosed.

Does anyone know anything about the Mid Staffs NHS Foundation in Stafford? I'd be sooo grateful if you had any info!

Cheeeeeers, Beth.

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Re: List of uk Vulval clinics....

Post  Sarah001 on Mon Dec 05, 2011 12:04 pm

In my area the vulval clinic is run by a vulval dermatologist and she visits all the hospitals once a month to see V patients. As at your GUM clinic if you don't see a clinic near you as they usually know who runs it and can refer you too.
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Re: List of uk Vulval clinics....

Post  JemimaSurrender on Mon Dec 05, 2011 12:59 pm

Sarah001 wrote:In my area the vulval clinic is run by a vulval dermatologist and she visits all the hospitals once a month to see V patients. As at your GUM clinic if you don't see a clinic near you as they usually know who runs it and can refer you too.
I think this is who I was originally referred to when I went to Solihull hospital. But when I got there I just had a gynaecologist and she said the other one was "on leave" but that was all she told me. I was really angry as I'd waited for months for that appointment too.
I'd like to try again to get to see her but it's such a pain. Even if my doc refers me, I have to ring up that choose&book place and they never know what you're talking about. Last time I spent 15 minutes on the phone with them explaining it was a specific person at a specific hospital that I had to see, only to be told if it wasn't on her list, she couldn't book it.

Ahhhh!

The system drives me mad, it really does.

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Re: List of uk Vulval clinics....

Post  angelfangs on Sun Sep 30, 2012 6:37 pm

hi, i know this is an older thread but the uk vulval clinic linky doesn't work for me. is there any other linkys or does anyone know if there are any people that can deal with vulvodynia in the north-east of england.

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Re: List of uk Vulval clinics....

Post  Loulou on Mon Oct 01, 2012 8:20 pm

Hi angelfangs - I think you can get to the list via this link:

http://www.bssvd.org/index.php?option=com_sobi2&sobi2Task=search&Itemid=16

If this doesn't work go to www.bssvd.org, click on the Vulval Clinics tab and then download the list.

I live in the North East and it looks like there is a clinic at the RVI but I haven't been to it - I was diagnosed at the Blyth GUM clinic by Dr Hotonu. Your local GUM clinic would be a good first port of call if you're having no luck with your doctor. The clinic can then refer you on.

My first, and so far, only referral was for assessment of my pelvic floor. So if you do go the RVI clinic I'd be interested to know how you get on.

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Re: List of uk Vulval clinics....

Post  angelfangs on Mon Oct 01, 2012 10:32 pm

thank you loulou. the linky you gave me works! the rvi seems to be the nearest to me.

my gp was the one who said what i have sounds like vulvodynia (after seeing 2 other gps and a gynaecologist, all of which insisted i must have thrush even though all the tests were negative and treatment wasn't working. and then because of the negative tests they insisted nothing must be wrong with me). she put me on amitriptyline (an antidepressant) but it hasn't started working yet as i've only been taking it for 2 months and my drs practice now refuses to prescribe it for me. so i'm back to square one. tomorrow i have a gp appointment so i'm going to be asked to be refered to a vulval clinic or a womens health physiotherapist, which ever they can do as i'm also having pelvic floor issues.

i tried to go to the local gum clinic once, i didn't realise it was at the hospital and had my first panic attack after walking through the door and then running as fast as i could towards the hospital gates. bad things have happened to me at the local hospital.

if i do get any where with the rvi or a physiotherapist i will post about it on here.

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Re: List of uk Vulval clinics....

Post  Loulou on Thu Oct 04, 2012 8:42 pm

Angelfangs, sorry to hear you've had bad experiences with the GPs and hospital - unfortunately thats not an uncommon experience for us vvd sufferers Mad If you don't have any luck with your appointment try another GUM clinic, you don't have to go local.

And if you really want the antidepressants don't let them fob you off, or go to another clinic if necessary. I must admit tho that i have avoided the antidepressants as my feeling is that they treat the symptoms but not the cause. That was my personal choice (my consultant agreed as she said she would rather leave them as a last resort too) and my pain levels have come down since i've been doing regular chiro, yoga and pilates.

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Re: List of uk Vulval clinics....

Post  mary jane on Sun Oct 06, 2013 1:19 pm

I was diagnosed in 10 minutes at the GUM clinic at St Mary's Hospital in London. I'd recommend it to anyone else. It's the only way someone will actually examine you in this country, GPs barely look at the area
I'm now waiting for their referral letter for their own vulval disease clinic.
I pray I find a good doctor! I just started university and it's so hard to focus on lectures Neutral 
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Vulval clinics in UK

Post  Jo44 on Mon Jan 08, 2018 6:19 pm

Hi

Can someone please tell me if there is a Vulval clinic in the West Country, UK please? I’m near to both Exeter & Plymouth.

Thanks in advance


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Re: List of uk Vulval clinics....

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