Vulvodynia Support
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» Hope to all my suffering ladies
Suspected Vestibulodynia (not diagnosed) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Suspected Vestibulodynia (not diagnosed) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Suspected Vestibulodynia (not diagnosed) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Suspected Vestibulodynia (not diagnosed) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Suspected Vestibulodynia (not diagnosed) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Suspected Vestibulodynia (not diagnosed) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Suspected Vestibulodynia (not diagnosed) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Suspected Vestibulodynia (not diagnosed) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Suspected Vestibulodynia (not diagnosed) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Suspected Vestibulodynia (not diagnosed)

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Suspected Vestibulodynia (not diagnosed) Empty Suspected Vestibulodynia (not diagnosed)

Post  infinitelywondering Sun Dec 04, 2016 6:32 pm

Hey everyone,

I am 16 years old and I recently have discovered that inserting tampons really hurts near the entrance of the vagina. I have been to the doctors and my yeast infection test results came back negative. I am still a virgin and had a hymenectomy around 6 months ago.

I am getting really stressed and upset about this because whenever I try to use tampons, the pain is VERY sharp and sore; the area feels really raw and looks bright red, particularly on one side. I am too scared to have sex because I know it will hurt so much, and I am very worried that I won't be able to find a cure for this Sad

I've read so many things about how it ruins your life and there is no cure but I am determined to find one. I've booked an appointment with my gynaecologist who performed my hymenectomy, perhaps that triggered this?

I am sorry for rambling so much but I am really upset and am desperate to get rid of this pain

Thanks so much Smile

infinitelywondering

Posts : 34
Join date : 2016-12-04

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Suspected Vestibulodynia (not diagnosed) Empty Re: Suspected Vestibulodynia (not diagnosed)

Post  PainBlogger Tue Dec 06, 2016 4:41 pm

Firstly - don't panic. Yes, there are lots of scary stories on the Internet about women who have suffered for years. But there are also many women whose symptoms resolved - they just aren't so vocal because they are better and don't need to use these Internet forums Smile

See what the gynaecologist has to suggest and take it from there. If inserting tampons is an ongoing problem then maybe a women's health/pelvic pain physiotherapist/PT could help you to train the muscles to be less tense and painful. I'd advise you to stop trying to use tampons until you've spoken to the gynaecologist. And don't think about sex and how painful it might be at this point. Take one step at a time.

PainBlogger

Posts : 219
Join date : 2015-07-27

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