Congenital Neuroproliferative vestibulodynia?

Hello dear friends!
Really need your help, in our country doctors don't know this desease at all, and after reading some information i suppose i have Congenital Neuroproliferative vestibulodynia, can you suggest something?

Im 28, so my vestibula and vagina is painfull since child, but only when touched, sex was always painfull (less painfull while periods of ovulation - i suppose cuz of cervical mucus). The main pain is on the eve of the vagina, and when i put my finger to it there are some ridges at the very beginning and they are extremely painfull, so even oral sex for me is very uncomfortable.

Why I suggest that it can be Congenital Neuroproliferative vestibulodynia is that in book "When sex hurts" is said that usually belly button is painfull, and since childhood i dont like to touch it - very uncomfortable.

So dear friends, can you share your thoughts, sometimes i think that there is no wayout and sex for me will be always painfull

From a quick google search, it sounds like what you're referring to is also known as Provoked Vestibulodynia, which is the more common term. Regardless of what it is called, I'm so sorry to hear you are in pain. I certainly understand how frustrating and devastating it can be.

What treatments have you tried so far? I'm not sure where you're located and what's available, but there are many antidepressants or anticonvulsants (e.g. gabapentin, amitriptyline, etc.) that women seem to have good success with.

Have you tried pelvic floor physical therapy?

Hi from Norway!
I guess you're Finnish. It is very sad that your doctors are so unaware this horrible condition, but this is not the case in Sweden. Do you speak Swedish? In Sweden, there are several "vulvamottagelser" (using Norwegian now). The problem there is the opposite. Vulvodynia, even generalized, is called vestibulitt. If you have this kind of pain, then there is a great chance that you may get help there. There is a very good Swedish group on Facebook, called "Uretritt og vestibulitt". Several women with similar problems are exchanging their experiences. There is a Danish group too, but in Denmark the situasjon is a little bit as in Finland. In Norway most of the doctors know about this condition, but have little experience. There is only one vulva-klinikk in Oslo. Waiting time is more than 2 years for one appointment. I had to read a lot, nearly all of the information was in English and from English-speaking countries. When I experienced the typical symptoms for a second time since 2008, I gathered all information, then presented the case to my GP in a way that there was only one conclusion.... Fortunately I have had this pain only for a few weeks, and got my present medication at once. Today, after three weeks of treatment with Gabapentin I am nearly pain free. Without it I have constant nerve-pain, like a red-hot charcoal, in my entire vulva.
If you have questions, please send a PM - I understand Swedish as well as Norwegian and German.
I wish you can get relief very soon - sending youa lot of positive energies.