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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

Congenital Neuroproliferative vestibulodynia?

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Congenital Neuroproliferative vestibulodynia?

Post  Oleniloinen on Thu Jun 02, 2016 5:02 pm

Hello dear friends!
Really need your help, in our country doctors don't know this desease at all, and after reading some information i suppose i have Congenital Neuroproliferative vestibulodynia, can you suggest something?

Im 28, so my vestibula and vagina is painfull since child, but only when touched, sex was always painfull (less painfull while periods of ovulation - i suppose cuz of cervical mucus). The main pain is on the eve of the vagina, and when i put my finger to it there are some ridges at the very beginning and they are extremely painfull, so even oral sex for me is very uncomfortable.

Why I suggest that it can be Congenital Neuroproliferative vestibulodynia is that in book "When sex hurts" is said that usually belly button is painfull, and since childhood i dont like to touch it - very uncomfortable.

So dear friends, can you share your thoughts, sometimes i think that there is no wayout and sex for me will be always painfull


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Re: Congenital Neuroproliferative vestibulodynia?

Post  emalita on Thu Jun 02, 2016 8:53 pm

From a quick google search, it sounds like what you're referring to is also known as Provoked Vestibulodynia, which is the more common term. Regardless of what it is called, I'm so sorry to hear you are in pain. I certainly understand how frustrating and devastating it can be.

What treatments have you tried so far? I'm not sure where you're located and what's available, but there are many antidepressants or anticonvulsants (e.g. gabapentin, amitriptyline, etc.) that women seem to have good success with.

Have you tried pelvic floor physical therapy?


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RE: Congenital Neuroproliferative Vestibulodynia

Post  Antaea on Fri Jun 03, 2016 11:44 am

Hi from Norway!
I guess you're Finnish. It is very sad that your doctors are so unaware this horrible condition, but this is not the case in Sweden. Do you speak Swedish? In Sweden, there are several "vulvamottagelser" (using Norwegian now). The problem there is the opposite. Vulvodynia, even generalized, is called vestibulitt. If you have this kind of pain, then there is a great chance that you may get help there. There is a very good Swedish group on Facebook, called "Uretritt og vestibulitt". Several women with similar problems are exchanging their experiences. There is a Danish group too, but in Denmark the situasjon is a little bit as in Finland. In Norway most of the doctors know about this condition, but have little experience. There is only one vulva-klinikk in Oslo. Waiting time is more than 2 years for one appointment. I had to read a lot, nearly all of the information was in English and from English-speaking countries. When I experienced the typical symptoms for a second time since 2008, I gathered all information, then presented the case to my GP in a way that there was only one conclusion.... Fortunately I have had this pain only for a few weeks, and got my present medication at once. Today, after three weeks of treatment with Gabapentin I am nearly pain free. Without it I have constant nerve-pain, like a red-hot charcoal, in my entire vulva.
If you have questions, please send a PM - I understand Swedish as well as Norwegian and German.
I wish you can get relief very soon - sending youa lot of positive energies.

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Re: Congenital Neuroproliferative vestibulodynia?

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